Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?
There is a lot of great info on this forum. I am 54 and was just diagnosed in January with metastatic Stage 4 PC. (Hip, L4, Sacrum, and a small liver lesion). My PSA has gone from 359 in January to .24 last week and I feel great! I am curious to know how many guys on this forum have been treated for more than 10 years and what your quality of life is like. It is stories like this that will give me (and others) more hope. Peace to you all!!!
Interested in more discussions like this? Go to the Prostate Cancer Support Group.
Totally agree. I'm not experimenting on myself. I'm following doctor's orders and staying educated about current treatment options.
So, am I correct that you do NOT have prostate cancer? But you have low T and are treating it with Androgel.
No, I do have low T and have been on Androgel since 2008 until I stopped it a couple of months before my 5 proton radiation treatment for unfavorable intermediate risk prostate cancer. I had 2 cores that were 4-3 and three that were 3-4 all from the area of the 7mm lesion out of the 30 core fusion guided transperinal biopsy. The rest of my 120 gm prostate was clean. My PSA was 2.9 and had been between 2.3 and 2.9 for 5 years and almost did Active surveillance rather than radiation. I had a PSMA Pet scan that showed that the cancer had not spread but I was unwilling to risk it escaping the prostate, so I went with the radiation. I am 74 so the studies show with me the androgen deprivation really made no difference. By stopping the Androgel my testosterone level dropped to 12 ng/dl without a Lupron shot. The boys got really lazy since 2008 and I will be very interested to see what my levels are when I get my first bloodwork back after 7/5/23 which will also give me my first post radiation PSA. I wonder if the boys have made any kind of comeback or are they still asleep. The only reason I stopped taking the androgel since testosterone at my age makes no difference in biochemical reoccurrance or overall survival is I was just hedging my bets.