Strange symptoms that seem autoimmune related
Hello! I'm new here to Mayo Clinic Connect. For the past 4-5 months, my mom has had sporadic facial swelling (including her tongue), under her feet, hands and other parts of her body. She says it starts slowly and then it swells up a lot (like a red bump) and slowly goes down. Just yesterday, a stressful situation happened and her fingers immediately started swelling up. She went to sleep fine and woke up with a swollen tongue (she can breathe and drink). It's the second time this has happened.
When the swollen patches come out on her foot or hands, it can also cause itching. After a while, the swollen patches go down and then come back again. We've gone to the emergency twice already.
The first time she was given methylprednisolone and it brought down the swelling; but as soon as she started tapering it off, she started swelling again. The second time we went to the emergency, they gave her Allegra for the swelling and it helped, but the swelling keeps occurring sporadically.
We went to her general doctor, but he said he didn't know what it was. She recently had some tests done to check her kidneys and came back with a slightly high numbers of BUN, protein and cholesterol. However, the doctor didn't think the swelling was associated with it. She's modified her diet to reduce protein intake, but she's still getting swollen without eating any protein at all.
I'm wondering what specialist would be best for her to see. I think it might be some type of immune response (autoimmune diseases are common in the family). She's been diagnosed with Lichen pinus (about 5 years ago), but I don't think these symptoms are common for Lichen. (She doesn't take prednisone on a daily basis). She also has hypothyroidism, but recently her tests came out fine.
Any suggestions are greatly appreciated.