Stage 4 PC Longevity: Anyone have prostate cancer more than 10 years?

Im 78 How old are you now please

How long did Xtandi work and what was after it and again after that
My pc is in spine L1 L2 T 10 11
Where is yours/ Did it shrink? Did it stop?
Control only? Did it go to organs brain?

What should I expect

I joined the gym on May 1 and my goal is to work out 4-6 days a week. I will be retiring at the end of June and I will have plenty of time to make the gym part of my regular schedule. I have always been considered a very naturally strong guy, though I never went to the gym before. I am pushing myself with the heavier weights to try and maintain as much muscle mass as I can for as long as possible. I also do 30 minutes on the treadmill at this time. it is amazing how much PC changes your perspective on life and motivates you! my libido dropped off very quickly once I started on the hormone therapy. I used to be incredibly active. My wife is also very understanding about this and I try to schedule sex instead of wait for one of us to be in the mood. As you all know, I don’t think I would ever be in the mood due to the hormone therapy.

I really am trying to keep a very positive attitude about the whole situation. The first two months were mentally and emotionally rough and I do have occasions when I get extremely sad. I am trying to tell myself that I still have 30 years to live. I am retiring from my job next month at the age of 55 as I had planned to do all along. I am really going to take the opportunity to enjoy the more important things in life.

I've been Stage 4, prostate
cancer and metastatic bone cancer for 10 years this fall. I'm on pluvicto now. They've had me on everything. One thing I've avoided was anyone telling me how much time do you have left. I don't want to know and will never ask. All I know is I will die with it and not from it. Humor and life goes on. I eat what I want and go where I please. Attitude has a lot to do with it. The future is mine!

I was diagnosed with stage 4 bone metastatic prostate cancer over 21 years ago. I started Lupron soon thereafter. I had hot flashes for about 5 years and then they began to dissipate. I completely lost my sex drive almost 1 year after diagnosis. My wife has been the one to suffer this loss. Hormone deprivation therapy makes you stop thinking about sex, and any attempt to engage is met with disinterest. Thankfully, my wife has stayed with me. There is far more to a relationship than sex.
My PSA is about.04 and holding. I have lost a great deal of muscle mass because I have over done a handful of exhausting projects over the years. But I continue to exercise; although, at low resistance levels. I believe that exercise is keeping me alive. Life is good and I’m not close to checking out!

54 is young for joining the club, so I'm thinking positive thoughts for your long-term good health. An important part of your self-education journey (which needs to occur continuously) is to make sure that any information about life expectancy is always reviewed in context to the age (median, average), the definition of metastatic spread, and the overall health of the participants. Rarely do I find all that information available.

I'm 52 and had my prostate removed at 42, and things were fine until last summer when my PSA skyrocketed and now I'm on Eligard/Zytiga for the past six months and my PSA is at undetectable levels. My metastatic spread is limited to 10+ lymph nodes in my iliac region, and while that isn't something that brings joy, it is very different then having it spread into the bones or organs. I also have a small lesion on my liver but the PSMAPET showed no uptake, so we discounted it. My oncologist doesn't give any guidance beyond 10 years but he puts me in the category of 10+ years.

Do you research and you will be informed, confident, and able to live a positive long life.

My case similar 47 years old, diagnosed June 2022 with varios metastasis, done decetaxel + nubeqa + eligard and I will start xgeva for the bones soon

So far feeling great, very much active at @100% except for sexual desire that is to the floor…. Other than that in super good shape

I’m also curious who’s been more years into this journey

Thanks for your feedback! Hope you enjoy the holiday weekend.

2018 rad 40 days then Zolodex
2020 stage 4 put back on Zolodex after L2 radiated 1,5 inc cancer out
Jan 2023 L1 and T 10 T 11 so put on Xtandi or Enzalutamide and PSA dropped from 9.8 to 1,7 in a month added Xgeva for bones 1200mg Calcium daily
Prayer helps I feel great back issues don't allow for long walks without sitting L1 would noot be radiateed as to close to L2 with 1.5 inc cancer
78 and they say this should give me 5 years even if Xtandi stops working there are other remedies to control never cure Just like diabetic control it