Statin Intolerance: What did you do?

Posted by tim1028 @tim1028, Jun 4, 2019

I've developed statin intolerance over the 6 months I've been taking daily 40 mg atorvastatin. I'd like to hear from those of you who also have statin intolerance about what your next steps were. Did you lower the dose of the same statin? Switch to another statin? Stop statins altogether? Other approaches?

In my case, I developed muscle weakness, energy loss, shortness of breath and noticeable brain fog. I've stopped the statin until I am able to discuss the issue with my PCP. I started to feel better after the statin had washed out of my system. Risk factors that indicate that I should be on a statin are low HDL and a high coronary artery calcium score.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

My husband is on Repatha since a month and his LPA is dropping already now from 279 to 170…
(Side defect from Rovustatin possibly)
No need of statins anymore.
No side effects until now.

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@jeridenn

I have high LDL cholesterol and my doctor has prescribed several different statins for me, all of which I could not tolerate. The latest one he's prescribed is ezetimibe which I have yet to try.

I feel like a guinea pig with all these tests. The side effects are not anything I care to experience, either. https://my.clevelandclinic.org/health/drugs/20153-ezetimibe-tablets. They include skin rash, face, lips and throat swelling, joint pain, diarrhea, and possibly others not mentioned.

I'm trying to find a natural alternative. The high LDL cholesterol is the only negative in my labs. Everything else is normal. After losing 60 pounds over the course of a year, I had to go back on 1 50mg Losartan tablet daily for blood pressure. My BP is now very good - in the 116/74 range daily.

I exercise an hour daily walking and stationary bike and have a good diet eating mostly chicken, turkey, and fish and lots of fruits and vegetables. I cook from scratch, use avocado oil and ghee, and read labels. Even my husband does since I am gluten intolerant and have some food sensitivities. We don't buy products (condiments, etc.) with unhealthy additives or that are high in saturated fats. I'm reducing my salt intake even though it's normal (140 and the range is 135-245) which may help according to my doctor. My glucose is 83. My calcium is 8.9 (range is 8.7-10.4). So all labs are good except this high LDL. My father had blocked carotids due to triglyceride build-up, but he had a high fat diet, which I don't.

Any suggestions about natural alternatives to reduce high LDL are welcome.
Thanks!

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I have high VLDL and Lp(a) which seemingly cannot be affected by diet. It is genetic. I was unable to take statins due to muscle issues with every type. I was put on Praluent which worked like a charm in lowering overall cholesterol and especially LDL. No side effects. Then my insurance ceased covering Praluent and I was switched to Repatha. I have not had a blood test since I went on Repatha to be able to assess its effectiveness but I haven't had any side effects.

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There are many different statins to try. Please talk to your doctor about other options. I also could not tolerate Atorvastatin. After trying other statins which I could not tolerate also, I was put on Repatha, a bi-weekly injection. That has worked well for me with no side effects.

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@rochelle369

Dr. Dean Ornish and Dr. Esselstyn were the first ones to show you can halt or reverse heart disease and say no oils (which damage the endotheial lining.

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Sounds like a good way to do it. Even if it does lower cholesterol, it’s still a very healthy way to eat.

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@llynch17056

I agree, I’ve done theirs and I believe in it, but, it is hard

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It is hard, but works. i started a support group for those who follows theres.

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@rochelle369

Dr. Dean Ornish and Dr. Esselstyn were the first ones to show you can halt or reverse heart disease and say no oils (which damage the endotheial lining.

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I agree, I’ve done theirs and I believe in it, but, it is hard

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@daniel777

I could not tolerate any of the oral statins. Tried them all over a 20 year time span . Tried Repatha and no issues and cut cholesterol by 50% ! Great drug but can be expensive without insurance

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Same for me. I had no side effects on Repatha and it has dramatically reduced all the bad stuff and raised the good stuff. My doctor got me into a program for it at no cost to me. However, one of the “common” side effects is “raised blood sugar/diabetes.” I am very closely monitoring that because I’m not willing to trade high Chlorestrol for diabetes. If my blood sugar stays good, Repatha will be the way for me. I also have a healthy skepticism for the whole Chlorestrol/statin focus.

I do believe that if I can get back on a stringent heart health food diet it will be all I need. I exercise everyday and eat healthy, but not the fully restrictive heart health diet. It has helped in the past, but it’s hard to adhere to.

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@llynch17056

There is no one sabotaging me, but I live alone. I can control my environment. I no longer eat fast food or drink sodas or eat highly processed food, for many years. I use olive oil only and almost exclusively organic non-GMO foods, however; I have an overwhelming craving for carbs and sweet. I know from experience that if I quit them and go through about 10-14 days withdrawing that the cravings will be gone or, at least, manageable on the other side, but like all addictions, it’s so hard to start and go through the withdrawal and the minute I eat even a few, after years “clean,” I am back on them. It’s a struggle.

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Dr. Dean Ornish and Dr. Esselstyn were the first ones to show you can halt or reverse heart disease and say no oils (which damage the endotheial lining.

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@rochelle369

Did you have any support? That's important.

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There is no one sabotaging me, but I live alone. I can control my environment. I no longer eat fast food or drink sodas or eat highly processed food, for many years. I use olive oil only and almost exclusively organic non-GMO foods, however; I have an overwhelming craving for carbs and sweet. I know from experience that if I quit them and go through about 10-14 days withdrawing that the cravings will be gone or, at least, manageable on the other side, but like all addictions, it’s so hard to start and go through the withdrawal and the minute I eat even a few, after years “clean,” I am back on them. It’s a struggle.

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