Statin Intolerance: What did you do?

Posted by tim1028 @tim1028, Jun 4, 2019

I've developed statin intolerance over the 6 months I've been taking daily 40 mg atorvastatin. I'd like to hear from those of you who also have statin intolerance about what your next steps were. Did you lower the dose of the same statin? Switch to another statin? Stop statins altogether? Other approaches?

In my case, I developed muscle weakness, energy loss, shortness of breath and noticeable brain fog. I've stopped the statin until I am able to discuss the issue with my PCP. I started to feel better after the statin had washed out of my system. Risk factors that indicate that I should be on a statin are low HDL and a high coronary artery calcium score.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

I have tried all of the statins over the years. I also had intense pain and a loss of quality of life when I took them. The leg pain was so bad that I could hardly walk. After years of trying, my doctor told me my hdl is so good it balances out the bad ldl. So I just continue to eat healthy and exercise.

REPLY

I tried a few too but caused intense pain in my lower spine and tailbone. Joints and muscles like ceased up! It was like being a 90 year old at 50! Another Dr told me to go off it immediately and change my diet.

REPLY
@ddn

No I have not. But I will ask my doctor about it. Thank you for your support.

Jump to this post

They are discussed in this forum... search "injectable."

REPLY

No I have not. But I will ask my doctor about it. Thank you for your support.

REPLY
@ddn

I was taking Rosuvastatin but developed severe back pain. My physician ordered a creatinine kinase test to see if the statin is causing my pain. For now, I stopped taking it. But I have very high cholesterol due to genetics. I don't really have any answers, I just wanted you to know you are not alone. Waiting on blood results.

Jump to this post

There are several injectables with the same positive effects as statins - have you read of these?

REPLY

In recent weeks I have had frequent attacks of what I figure to be Reynaud's disease: freezing cold, and insensible white fingers. Although I have dealt with this annoyance in the past occasionally, the frequency has increased sharply. I thought it might be just another part of aging. I am 87, and in pretty good health - except for a blockage in a coronary artery for which my MD has just put me on Atorvastatin. Now I am wondering (thanks to letters I have just read here) if this is a reaction to the statin I am taking. I will check with my doc. And thanks to this support group.

REPLY
@ddn

I was taking Rosuvastatin but developed severe back pain. My physician ordered a creatinine kinase test to see if the statin is causing my pain. For now, I stopped taking it. But I have very high cholesterol due to genetics. I don't really have any answers, I just wanted you to know you are not alone. Waiting on blood results.

Jump to this post

There are plenty of natural resources out there that can help reduce cholesterol. Simple things like nuts can help reduce cholesterol. Cinnamon can help reduce cholesterol, it goes on and on. If you do some research, it will blow your mind how much medical discourse. My cholesterol is 20 lower than when I was on statins. I am not a doctor, or a herbologist.

REPLY

I was taking Rosuvastatin but developed severe back pain. My physician ordered a creatinine kinase test to see if the statin is causing my pain. For now, I stopped taking it. But I have very high cholesterol due to genetics. I don't really have any answers, I just wanted you to know you are not alone. Waiting on blood results.

REPLY
@degarden_girl

I have high VLDL and Lp(a) which seemingly cannot be affected by diet. It is genetic. I was unable to take statins due to muscle issues with every type. I was put on Praluent which worked like a charm in lowering overall cholesterol and especially LDL. No side effects. Then my insurance ceased covering Praluent and I was switched to Repatha. I have not had a blood test since I went on Repatha to be able to assess its effectiveness but I haven't had any side effects.

Jump to this post

Thank you for sharing this life saving information. God bless!

REPLY
@degarden_girl

I have high VLDL and Lp(a) which seemingly cannot be affected by diet. It is genetic. I was unable to take statins due to muscle issues with every type. I was put on Praluent which worked like a charm in lowering overall cholesterol and especially LDL. No side effects. Then my insurance ceased covering Praluent and I was switched to Repatha. I have not had a blood test since I went on Repatha to be able to assess its effectiveness but I haven't had any side effects.

Jump to this post

They had me on statins for eight years, my leg muscles got so bad I had trouble getting around. I researched statins and could not find one positive article. When I challenged the cardiologist he said, "Well, we can take you of them, you really don't have high cholesterol anyway. I've been off statins for 3 plus years and my cholesterol is 20 points lower than when I was on statins. Diet/supplements, do your homework.

REPLY
Please sign in or register to post a reply.