Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Posted by ringmastr1 @ringmastr1, May 26, 2023

There is a lot of great info on this forum. I am 54 and was just diagnosed in January with metastatic Stage 4 PC. (Hip, L4, Sacrum, and a small liver lesion). My PSA has gone from 359 in January to .24 last week and I feel great! I am curious to know how many guys on this forum have been treated for more than 10 years and what your quality of life is like. It is stories like this that will give me (and others) more hope. Peace to you all!!!

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@robert570

I will be 62 this fall. and I was diagnosed at 52. I had a prosectomy followed with radiation. Then I had 6 rounds of chemo followed by Zytiga and prednisone for almost 4 years. After that stopped working they put me on Xtandi which didn't work too good, it sort of stabilized my PSA though it started rising after 3 months. Then came 13 rounds of Jevtana chemotherapy. Every 3 weeks from May of 22 until February of 23. PSA was stable but it slowly started to rise. I'm now on Pluvicto. I have just completed my 2nd round of 6 at 6 weeks apart. Too soon to tell if is working. During these years my PSA has been between .20 and never above 3.5 during all of these treatments. I'm on xgeva shots for my bone mets on my rib cage, middle spine and on the back of my neck. The 2 on my back were fractures which have healed nicely. Almost no pain. I get Lupron injections every six months. All I can say is that everyone is different. I have a good sense of humor and just go on like nothing has happened. Fatigue is the biggest hurdle and I can deal with that. They told me at the beginning that they were going to throw everything but the kitchen sink at me in the beginning and they weren't kidding. Hope this helps and good luck!

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If you don't mind my asking' what was your' PSA at time of diagnosis? Best wishes for continued future success.

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I was diagnosed around May 2013. Out of 12 plugs, 2 or 3 were Gleason 8 and I believe one or two 9's. I remember bc i argued that the majority of the pugs were 7 or 6 and that seem like it should prevail. They quickly explained I was wrong. I recently looked at paperwork from post op labs. I think they staged me a 3Ta(?) The only thing I noticed was a 3. The PCa did go to exterior of prostate, but nothing found in semi vesicles, nor lymph nodes. I fought hard to have the nerve sparing surgery, but Dr. Alan Partin was against it. My RP surgery was July 2013, so I'm coming up on 10 years. Late in 2021 I had a PSA come back at .2 after 8+ years at

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@ringmastr1

Where are you being treated? I'm going to Phelps Hospital in Tarrytown NY. I got a second opinion at Memorial Sloan Kettering in White Plains NY and that doctor agreed with the treatment my doctor is giving me. He was also cool and said I could book appointments with him anytime if I had questions even though he's not the one who's actively treating me.

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Hi, would you mind giving me the name of your doctor at MSK? Thanks

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@natem

I was diagnosed around May 2013. Out of 12 plugs, 2 or 3 were Gleason 8 and I believe one or two 9's. I remember bc i argued that the majority of the pugs were 7 or 6 and that seem like it should prevail. They quickly explained I was wrong. I recently looked at paperwork from post op labs. I think they staged me a 3Ta(?) The only thing I noticed was a 3. The PCa did go to exterior of prostate, but nothing found in semi vesicles, nor lymph nodes. I fought hard to have the nerve sparing surgery, but Dr. Alan Partin was against it. My RP surgery was July 2013, so I'm coming up on 10 years. Late in 2021 I had a PSA come back at .2 after 8+ years at

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What if ant ADT are you on I am on Zolodex Xtandi and Xgeva at 78 pC in L2 T11 T19 stage 4 but controlled for now

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@natem

I was diagnosed around May 2013. Out of 12 plugs, 2 or 3 were Gleason 8 and I believe one or two 9's. I remember bc i argued that the majority of the pugs were 7 or 6 and that seem like it should prevail. They quickly explained I was wrong. I recently looked at paperwork from post op labs. I think they staged me a 3Ta(?) The only thing I noticed was a 3. The PCa did go to exterior of prostate, but nothing found in semi vesicles, nor lymph nodes. I fought hard to have the nerve sparing surgery, but Dr. Alan Partin was against it. My RP surgery was July 2013, so I'm coming up on 10 years. Late in 2021 I had a PSA come back at .2 after 8+ years at

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Your story is very hopeful and encouraging. I have stage 4. Have been diagnosed since January 2021. No surgery. My cancer has spread to my breastbone, left clavicle, pubic bone and left hipbone. (I think that's it). It is not in any soft tissue per last scan. PSA is at .9. I have had a sister, my best friend die of cancer in the past year and my Mom (at 92 y.o) and my older brother have been diagnosed with cancer this year. Brother has prostate cancer and has finished radiation treatments. My Mom just had surgery on her colon cancer, recovering well, and is awaiting prognosis and treatment plan. Having a hard time keeping a positive attitude.

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Hang in there you are stronger than you think
Live large help your mother and brother
Cancer is a bummer but be hopeful 🙏🙏🙏🙏❤️

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@adohracapella

Hang in there you are stronger than you think
Live large help your mother and brother
Cancer is a bummer but be hopeful 🙏🙏🙏🙏❤️

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Thank you for the support and hugs.

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@nishok

Your story is very hopeful and encouraging. I have stage 4. Have been diagnosed since January 2021. No surgery. My cancer has spread to my breastbone, left clavicle, pubic bone and left hipbone. (I think that's it). It is not in any soft tissue per last scan. PSA is at .9. I have had a sister, my best friend die of cancer in the past year and my Mom (at 92 y.o) and my older brother have been diagnosed with cancer this year. Brother has prostate cancer and has finished radiation treatments. My Mom just had surgery on her colon cancer, recovering well, and is awaiting prognosis and treatment plan. Having a hard time keeping a positive attitude.

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78 and same L2 and T 10 T 11 Had 1 inch nuked out of L1 On Zolodex again and since Jan Xtandi and Xgeva Get on them
Tired sometimes but psa dropped from 9.8 to 1.0 Just back from Sandals Nassau

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@proftom2

Watchful waiting for ten years. Stage IV diagnosis year 11. After ten years of watchful waiting and 3 years of stage IV my mind shifted from how long will I live to how well will I live. I am a total quality of life guy now. Working at enjoying the minutes, hours, days, and so forth. Strangely enough, I am living the best version of myself.

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Even though I am new to this, finished my 5 session proton radiation at Mayo Phoenix 47 days ago my life philosophy has always been "none of us get off this rock alive and that every day on this side of the grass is a great day, some are just better than others". I am 74 so I don't think the PC is going to get me and it will probably be something else. LIVE WELL!

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