Stopping CPAP use

Posted by me49 @me49, Jun 14 11:04am

I have been on CPAP for 1.5 years. I started with an AHI of 38. The past few months my events range from 3.6 to 0.0 The pressures range from 5 to 10. I have been experiencing dry mouth gums and tongue. I would like to stop this because it's causing other issues. I tried a full face mask and have difficulty with the exhale. I feel that the pressure is too high and it forces my mouth open. My dr. was not open to another sleep study. I had the mask on for 5 hours, but only was asleep 2.5 hours. Anyone have any ideas as to what I can do to resove this issue? Thx for any insight that you can provide.

Interested in more discussions like this? Go to the Sleep Health Support Group.

Thanks I took your advice and didn't use the machine and I slept like a baby. I am a mouth breather and other than the clicking noise emanating from my mouth (drives my hubby crazy) all was ok. I have been taking morphine for back pain for years and wonder if it would affect my count. My mask hurts so much and the strap gives me a headache every night. I know there are different masks but same headgear. Don't know what I am going to do
🙁

REPLY

I can only speak from my personal experience with this and I have had similar experiences with cpap therapy off and on over the last twenty five years using different machines. Usually I'd get these kind of issues from something going on in my environment, such as, nasal congestion from seasonal allergies or colds, disturbed sleep due to food or drink that didn't agree with me, alcoholic beverages too close to bedtime or too many drinks and slightly inebriation. I have started using an Airsense11 autoset cpap and it has made all the difference in my OSA journey. This machine can be set by my physician's office, cpap supply provider, and I've learned how to make the adjustments as well. It sends data to my doctor once a month and the best thing about this machine is that it is very appropriately named as it will auto adjust the pressure needs as I am sleeping and responds to me so that I get more restful sleep. I can get information on number of events per night, pressure ranges, and so many more data points. I use the nasal pillows and there is also a detachable chin strap for help keeping mouth closed while sleeping. You might try to see about getting a different machine depending on age of current machine and insurance that may cover the cost. My supplier was required to rent the machine to me while insurance monitored my use to decide weather to pay for the entire cost of machine. I was required to have an average nightly use of 6 or more hours to qualify for insurance paying the cost. And I agree with the other response, if your current doctor doesn't seem to involve you in decisions or shows a lack of concern and not listening to you, definitely find a new doctor.

REPLY
@rank64

I can only speak from my personal experience with this and I have had similar experiences with cpap therapy off and on over the last twenty five years using different machines. Usually I'd get these kind of issues from something going on in my environment, such as, nasal congestion from seasonal allergies or colds, disturbed sleep due to food or drink that didn't agree with me, alcoholic beverages too close to bedtime or too many drinks and slightly inebriation. I have started using an Airsense11 autoset cpap and it has made all the difference in my OSA journey. This machine can be set by my physician's office, cpap supply provider, and I've learned how to make the adjustments as well. It sends data to my doctor once a month and the best thing about this machine is that it is very appropriately named as it will auto adjust the pressure needs as I am sleeping and responds to me so that I get more restful sleep. I can get information on number of events per night, pressure ranges, and so many more data points. I use the nasal pillows and there is also a detachable chin strap for help keeping mouth closed while sleeping. You might try to see about getting a different machine depending on age of current machine and insurance that may cover the cost. My supplier was required to rent the machine to me while insurance monitored my use to decide weather to pay for the entire cost of machine. I was required to have an average nightly use of 6 or more hours to qualify for insurance paying the cost. And I agree with the other response, if your current doctor doesn't seem to involve you in decisions or shows a lack of concern and not listening to you, definitely find a new doctor.

Jump to this post

I am currently using an Airsense 11. I stopped the ramp feature and have the pressure set ranging from 5 to 10. It's on Auto set. I find that I still wake up 2 times a night. I keep the mask on for the required 4.5 hours. When I take it off, I go back to sleep and it feels as if I finally get "real" sleep. I can actually dream. My AHI events have ranged from 1.9 to 0.0. I do have congestion due to seasonal allergies which may affect my AHI. The only change I haven't tried is mouth tape or a chin strap. I'll try this to see if it improves my disrupted sleep patterns. Thx to all who contributed to this discussion. I'll update after I try this.

REPLY
Please sign in or register to post a reply.