Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Posted by ringmastr1 @ringmastr1, May 26, 2023

There is a lot of great info on this forum. I am 54 and was just diagnosed in January with metastatic Stage 4 PC. (Hip, L4, Sacrum, and a small liver lesion). My PSA has gone from 359 in January to .24 last week and I feel great! I am curious to know how many guys on this forum have been treated for more than 10 years and what your quality of life is like. It is stories like this that will give me (and others) more hope. Peace to you all!!!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

@melcanada

In clinical trial 177is free else 25K a shot Did you pay?

I asked for Jevtana if I do chemo and oncologist said standard is Taxotera docetal

I want to over ride him if I must go this way for reasons you say

Does J work as good as D

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My wifes private isurance has payed everything which is 80% and the rest was picked up by either the corporation that sponsered the medicine or the financial assistance that the facility I'm treated at. I hit all the deductibles in January and the rest of the year everything is covered. I have been lucky and have not payed much out of pocket. They have a good team that works every angle to get me approved. Jevtana's website has a financial assitance program I believe.
https://www.jevtana.com/

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@robert570

I started out at stage 4 with a PSA of 10.56 October of 2013. I have received everything but the kitchen sink. Look for my other posts on here. It tells the journey I have been through the past 10 years. I never did a profile yet, and I guess I should.

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Gene, 75 yrs old. Prostate removed in 2002. Came back with a vengeance in 2008. Chemo, radiation, Lubron, nothing worked. Went to hospice care ,tried Xtandi and it worked until 2014 went back to Lubron and it worked again until 2022 . Tried Firmagon , it didn't work. Ran out of options . Pluvicto is my last hope. First treatment wasn"t bad , but this second treatment has been a real tough go. Completely immersed in pain. Loss of mobility, just a mess. Has anyone completed all 36 weeks?

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22 years stage 4 fully metastasized since 2008. Good appetite ,cheerful disposition, positive outlook on life.No activities. Caregiver assisted for most basic needs. Not complaining !

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@digger

Hi I’m getting my first pluvicto treatment tomorrow can you give me any advice or how the side effects were and how long you had to stay away from people 2-3/days thank you Dave

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The first shots only side effect was everything was GOOD, The second shot was a mess. But everyone is different so lets pray you have only good side effects

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I have posted this before but I am sharing it again here. I belong to a group of prostate cancer warriors who meet every Wednesday on zoom. There are usually 20 to 30 guys on the call who are dealing with various stages of prostate cancer. Please join us tonight at 7 PM EST, if you can. The group is very supportive and we share a lot of information. The moderator does a great job of explaining what the group is at the beginning of the session and then you can say as little or as much as you want when it is your turn to talk. You need to open Zoom on your PC, phone, or tablet, and then copy this link into your browser: https://us02web.zoom.us/j/82817487939
clicking on the link from this website does not seem to work which is why you need to copy the URL. I have found tremendous support and hope by participating in in this discussion. Please join us!

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@rkurtzjr

Why no radiation to the lymph nodes?

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Hi @rkurtzjr, do you have prostate cancer that has spread to the lymph nodes?

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@rkurtzjr

Why no radiation to the lymph nodes?

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It was closer to 20 lymph nodes scattered across a vast region and the oncologist and radiation oncologist were of the opinion that 5 was the max, so we discounted this option.

Now on ADT for 12 months and PSA less than 0.1, hoping it stays that way for another 12 months and then off ADT. If and when the PSA rises, will most certainly get to a PSMA PET and if the metastatic areas are not so widespread, I think radiation will be an option.

we shall see, for now just trying to sleep enough, these days I need 10 hours a night!

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@colleenyoung

Hi @rkurtzjr, do you have prostate cancer that has spread to the lymph nodes?

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Had one node positive at RP. Now BCR with scans scheduled at mayo

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@rkurtzjr

Had one node positive at RP. Now BCR with scans scheduled at mayo

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Welcome. Has radiation to the lymph area been suggested?

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Hi, I was given radiotherapy 10 years ago & had 9.5 great years but recently diagnosed with Stage 4 metastasis with 3 spots on my spine undetectable by bone scan but visible on CT. Being treated with Abiraterone only. I see some uplifting stories here & elsewhere but given only 2/3 years by oncology. I hear Chemotherapy along with Hormone therapy is administered in many clinics. Can anyone advise?

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