Started Carbidopa/Levodopa Today

Posted by radioactivems @radioactivems, Apr 16 4:30pm

I'm excited. I'm praying for relief i don't have to work until the weekend, so I'm not going to be doing anything for a couple of days

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Profile picture for Teresa, Volunteer Mentor @hopeful33250

@kinglue
I recall when I was first diagnosed, it was difficult to accept. However, when medication and physical therapy and regular exercise were added to my treatment plan, I began to feel better.

Has your doctor referred you for physical therapy, yet?

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@hopeful33250

Does the meds do anything but help the tremors?

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Profile picture for kinglue @kinglue

@hopeful33250 I have had numerous issues/symptoms over the past few years but only recently did a doctor put it all together. I just started on the C/L and when I hit 2 pins 3 times a day did the headaches show up. I think it was starting to help. Doc just prescribed a new med. I have started that so we shall see.

It is hard mentally right now. Serious bouts of depression and anger. Just retired this year and now this. Life sucks right now.

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@kinglue …..I’m so sorry that this is happening to you, it’s not what any of us want to hear from a Doctor. I too have recently started the Levodopa/Carbidopa medication….about 7 months ago. My diagnosis came after having a DATScan. My symptoms are not many at this point, at 73 it’s hard for me to distinguish how I feel and whether it’s Parkinson’s or old age making me feel this way. I wanted to point you to a couple of beneficial resources to learn about this disease, and help you navigate your life going forward. One is the the American Parkinson’s Disease Association (https://www.apdaparkinson.org/handbook-download/); the other is the Davis Phinney Foundation for Parkinson’s ! You will find many YouTube videos from them. They also host Webinars, and Podcasts that help you understand what’s coming, what’s out there to help, etc. I encourage you to check them out! Hang in there my friend!

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Profile picture for kinglue @kinglue

@hopeful33250

Does the meds do anything but help the tremors?

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@kinglue
For some people, C/L does help with tremors. If C/L does not, several other meds help PD patients with tremors.

Here is an article from the Cleveland Clinic website, listing the different types of meds that can be used to treat PD symptoms:
https://my.clevelandclinic.org/health/treatments/parkinsons-disease-medications

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Profile picture for kinglue @kinglue

Not yet. Why physical therapy.

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@kinglue
Here is some information about physical therapy for PD from the Parkinson's Foundation website: https://www.parkinson.org/library/fact-sheets/physical-therapy

Here is another article from the American Parkinson's Disease Association about the value of physical therapy/exercise: https://www.apdaparkinson.org/living-with-parkinsons-disease/physical-therapy/

Here is a link to a video about LSVT exercise

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Profile picture for kayak461 @kayak461

@kinglue …..I’m so sorry that this is happening to you, it’s not what any of us want to hear from a Doctor. I too have recently started the Levodopa/Carbidopa medication….about 7 months ago. My diagnosis came after having a DATScan. My symptoms are not many at this point, at 73 it’s hard for me to distinguish how I feel and whether it’s Parkinson’s or old age making me feel this way. I wanted to point you to a couple of beneficial resources to learn about this disease, and help you navigate your life going forward. One is the the American Parkinson’s Disease Association (https://www.apdaparkinson.org/handbook-download/); the other is the Davis Phinney Foundation for Parkinson’s ! You will find many YouTube videos from them. They also host Webinars, and Podcasts that help you understand what’s coming, what’s out there to help, etc. I encourage you to check them out! Hang in there my friend!

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@kayak461

You have suggested some great resources to @kinglue!

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