Advice? Still having seizures and MRI is normal.

Posted by maureendigi @maureendigi, Sep 19, 2023

I need advice, My brother has been having seizures since we were a year old and our whole lives we have been told that it is just epilepsy he’s even been told that it is just anxiety. over the years he has had a bunch of different cocktails of medications, and neurologists he is currently seeing an epileptologist who has recommended that he goes to the mayo clinic because he has had seizures more frequent in the last few months and it has been impacting his quality of life and he is super frustrated and wants answers we went to the clinic and they did an MRI which came back completely normal and they want to do a PET scan in November has anyone found any other causes for seizures other than the brain or is there anything else we should be looking out for it would be appreciated

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Profile picture for belinda5000 @belinda5000

If your MRI is normal that only means you didn't have any seizure activity when you had the MRI

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Hi @belinda5000,
Just a small thought — did you perhaps mean an EEG rather than an MRI? An MRI gives us a picture of the brain's structure, while it's the EEG that captures electrical activity and can detect seizure patterns.
Chris

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Profile picture for Chris Gautier, Volunteer Mentor @santosha

@maureendigi
Hi Maureen!
Good to hear from you again!
I checked the prescribing information for both lamotrigine and Xcopri, and high blood pressure is not listed as a side effect for either. Has Lisa started any new medication recently?
I'm crossing my fingers that the VNS works well for her. Please keep us posted! 🤜💜
Chris

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@maureendigi
Hi Maureen!
How has your daughter been doing since her VNS implant? I'd love to hear how things are going!
Chris

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