Started chemo for pancreatic cancer and already want to quit

Posted by tnt69 @tnt69, Oct 27, 2023

My sister started her 1st round of chemo on October 25th, had very bad side effects and does not want to continue it, I'm not sure I want her to suffer so much just to add a little extra time of being miserable most of the time, please help somebody.

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@brookie82

I also made the decision to forgo treatment. I had a wonderful year of travel, family get togethers, putting my affairs in order. All with the support of my family. It has now raised its ugly head. I’m on hospice now. But at 83 I am ready for what’s ahead. Family is everything.

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thank you for sharing god bless

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@hopeful33250

Please know, @tnt69, that you never need to apologize for, "I just realized that I am just going on and on." You are in a stressful situation, and we all have been there. Continue to post and let us encourage you as best we can.

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I appreciate your comment, sometimes I get so wrapped up in all this, I end up forgetting the original question I am answering, glad I have people like you that are so understanding to talk to! I would be so lost without this group as it has helped me understand things that I probably never would thank you

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@hopeful33250

Hello @brookie82,

I appreciate you sharing your experience with others. You have made some courageous decisions and seem to be at peace with those decisions. You and your family are fortunate to be able to face this together.

Was there anything in particular that helped you with your decision?

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her decision was pretty much based on how sick the chemo made her,even though the doctor was willing to cutback a little on the chemo she just didn't want to put herself through that every week,it seemed to be that it was trading a bunch of good days for extra bad days just to excist longer,she never really even wanted to do the treatment but we as a family kinda pushed her into it ( which we never should have) it wasn't until the 2 nd round of chemo and driving all the way to Minnesota,checking in for treatment,that she realized she didn't want this,that's when she stuck up for herself and finally said something,I'm glad she did,all of us were so worried about her being here longer that we didn't even think about what she would have to go through to make it happen,it was very selfish of us to talk her into something that she never wanted to do. I'm just glad she is having lots of good days now and not suffering like she would have. I know now that people with this awful disease should be heard and family should not think about what's best for them but rather what's best for the patient.

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@brookie82

I also made the decision to forgo treatment. I had a wonderful year of travel, family get togethers, putting my affairs in order. All with the support of my family. It has now raised its ugly head. I’m on hospice now. But at 83 I am ready for what’s ahead. Family is everything.

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how long ago did you make the decision not to do treatment? and at that time what stage were you?

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@tnt69

how long ago did you make the decision not to do treatment? and at that time what stage were you?

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It was early, Stage 1., found by accident. I talked to all the doctors, surgeons, oncologists, tests run. Remember I’m 82. I have other ongoing medical issues.

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@tnt69

I don't have any hospice information yet,hopefully she can do it from home, it's a touchy situation to bring up for me because I am still somewhat in disbelief that this is really happening to her, she was diagnosed in June and I still have trouble even thinking about any of this stuff knowing that we will lose her soon, which I will be devastated. my sister is such a wonderful, thoughtful,caring person,this world needs a few more of her,but instead we will lose her to this terrible,unfair disease. she did do just the 1 round of chemo and it stole all of her hair, the 1 thing she didn't want to happen. (she is a cosmetologist and has done hair for almost 40 years). on a positive note she is taking it better than any of us thought she would, and has actually came up with great ideas like somehow attaching hair from a wig to a cute hat that she likes and it looks amazing. I will miss her dearly, sorry I just realized that I am just going on and on. and yes any hospice information would be much appreciated. god bless and thank you for your feedback.

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@tnt69, denial is a part of this journey you, your sister, your family didn't choose to take. I think you might appreciate this article about how hope and denial can work together and how hope can be reframed.

- Hope and Denial https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Emotional+Health/Hope+and+Denial.aspx

Hospice care includes a team of people from doctors to nurses to social workers to chaplains that work with anyone in the family that can use comfort and care. I want you to know that you can call your local hospice and ask about services available for you, to help you accept and to learn what you can expect.

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@colleenyoung

@tnt69, denial is a part of this journey you, your sister, your family didn't choose to take. I think you might appreciate this article about how hope and denial can work together and how hope can be reframed.

- Hope and Denial https://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home/Topics/Topics/Emotional+Health/Hope+and+Denial.aspx

Hospice care includes a team of people from doctors to nurses to social workers to chaplains that work with anyone in the family that can use comfort and care. I want you to know that you can call your local hospice and ask about services available for you, to help you accept and to learn what you can expect.

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thank you for the advice, we really appreciate it god bless

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My husband has had 3 treatments ( same drugs). They kicked his ass. Lost weight, slept alot, alot of stomach pain. He’s had a 13 day reprieve from chemo and we start back Monday. He did IV fluid treatments between infusions and that seems to help. He did gain back 4 pounds during this time and we’ve had better days. Don’t give up. We’re staying positive despite the prognosis. It is very difficult to see someone you love going thru this. Just stay hopeful and positive. 🙏🙏🙏.

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@hbtb2356

My husband has had 3 treatments ( same drugs). They kicked his ass. Lost weight, slept alot, alot of stomach pain. He’s had a 13 day reprieve from chemo and we start back Monday. He did IV fluid treatments between infusions and that seems to help. He did gain back 4 pounds during this time and we’ve had better days. Don’t give up. We’re staying positive despite the prognosis. It is very difficult to see someone you love going thru this. Just stay hopeful and positive. 🙏🙏🙏.

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My husband suffered terribly until they added anti nausea drugs before infusion, low dose steroids with infusion and lower dose of the chemo drugs. 18 months later he is still doing very well - just one bad day and a couple tired days every two weeks.

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Thankyou for your reply. He is receiving the anti nausea and steroids. He hasn’t had to many issues with nausea just very very tired and can’t eat. We’ve been doing IV fluid infusions between treatments which has been helpful. Im very glad to hear your husband is doing well. That’s very encouraging 🙏🙏.

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