Stage 3 chronic kidney disease (CKD): What specialists do I see?

Posted by rozalia @rozalia, Aug 24, 2016

My primary says I do not need to see a kidney specialist. Is this true. My blood chems are ok.

Interested in more discussions like this? Go to the Kidney & Bladder Support Group.

@gingerw

@jessetee It is not our policy to offer medical advice here on Mayo Clinic Connect. What I have is printouts from all my labtests, and I created a spreadsheet showing the results. This way I can see the trends that may happen. When doing labtests, I generally use the same clinic, so the same machines, etc. Your results may vary if you are dehydrated, or the time of day, etc.

If you are not seeing a nephrologist , I would recommend it. They are a specialty that oversees kidneys and kidney disease. Many times a general doctor, or nurse practitioner, does not have that "extra" training to be well-versed in kidney disorders. Both my oncologist and nephrologist keep close tabs on my kidney function, with labs every month due to chemotherapy and low eGFR.
Ginger

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Thanks for you reply i am under the care of a specialist haven’t seen Hilo since last lab reports, wont see him. For another week as he is out of town got my lab work done in his absent and is very concerned about having a GFR of 27 does that mean i have Togo on dialysis?

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@jessetee

Thanks for you reply i am under the care of a specialist haven’t seen Hilo since last lab reports, wont see him. For another week as he is out of town got my lab work done in his absent and is very concerned about having a GFR of 27 does that mean i have Togo on dialysis?

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@jessetee No, an eGFR of 27 is a long way from dialysis. Typically, around 10% a medical team will start considering getting you ready for dialysis.

Here are two Mayo Clinic articles about dialysis that are good reads:
https://www.mayoclinic.org/tests-procedures/hemodialysis/about/pac-20384824
https://www.mayoclinic.org/tests-procedures/peritoneal-dialysis/about/pac-20384725
After you have read these, let me know if you have any questions?
Ginger

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@gingerw

@jessetee No, an eGFR of 27 is a long way from dialysis. Typically, around 10% a medical team will start considering getting you ready for dialysis.

Here are two Mayo Clinic articles about dialysis that are good reads:
https://www.mayoclinic.org/tests-procedures/hemodialysis/about/pac-20384824
https://www.mayoclinic.org/tests-procedures/peritoneal-dialysis/about/pac-20384725
After you have read these, let me know if you have any questions?
Ginger

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thanks sooo much

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@codered032

Hello Ginger,I was dx with minimal change disease. My last eGFR was 54. It has been gradually decreasing I asked my dr to explain this. He told me not to pay any attention to the lab value because my eGFR will fluctuate. That was in March and no other labs have been ordered since that date. Should I be concerned

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I have been diagnosed with NS MCD and I pay close attention to my GFR despite my renal disease mainly involving protein loss. My GFR was low on initial diagnosis, but I was very sick. Since then, fortunately, it has “fluctuated,” but not been below 70. I would definitely suggest you be under the care of a nephrologist who follows your condition closely and expects your concerns. Did you have a renal biopsy for your MCD diagnosis?

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@rkndvm

I have been diagnosed with NS MCD and I pay close attention to my GFR despite my renal disease mainly involving protein loss. My GFR was low on initial diagnosis, but I was very sick. Since then, fortunately, it has “fluctuated,” but not been below 70. I would definitely suggest you be under the care of a nephrologist who follows your condition closely and expects your concerns. Did you have a renal biopsy for your MCD diagnosis?

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Yes, I was diagnosed following a routine annual physical. All labs were good except high proteinuria. Treated with Prednisone for several months and was in remission briefly. I am now taking Tacrolimus 6mg daily. Do you know if remission is possible? I don’t like the side effects of the medication.

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@codered032

Yes, I was diagnosed following a routine annual physical. All labs were good except high proteinuria. Treated with Prednisone for several months and was in remission briefly. I am now taking Tacrolimus 6mg daily. Do you know if remission is possible? I don’t like the side effects of the medication.

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@codered032, I'm popping in here because i see that you are taking Tacrolimus and you don't like the side effects if this medication. I also take Tacrolimus as part of my post transplant (liver and kidney) transplant.
How long have you been taking Tacrolimus? What side effects are you experiencing?

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Hi I’m jenny52 I’m new to the group, I’m stage 3 (CKD) at this time I’m not on no medication is that a good thing. But what I want to know what kind of food should I be eating and staying away from .Thank You for your time

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@rosemarya

@codered032, I'm popping in here because i see that you are taking Tacrolimus and you don't like the side effects if this medication. I also take Tacrolimus as part of my post transplant (liver and kidney) transplant.
How long have you been taking Tacrolimus? What side effects are you experiencing?

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Hi I would like to know what kind of foods is best for me I’m stage 3 (CKD)

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@jenny52

Hi I would like to know what kind of foods is best for me I’m stage 3 (CKD)

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@jenny52, Welcome to Mayo Connect, I am happy that you have joined this online community where patients share with each other. You have come to the right place to meet and learn with others. I like to think of us sitting around the kitchen table and chatting over a cup of coffee. We share our experiences and we offer support to each thru a wide variety of health issues. I am a liver and kidney transplant recipient. My experience with kidney diet is limited to a brief pre-transplant period.

Your doctor might recommend a special diet to help support your kidneys and limit the work they must do. The basic dietary recommendations are: Avoid products with added salt. Choose lower potassium foods. Limit the amount of protein you eat.
If your doctor has not already done so, you can ask him/her to recommend a dietician to help you develop nutritional plan that you can understand and be comfortable with.

I would like to share this link to Mayo Clinic Patient Care and Health Information. There is section in the Diagnosis and Treatment Tab labeled - Lifestyle and home remedies section that gives more detail about foods.
https://www.mayoclinic.org/diseases-conditions/chronic-kidney-disease/symptoms-causes/syc-20354521

Has your doctor given you any specific instructions?

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@jenny52

Hi I’m jenny52 I’m new to the group, I’m stage 3 (CKD) at this time I’m not on no medication is that a good thing. But what I want to know what kind of food should I be eating and staying away from .Thank You for your time

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@jenny52 Welcome to Mayo Clinic Connect. We are a diverse group of people, sharing our experiences and journeys with others. We're glad you found us!

You may have seen we have a lot of different groups, and in those groups are many discussion threads. Here is one that talks about diet and Stage 3 CKD: https://connect.mayoclinic.org/discussion/3rd-stage-kidney-disease/ Jump in to any part of it!

At any stage, your medical team may decide to place you on medications. A lot of that may have to do with the reason for your kidney disease, be it a genetic cause, lifestyle, medication side effects, diabetes or high blood pressure. It will be very useful for you to know the reason for your CKD. Have you found that out, yet?
Ginger

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