Stopping Tagrisso after 3 years

@franciekid I'm 79 and have had much the same experience as you. Original lobectomy 2018 followed by chemo and another surgery two years later. After another two years another nodule showed up but instead of surgery I started tagrisso. I've been on tagrisso almost three years and the nodule has disappeared. A little tense before each ct scan since I've been told it usually stops working after a year or two. Do you have a backup plan if tag stops working?

@macathartscove Doc will continue CT scans and liquid biopsy every 3 months. Because I started on Tagrisso and have had no recurrences, she’s confident that the cancer will not return. Liquid biopsy - blood test - detects DNA so they can see if the cancer is back before it shows up in scans. Her first plan would be to get back on Tagrisso. If it’s another mutation, there are other targeted drugs. And yes, scanxiety is quite real. 🤞 for you and a virtual hug. We’re all in this together.

Thanks for getting back to me. Liquid biopsy is a new to me, I have a fairly young oncologist at MSK, I would hope he's up on the latest info but since my scans have been good for three years he probably thinks don't mess with what's been working. Continued good luck to you, it's nice to connect with people in the same boat.

Welcome @macathartscove, It sounds like you've faced your share of ups and downs. No wonder scans are stressful. They are hard for most of us. I try to remember that my stressing about the scan isn't going to change the result and if there is something there, we're better off knowing about it sooner rather than later. I have a different mutation based lung cancer, ALK, and also take a targeted therapy. It's been six years for me. Hoping that your clear scans continue!