stop the madness

Posted by jeaniebean @jeaniebean, Nov 22, 2020

I just stopped taking my AIs. I just cannot take it anymore. In 3 days I can walk again, I have clear brain thinking, my fingers dont ache, my bones dont ache, and I am not afraid anymore......

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@cctoo

I had dim here but I had side effect from that too. Also indole 3...I'm feeling really lost now cause I'm alone with this.... Really scared about making it with surgery again to remove nodes..and have tube to empty every 3hours. I will be 86 Thursday and no plans.. Be alone again....people never guess my age as I look younger for some reason and Drs see I'm mobile so they don't really know me. Sad. So sad

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I’m so sorry you’re alone. Maybe you can call the pastor’s office of a nearby church? They could direct you to some help? Or perhaps the hospital where you’re having/had surgery has a pastoral office? I wish I could be of more help/suggestions. When my mother was ill finding help was very difficult. No one ever called me back. 🙏

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New to Anastrozole (8 weeks in) and I am lucky to have no serious side effects. I take it at night which may help. Also my oncologist said Prozac sometimes helps. I was already on it.

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@fightcancer1000

I'm.not sure what to do at 63 since my cancer returned.
They say more chemo and then a double mastectomy as the cancer is now in both breasrs and the lymph nodes.
Had very adverse reactions to chemo in first instance so am concerned about doing chemo again.
Would appreciate any helpful advice.
Thank you

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Hi @fightcancer1000 it’s so hard to hear that news, that the cancer is back. Getting through it the first time is hard enough. It sounds like you had an especially hard time with chemo the first time around. It is likely that you will be getting a different chemo drug or mixture of drugs, so you may not have the same reaction or side effects this time around. Be sure to let your team know about your previous experience.

Fightcancer, you may wish to join other members in this discussion. Just click the link to join in.
- Breast Cancer Recurrence https://connect.mayoclinic.org/discussion/breast-cancer-recurrence/

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@jaynep

I’m so sorry you’re alone. Maybe you can call the pastor’s office of a nearby church? They could direct you to some help? Or perhaps the hospital where you’re having/had surgery has a pastoral office? I wish I could be of more help/suggestions. When my mother was ill finding help was very difficult. No one ever called me back. 🙏

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Thank you jay nep...I have a priest living two houses away so will call...my pastor. Today was to be lymph node dissection but was uneasy about it so saw surgeon yesterday and she changed date to September 29th...and agreed to lesser surgery. Relieved...

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@anjalima

Is there a visiting nurse organization or senior services organization in your community? Sometimes a local volunteer ambulance/EMT unit will address a daily need … especially as it will be for a limited time.

Your doctors office could possibly help you locate a service for the drain . There may be breast cancer support groups in your area. There are support groups online .

But reaching out into your community for connecting with people, generally, might be a good idea especially as cooler months arrive. Libraries often have general audience as well as senior dedicated programs.

Happy Birthday 🎈

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Thank you so much!!!

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@anjalima

Is there a visiting nurse organization or senior services organization in your community? Sometimes a local volunteer ambulance/EMT unit will address a daily need … especially as it will be for a limited time.

Your doctors office could possibly help you locate a service for the drain . There may be breast cancer support groups in your area. There are support groups online .

But reaching out into your community for connecting with people, generally, might be a good idea especially as cooler months arrive. Libraries often have general audience as well as senior dedicated programs.

Happy Birthday 🎈

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Thank you so much!!! Do you know anything about dissection? How bad? Or not? I am just so sorry I didn't do everything I was supposed to so this did not recur....but did what I could at the time.

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I can only comment on my own experience. At the time of my right breast mastectomy 2 sentinel nodes ( positive) and 5 ( negative) above it were removed. It caused numbing under the arm and a bit down the underside of my arm because nerves are severed. Over months a good bit of feeling has returned and is still returning. I did not experience lymphedema but I understand that can happen even years after dissections. There are lymphatic massages that trained physical therapists can perform and also ones that one can do oneself.

I did have two drains installed at the time of the surgery and one was there for two and the other three weeks. I always assumed it was for the mastectomy verses the dissection but perhaps it was for both.

Looking back will not serve your needs right now. We do the best we can with the information we have at any given time. Save your energy for the decisions that you need to make right now.
Blessings. 🌸

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@cctoo

Thank you jay nep...I have a priest living two houses away so will call...my pastor. Today was to be lymph node dissection but was uneasy about it so saw surgeon yesterday and she changed date to September 29th...and agreed to lesser surgery. Relieved...

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I’m glad you are feeling some relief. Prays for you to not feel so alone. 🙏

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@cctoo

Thank you so much!!! Do you know anything about dissection? How bad? Or not? I am just so sorry I didn't do everything I was supposed to so this did not recur....but did what I could at the time.

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I am recovering from bc recurrence (local) and axillary dissection...you ask about the dissection, well to be honest not an easy recovery...this is 7 weeks post op and still very numb underarm and still nerve pain, but is getting better so I am hopeful this continues. The drain was annoying that I had to manually work for 10 days, but once that was out things were better. I also didn't do 'everything' to avoid recurrence (did not even start the AI, but did radiation) but no guarantee that putting up with the AI would have avoided this, so may be your case as well that the bc would have still recurred. Wishing you well, somehow we get through these hard times and I like to think it makes us stronger and more empathetic towards others in this predicament.

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@cashemire

I am recovering from bc recurrence (local) and axillary dissection...you ask about the dissection, well to be honest not an easy recovery...this is 7 weeks post op and still very numb underarm and still nerve pain, but is getting better so I am hopeful this continues. The drain was annoying that I had to manually work for 10 days, but once that was out things were better. I also didn't do 'everything' to avoid recurrence (did not even start the AI, but did radiation) but no guarantee that putting up with the AI would have avoided this, so may be your case as well that the bc would have still recurred. Wishing you well, somehow we get through these hard times and I like to think it makes us stronger and more empathetic towards others in this predicament.

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Thank you Cashimire....surgeon told me she wouldn't touch nerves or muscles but work around them....doing limited dissection at my request as am 86 and afraid of lymphedema. Nurse said everyone gets it!!?..how long before you can resume normal life?? Is numbing painful?

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