Started Carbidopa/Levodopa Today

My husband was diagnosed 5 years ago. The best things for him in addition to his meds are regular exercise, Parkinson’s boxing (where in addition to the exercise he meets others dealing with the same issues), occasional PT with a Parkinsons specialist and a monthly massage. It’s a tough diagnosis but there is help out there. I wish you both well.

Hello Mimi,
My husband was misdiagnosed in 2013. They said he had essential tremors. No further testing was done. Go forward a few year's in 2018 he was diagnosed with Parkinsons. He has progressed alot in the last 2 year's. He is on Carbo-dopa Levadopa since then. He is using a walker. He has fallen so many times ..I can say he had two other conditions in the last 18 months. He has finally been able to get an appt. for a Neuro/Movement Disorder physician. He won't be seen until June though. I suggest that you might try Parkinsons Foundation on line and request the books that deals with different stages and find out if there is a chapter in your area. The YMCA also offers programs for Parkinsons. You can PM me if you like. 🫂

I just found this group. My husband has been having a lot of Parkinson's symptoms, though he has not been formally diagnosed with Parkinson's. He's had a lot of tests, and they have sent his records and blood samples to Mayo clinic. No one so far has decided what it is. However, he is on carbidopa/levodopa and he seems to do better when he's on it, so he is continuing. We have been waiting to get into a new neurologist for months now. His appointment was supposed to have been last week, but his neurologist decided to leave that practice, and they are trying to get him in with someone else. I decided to try and find out as much as possible about PD - since, even if that's not what he has, he shares a lot of the same problems with those who do. His mobility is getting worse and worse, and I'm really afraid of what is coming. He was given exercises to do every morning, but I suspect that he should be doing more. It sounds like a lot of you who have had diagnoses for quite awhile are doing better than he is. Anyhow, just wanted to say, "Hi."

Hi
I haven't been officially diagnosed yet, but I spent a couple of days at Mayo earlier this week getting tested. I started meds last week and they seem to be helping somewhat.

Hello @katrinafunst47 and welcome to the Parkinson's support group on Mayo Connect.

As this is your first post, I'm wondering if you are a Parkinson's patient. If so, how long ago were you diagnosed? Have you begun medication or other treatment yet?

Hello my spouse has been taking it for several years. It does help with his down times. He gets tired easily. I hope it works for you. 🫂

How did you tolerate the levodopa-carbodopa blend?

Thanks!

@radioactivems

Here is a listing from the WebMD website of all of the different medications that can be used to treat PD,
https://www.webmd.com/parkinsons-disease/drug-treatments
Always, remembering, that the combination of exercise, along with medication is important in delaying the disability that can come with PD.

good luck, it did not help me.