Hi Ernie21 I have the same question and will be talking to my rheumatologist about it in September will let you know what rheumy says. Thanks for adding this to the chat
I had stem cell treatment 5 years ago. I found it to be marginal at best. The cost then was $9000.00. I had mine in Atlanta. Personally I found other approaches better & far cheaper
I see that other members such as @keetafox @pogo and @sharka also have interest. You all may click into the discussion and review what members have previously shared on the topic if you'd like.
Have you been recommended this for a therapy or just starting to research it a bit as an option?
I see that other members such as @keetafox @pogo and @sharka also have interest. You all may click into the discussion and review what members have previously shared on the topic if you'd like.
Have you been recommended this for a therapy or just starting to research it a bit as an option?
Hi @sharka, I would like to add my welcome along with @amandajro and other members. Research is a key with any neuropathy treatment. My own personal opinion is that while a lot of people talk about stem cell therapy for neuropathy, I have yet to hear of a legimate real life case where it has worked. Since you just started your research you might want to start here with a post earlier in this discussion by @colleenyoung here - https://connect.mayoclinic.org/comment/205641/
I posted this earlier in the discussion also and thought I would repeat it here as I don't believe much has changed as far as stem cell therapy to treat neuropathy -- We had a researcher speak at a meeting of the Minnesota Neuropathy Association on stem cell therapy research. I attached the notes I took at the meeting. The last section of the notes details why the science is not there yet. I believe it's a big hope for all of us but right now there are a lot of people making money off of us folks with neuropathy making dubious claims that it works…
Thank you John, we'll look into any new information!
Is there anything, you have try and helped?
Protocol 525 perhaps?
Seems a lot of supplements for one day!
I'm using some, not as many though, maybe that's why it's not helping as much
Thank you John, we'll look into any new information!
Is there anything, you have try and helped?
Protocol 525 perhaps?
Seems a lot of supplements for one day!
I'm using some, not as many though, maybe that's why it's not helping as much
Sigh, you are right about the number of pills in the Protocol 525. They are working on a liquid version that I was hoping would be out this year but haven’t seen it yet.
Sigh, you are right about the number of pills in the Protocol 525. They are working on a liquid version that I was hoping would be out this year but haven’t seen it yet.
Hi Sara, I've been taking the supplements since Sept 2016. I posted my neuropathy story in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/
You might find the list of frequently asked questions on the Protocol 525's website helpful -- https://theprotocol525.com/faq/
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Hi Ernie21 I have the same question and will be talking to my rheumatologist about it in September will let you know what rheumy says. Thanks for adding this to the chat
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4 ReactionsI had stem cell treatment 5 years ago. I found it to be marginal at best. The cost then was $9000.00. I had mine in Atlanta. Personally I found other approaches better & far cheaper
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2 ReactionsHi pogo! Can you please share the other better approaches?
Hello @ernie21 and welcome to Mayo Clinic Connect. I found an existing discussion on stem cell therapy for neuropathy so you will notice that I have moved your post here: https://connect.mayoclinic.org/discussion/stem-cell-therapy-for-neuropahy/
I see that other members such as @keetafox @pogo and @sharka also have interest. You all may click into the discussion and review what members have previously shared on the topic if you'd like.
Have you been recommended this for a therapy or just starting to research it a bit as an option?
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Helpful -
Hug
4 ReactionsHi Amanda, I just started a research, anything more natural than conventional drugs, as these can have devastating side effects
Hi @sharka, I would like to add my welcome along with @amandajro and other members. Research is a key with any neuropathy treatment. My own personal opinion is that while a lot of people talk about stem cell therapy for neuropathy, I have yet to hear of a legimate real life case where it has worked. Since you just started your research you might want to start here with a post earlier in this discussion by @colleenyoung here - https://connect.mayoclinic.org/comment/205641/
I posted this earlier in the discussion also and thought I would repeat it here as I don't believe much has changed as far as stem cell therapy to treat neuropathy -- We had a researcher speak at a meeting of the Minnesota Neuropathy Association on stem cell therapy research. I attached the notes I took at the meeting. The last section of the notes details why the science is not there yet. I believe it's a big hope for all of us but right now there are a lot of people making money off of us folks with neuropathy making dubious claims that it works…
-- August 04, 2018 Minnesota Neuropathy Association Meeting Notes:
https://cdn.prod-carehubs.net/n1/748e8fe697af5de8/uploads/2019/02/18Aug04-MNA-Mtg-Notes-1.pdf
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5 ReactionsThank you John, we'll look into any new information!
Is there anything, you have try and helped?
Protocol 525 perhaps?
Seems a lot of supplements for one day!
I'm using some, not as many though, maybe that's why it's not helping as much
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Like -
Helpful -
Hug
2 ReactionsSigh, you are right about the number of pills in the Protocol 525. They are working on a liquid version that I was hoping would be out this year but haven’t seen it yet.
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2 ReactionsAre you using them all? And for how long? Every day?
And where you getting them from?
Thankfully Sara
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1 ReactionHi Sara, I've been taking the supplements since Sept 2016. I posted my neuropathy story in another discussion here - Member Neuropathy Journey Stories: What's Yours?: https://connect.mayoclinic.org/comment/310341/
You might find the list of frequently asked questions on the Protocol 525's website helpful -- https://theprotocol525.com/faq/
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Like -
Helpful -
Hug
2 Reactions