Struggling to cope with Stage IV diagnosis and what the future holds.

@crosschek geez, I am sorry about this diagnosis. TNBC can be difficult due to a lack of druggable targets. It sounds like your doctor has been really good about gathering the needed information.
Your wife is young, and it is especially hard to think about cancer when you are young. I was in my 30’s and it definitely leads to different decisions, and a willingness to go further to treat the cancer.
I know that I read a ton of abstracts about research for TNBC, because that is considered one of the biggest needs.
Is your wife being treated at a cancer center or teaching hospital? Any possibility of clinical trials?

@crosschek
Did they try Keytruda?

@auntieoakley we are hoping she will qualify for a clinical trial in the new year, however, we are told she must stop taking Capecitebine to allow a mass to develop in order for her to be considered for the trial. We are not at a teaching hospital but at BC Cancer Center in Victoria BC. Curious, what type of cancer did you have? Was it TNBC? If so, can I ask what you did to treat the cancer?

Mary, I too have struggled with those thoughts.
Over 20 years ago, at the age of 44, I was diagnosed with stage 3 lobular breast cancer. I had noticed a dimple near my nipple. All scans- mammogram, ultrasound, and breast MRI, had showed nothing. I spoke with the radiologist regarding my question that "if it wasn't a tumor causing the dimple, what could it be?" She encouraged me to see a breast specialist.
She saved my life.
The specialist decided to do a biopsy. Lo and behold, there was cancer. .. lobular, stage 3 because of the size.
I had a double mastectomy, chemo, and radiation. Cancer was not found past 2 lymph nodes. I went on to take tamoxifen for 5 years and was declared cancer free.
In 2020, on my birthday, and full of optimism that we now were Covid vaccinated and looking forward to rejoining a normal life, I went to my orthepedist complaining of new pain in my hip, suspecting a new area where osteoarthritis was settling in.
He took an Xray, and returned with tearful eyes, telling me of spots on my pelvic bone.
He called my oncologist and off I went.
Sure enough, the lobular cancer had metastasized to my bones.
I was put on the regiment of Ibrance and Letrozole, after months of procedures trying to get a specimen to type it.
All that summer, I sat on my backporch, gazing wistfully at my beloved flower garden, (looking very sad from my neglect), full of fear, gloom, dread, and depression.
Then one day, out of the blue, I had this ephinany -
Why was I perseverating on my death, paralyzed by fear over the suffering that would occur before it?
I was not suffering in physical pain yet.
I was not dying yet.
And when that day did come, I would look back and regret that I wasted all those perfectly good days that had been afforded to me, by wallowing in grief of over what had yet to occur.
So I stood up, put on my gardening gloves, and returned to a state of purpose and productivity, busying myself in the place I love the most ...
My garden...
It felt so good.
And when I was done toiling for the day, I called each of my daughters and chatted. In the next few days, I took to calling and texting all of my loved ones, including my 2 sisters, my 12 grandchildren, and my closest of friends.
And I didn't mention cancer.
I returned to living my life, not as I had known it, because I couldn't deny that it had changed.
And I can't deny that my fear does arise, and whisper in my ear from time to time.
It is not the dying that I fear, but rather the physical suffering.
My go to silence-the-fear lurking in my brain is to remind myself that I could very well die first of a heart attack or in acar accident.
Bottom line is that death will come to us all.
But it is not here yet for me.
So in the meantime, I strive, I choose, to live each day as if cancer does not reside in my body.
I read once that a study was done, regarding regrets, with people who were dying. Most did not hold regret on the things that they had done in their life...
... but rather, they regretted those things that they DIDN'T do in their life.
And I don't want to find myself, at the end of my days, regretting that I wasted all of those perfectly good days that I did have, paralyzed with gloom and mourning over what was to come.
And none of us, whether we are healthy or not, ever know what is to come, anyway!
Today is my birthday, 2 years to the day that the scent of cancer had returned to my life. I am still here, on my backporch, gazing at my garden as it wakens from its winter sleep.
I am not that same fearful, full of dread, gloom and doom, woman who sat here 2 years ago.
I am still among the living. I choose to be productive in my day. I choose to live a life that has a purpose.
Coupled with loosing my father only months before my diagnosis, those cancer treatments over 20 years ago left me utterly fatigued and deep in depression. At follow-up appt. with my radiologist, I embarrassed myself by bursting into tears before either of us spoke. She took my chin gently in her hand and looked my in the eye. She said in her heavy accent, "This is what you do. Each day, you get up and get dressed. Then you choose one chore to do. That's it, only one." I have never forgot the wisdom contained in that woman's directive.
The key to fighting depression is productivity. This restores your sense of worth.
So, in the present, I forgive myself on those days, when I am so very fatigued, that my only productivity lies in getting out of bed, getting dressed, and commiting myself to accomplish only one little thing, whether it be play (a text or phone call) or a simple chore.
Mary, I hope that those strategies raise your spirits as they do mine.
There is life to be living - today. Fill it with purpose, productivity, and time spent with those who cherish you.
Perseverating on future gloom and doom only serves to distract you from this good day that you have right now, at hand.
You can never control what happens to you, but you can control the manner in which you choose to react to it. Choose to do the things that you can do right now, no matter the limitations.
Just continue to live your life as you would have before you received your diagnosis. The only thing that has really changed for me is that all of those "someday" things that I was going to do, or get, are things I am no longer putting off for "someday".
I took that trip back to Illinois, to share the place of my childhood with my husband. I took my bucketlist trip to Greece. I take quick trips to visit my kids instead of getting chores done at home. I cook all those complicated recipes that I had put on my Pintrist for the "someday " when I have time. In reverse, I don't stress about things being perfect on holidays, I focus instead on just enjoying the company of my loved ones. I buy ready-made food instead of laboring away in the kitchen and missing out on playing cards and games with my grandchildren.
I simply made a decision 2 years ago to continue to live my life, only changing things up to make each day more fulfilling and purposeful for myself.
The act of pondering on the reality of what cancer has in store for me is now the only thing relegated to my "someday" list.
In turn, I am currently focused on dusting off the previous items on that list and checking them off...
one by one.

@mimster

Wow! Such wisdom. Thank you. I will remember your words on my life's journeys. Good luck and blessings to you.