Starting on Prednisone - I am not sure

Posted by mayomur @mayomur, Thu, Jun 6 5:59pm

I have been advised to start on Prednisone. My chest x ray showed inflammation and subsequent Bronchoscopy ruled on any specific cause. I am concerned about starting on steroids like Prednisone. My oxygen test showed I do not need Oxygen help though the saturations levels dropped from 96/97 to 92/93 and stabilized there. Would like to get inputs anyone who used Prednisone to see if I am over-concerned about starting on it. Thanks

My husband has used a "tapered" dose of Prednisone several times. There are some side effects but it does help his breathing and he is always glad to get it. Why not try it? If you have any concerns, I'm sure that your health care providers will be glad to answer any questions.

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I've been on prednisone for better than two years, dropping form a high of 60 mg to now 7.5 mg. I required it a rare pneumonia, and asthma. The result has been good, but the downside has been a depressed immune system opening me up to bacteria of opportunity. As the tapering has continued my immune system has improved. RELY on the advice of you doctor in this case, and try to have a complete explanation of what to expect. The x ray is indicative of the need for the prednisone – that is what indicated m start, in addition to a blood test CRP, I believe.

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@spudmato

I've been on prednisone for better than two years, dropping form a high of 60 mg to now 7.5 mg. I required it a rare pneumonia, and asthma. The result has been good, but the downside has been a depressed immune system opening me up to bacteria of opportunity. As the tapering has continued my immune system has improved. RELY on the advice of you doctor in this case, and try to have a complete explanation of what to expect. The x ray is indicative of the need for the prednisone – that is what indicated m start, in addition to a blood test CRP, I believe.

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Thanks, Spudmato. This is very helpful

Liked by girlbybay

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@walisky

My husband has used a "tapered" dose of Prednisone several times. There are some side effects but it does help his breathing and he is always glad to get it. Why not try it? If you have any concerns, I'm sure that your health care providers will be glad to answer any questions.

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Thanks, Walisky. I am inclined to try it.

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I have just been prescribed prednisone for severe shortness of breath.

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Hi @suzylulu– I hope that this works for you. Have you been diagnosed yet with any particular disease?

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@suzylulu

I have just been prescribed prednisone for severe shortness of breath.

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There must be an underlying cause for the shortness of breath. The prednisone is to mitigate that issue. you should know the (lung) issue you are dealing with, and the total protocol that you are being given. You will be less concerned the more you know.

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@merpreb

Hi @suzylulu– I hope that this works for you. Have you been diagnosed yet with any particular disease?

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Merry, Interstitial lung disease and pulmonary hypertension.. I have extreme shortness of breath but did not need oxygen.

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@mayomur, I want to share my 'reverse' prednisone experience.
I took prednisone for 5 years after my liver and kidney transplant. When I was tapered off of it, I began to develop breathing difficulties that have been diagnosed and treated as EOB (exercise induced asthma). Upon looking backward in time, I was able to see that the difficulty that I had experienced with hiking and breathing have always been present to some degree, and I always attributed it to not training enough. It looks like the low dose prednisone had been masking my own EOB.
For me the breathing issues are seasonal and allergy related. I have no other breathing or lung issues. I hope that you are able to achieve some relief from the inflamation.

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@suzylulu

Merry, Interstitial lung disease and pulmonary hypertension.. I have extreme shortness of breath but did not need oxygen.

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@suzylulu– SOB is very very hard and scary to have. I've experienced it a lot with having lung cancer. I Do you use inhalers to help?

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@suzylulu

Merry, Interstitial lung disease and pulmonary hypertension.. I have extreme shortness of breath but did not need oxygen.

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I also have ild. My CT results just stated possible hypertension. I'm having a ekg in July. 🤞

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Today is actually Prednisone freedom day at our house. My husband has been taking it for dermatomyositis and accompanying ild since September of last year. Not our favorite drug, but it limited the damage until the autoimmune drug (Imuran) could stabilize him. He is doing well. I would take it, but talk to your PCP about your concerns.

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@fuzzybadger

Today is actually Prednisone freedom day at our house. My husband has been taking it for dermatomyositis and accompanying ild since September of last year. Not our favorite drug, but it limited the damage until the autoimmune drug (Imuran) could stabilize him. He is doing well. I would take it, but talk to your PCP about your concerns.

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@fuzzybadger, I want to drop in and check on your husband. How is he gettng along?
I was on prednisone for suspected autoimune liver disease quite a number of years abo. My doctor wanted to try Imuran but it caused bruising and some bleeding.

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Prednisone makes my heart palpitations start and have neck strains

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