Stroke/Basilar Artery Occulsion/Pontine Infarction/Locked In Syndrome

Posted by kshabani22 @kshabani22, May 16, 2022

My 64yo dad recently had a stroke, diagnosed with a basilar artery occulsion and blockage of the pons with an unsuccessful thrombectomy. His current stroke team is saying he has Locked-in Syndrome due to a complete blockage of the artery and no other treatment is possible including surgery and medication. He is currently quadriplegic, trying to get off the ventilator but has full cognition and is communicating via limited eye movements and blinking.

Any advice on seeking a second opinion with Mayo Clinic or elsewhere? Or advice on the overall situation to keep my dad's care from losing priority and see more progress? Please and thank you!

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Amanda Roe | @amandajro | Jun 18, 2022

Hello @kshabani22 and welcome to Mayo Clinic Connect. I am sorry to hear of your dad's stroke and can imagine this has been a very difficult time for you and him both. It is great that you've reached out to connect with others who know what you're going through.

I think a second opinion seems warranted whenever you're being given news that nothing more can be done, certainly. I am not sure where you are located, however, Mayo Clinic has world-renowned stroke teams who work on the most complex of cases. Here is some information:

- Stroke Care at Mayo Clinic:
https://www.mayoclinic.org/diseases-conditions/stroke/care-at-mayo-clinic/mac-20350122

Should you be interested in pursing an appointment, you may use this link: http://mayocl.in/1mtmR63

Are you able to share an update on your dad's condition?