I have Stage 1A grade 1 endometrial cancer

Posted by jessy0628 @jessy0628, May 8, 2023

Hi all, i am 46yo, 3yrs menopaused diagnosed with endometrial cancer a day before my birthday on January. Its my 5days post op today had my total hysterectomy. When i woke up this morning i saw the email from my hospital that i have a pathology report at my chart, i Prayed hard before opening and found negative tumor cells to all except from my uterus with 2cm thickness. The stage says Stage 1A grade1. I hope this is a good sign that no more further treatments needed. I will be seeing my gyne onco next week for my follow up check up.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

@jessy0628

Hello all, so my 6th week post op appointment with my onco just done last week and since i cant have any hormone pill as i am estrogen receptor positive, he gave me paxil to treat menopausal symptoms as i am having hor flashes esp at night time. I havent taken this drug as i am concerned about the side effects. Has anyone in the group been prescribed with the same pill? Right now i am taking my calcium to prevent osteoporosis and CoQ10 for heart health. He further advised if i want to try the black cohost instead of taking the paxil. Any thoughts on this? Thanks again

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Hello Jessy. You were prescribed Paxil for menopausal symptoms?
I was given that to help me sleep as my sleeping got really bad after my hysterectomy early on February.
The NP told me that this pill is used for depression too 😞
It didn’t do too good on me. I would get dizzy and I went back to taking melatonin.
I have also been recommended taking cohost because I get night sweats. But I heard it’s a few pills per day in order to work.
I have to tell you that you encourage me to take calcium. I will start today. Thank you 🤗
I will keep you in my prayers. Keep in touch if you don't mind. We were diagnosed the same month this year with the same stage cancer. Take care

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Can I ask either of you ladies, did you have tumors within your uterus?

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@amt1105

Can I ask either of you ladies, did you have tumors within your uterus?

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@amt1105 It’s my understanding that oncologists and pathologists refer to a solid collection of cells that grow abnormally as a « tumor ». So, the answer to that is yes for me. I had a tumor within my uterus referring to the endometrial lining that was adenocarcinoma.

Here is a good definition that I believe answers your question:

Tumor: What it is:

https://my.clevelandclinic.org/health/diseases/21881-tumor

Are you asking because you are worried that you may have a tumor?

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@naturegirl5

@amt1105 It’s my understanding that oncologists and pathologists refer to a solid collection of cells that grow abnormally as a « tumor ». So, the answer to that is yes for me. I had a tumor within my uterus referring to the endometrial lining that was adenocarcinoma.

Here is a good definition that I believe answers your question:

Tumor: What it is:

https://my.clevelandclinic.org/health/diseases/21881-tumor

Are you asking because you are worried that you may have a tumor?

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Thank you Naturegirl5 I have been so desperate for some answers. Can I ask, was your “tumor” visible on your scans? Did they list a visible mass within your uterus? Thank you for answering me I greatly appreciate it.

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I had a TVUS done and they said no tumors present, they didn’t see any growths or masses just my fibroids and my myometrium also was listed as normal and my cervix biopsy came back negative. But I’m reading all this negative stuff online about these atypical complex hyperplasia and I’m scared to death.

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Endometrial adenocarcinoma, total Hysterectomy next week grade 2.

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This is my first comment, here goes. I too had a total hysterectomy because of cancer in the endometrial lining & it was Stage 1A. I read that 90 - 95% of women are "good to go" after that you are monitored for 5 years. I was told I was "all clear". Unfortunately, I was in the 5% and had a recurrence in my pelvis appearing as 2 tumors. I could feel them 6 months after the surgery. Six chemo treatments later and they were both gone - again. And ... 6 months later ... you guessed it, a tumor returned in the same spot as one of the original ones. So I'm now in my 2nd clinical trial & it's shrinking. I hope this info helps someone. I feel good, except for a rare pneumonia I can't seem to kick since mid-July. I have a blood clot near the chemo port too, but no symptoms there. Staying positive and walking daily - it helps so very much!

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@amt1105

Thank you Naturegirl5 I have been so desperate for some answers. Can I ask, was your “tumor” visible on your scans? Did they list a visible mass within your uterus? Thank you for answering me I greatly appreciate it.

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@amt1105 I apologize for the delay in answering your question. Somehow I missed it.

My « tumor » was visible as thickened endometrial lining on the ultrasound. I’d need to get my records out to see what the thickness was however the radiologist who read the scan noted that the thickened endometrium was « suspicious for cancer ». That comment did not alarm me at the time because I knew that this is how radiologists make sure their remarks and diagnoses cover all the bases.

Does this answer your question?

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@janiebres

Endometrial adenocarcinoma, total Hysterectomy next week grade 2.

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@janiebres Welcome to Mayo Clinic Connect. We provide support to one another and I hope that you will continue to return and allow us to support you.

I’ve been where you are right now. My initial diagnosis was endometrial adenocarcinoma, Grade 1 going into the hysterectomy. I was very frightened and anxious however once there was a plan in place (the surgery) I decided to give my worries over to the my cancer team. After the hysterectomy I found out that the initial diagnosis did not change and that I was Stage 1a.

How are you feeling today? What is the date of your surgery?

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@crowleykid

This is my first comment, here goes. I too had a total hysterectomy because of cancer in the endometrial lining & it was Stage 1A. I read that 90 - 95% of women are "good to go" after that you are monitored for 5 years. I was told I was "all clear". Unfortunately, I was in the 5% and had a recurrence in my pelvis appearing as 2 tumors. I could feel them 6 months after the surgery. Six chemo treatments later and they were both gone - again. And ... 6 months later ... you guessed it, a tumor returned in the same spot as one of the original ones. So I'm now in my 2nd clinical trial & it's shrinking. I hope this info helps someone. I feel good, except for a rare pneumonia I can't seem to kick since mid-July. I have a blood clot near the chemo port too, but no symptoms there. Staying positive and walking daily - it helps so very much!

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@crowleykid My I ask what kind of endometrial cancer you were diagnosed with?

My initial diagnosis after hysterectomy was endometrial adenocarcinoma Stage 1A. My surgeon gave me a Survivor Plan that provided all of my paperwork, including the pathology, and follow-up schedule. It indicated about a 5% chance of recurrence. Well, like you, I was in the 5% and within two years I had a recurrence of the same kind of cancer. I had radiation therapy and so far I’ve had no evidence of disease. My next follow-up is in January.

After 2 years since the recurrence I don’t dwell on the cancer as much. I exercise like you, and I have hope.

I’m glad to know that the most recent tumor is shrinking and that you feel good. Walking daily when you have pneumonia tells me that you indeed are staying positive.

How many more treatments will you have in your most recent clinical trial?

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