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I have Stage 1A grade 1 endometrial cancer
Gynecologic Cancers | Last Active: Nov 25, 2023 | Replies (26)Comment receiving replies
@crowleykid My I ask what kind of endometrial cancer you were diagnosed with?
My initial diagnosis after hysterectomy was endometrial adenocarcinoma Stage 1A. My surgeon gave me a Survivor Plan that provided all of my paperwork, including the pathology, and follow-up schedule. It indicated about a 5% chance of recurrence. Well, like you, I was in the 5% and within two years I had a recurrence of the same kind of cancer. I had radiation therapy and so far I’ve had no evidence of disease. My next follow-up is in January.
After 2 years since the recurrence I don’t dwell on the cancer as much. I exercise like you, and I have hope.
I’m glad to know that the most recent tumor is shrinking and that you feel good. Walking daily when you have pneumonia tells me that you indeed are staying positive.
How many more treatments will you have in your most recent clinical trial?
Replies to "@crowleykid My I ask what kind of endometrial cancer you were diagnosed with? My initial diagnosis..."
You wrote: "May I ask what kind of endometrial cancer you were diagnosed with?"
I'm sorry, but my answer is: I don't know, unless you mean at the cellular (MMR) level? There are 2 types and pMMR as in "proficient" is what I had and that's not good.
Your other question related to how many treatments or how long and the answer is: I'll be on the 2 drugs as long as they continue to shrink or maintain the tumor and prevent new ones.
Abemaciclib (Verzenio) and Letrozole are the drugs. They were tested at Dana Farber, Boston in 2022 with good results.
I hope this helps and I'm wishing you the very best!
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@naturegirl53 Wow, we have identical diagnoses: The cancer was in the Endometrial lining of the uterus and it was adenocarcinoma Stage 1A. I'm very sorry to hear you were in the 5% as well. The first recurrence for me was 6 months after surgery. The 2nd recurrence (current state) was 6 months from "CR - complete response".
There is not a fixed # of treatments, my oncologist said: stay on it as long as it works which could be for life. She has other patients who have been on that drug combo for years.
But ... they also said: we don't want to remove your chemo port, just in case you need a new treatment that appears.
Thank you for your message. I wish you all the very best. I don't think about the cancer nearly as much as I did at first. Right now it's the pneumonia and blood clot on my mind, but worrying gets me nowhere.
Just a side note: the initial "stage" is no longer used because of the recurrence. In reading the Clinical Trials, I am grouped with Stage 3 or 4, so Stage 1A sounded good before the recurrence.
I hope this helps, Lizzz