Spouse behavior. Husband has inoperable grade 4 glioblastoma

Posted by brosen @brosen, Aug 10 7:31am

Our 50 year-old son who lives eight hours from us has been diagnosed with grade 4 inoperable glioblastoma. He's starting his third week of chemo/radiation. His wife decided to go camping along with their 13-year-old son to "getaway". She will return for two days and then go take what was a plan of vacation for all of them without him. Fortunately our daughter is with him now and we will go be with him next week. Admittedly his wife has had a difficult time having lost a brother to suicide and both parents within the last two years. We know she is grieving and struggling on her own but somehow I can't get my head around the fact that she is choosing to work 20 hour days, some of it needed to make ends meet, but rather than getting a day away every now and then she's choosing to leave him completely alone. Including not being with him for his upcoming oncology appointment. I'm struggling to find the balance. I understand she is still grieving from losing her father less than a year ago, but somehow I cannot understand how she would take him and her son and just leave him with a sibling. Can someone help me make sense of this?

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Profile picture for judyandchloe @judyandchloe

I have the opposite situation-but it’s thanks to God my sibling has no issues yet. I think he is concerned the rest of us will overdo the sympathy as he continues to live an independent life. I made sure in months leading up to his diagnosis that he knew I would do anything he wanted me to do to help whenever the time came. To live with me, to have me come to wherever he was feeling safe, do research, etc etc. I will do exactly that just like I did for our mom years before she passed. He was part of her care and he knows I move heaven and earth for my loved ones. I want the most time and quality of life for him-even if he just needs company and/or knows I love him from afar.
I cannot understand the wife excluding her husband from the vacation. A 20 hour day is hard-I did that for twenty plus years myself…but any missed opportunity to just be with him she will regret some day.

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@judyandchloe thank you so much for sharing. All these comments are so helpful.

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Profile picture for kjsthljc1 @kjsthljc1

I am SO very sorry that your daughter in law is choosing to behave in this way. I am not a therapist so cannot say whether this is her way of grieving or if it is just selfishness. I will say that my husband was diagnosed with a grade 4 glioblastoma exactly 5 days after I had a full shoulder replacement. He was non verbal for over 2 weeks then the 3rd week was able to have surgery. We were hopeful that the 12-15 months told us by the surgeon would happen but he died 45 days after initial diagnosis. He never got to do radiation/chemo. However, having been married young and spending 57 years together, I did everything to be with him. Being unable to drive since it was my primary shoulder, I ask friends, neighbors, anyone who could, to take me to twice weekly physical therapy appointments and back and forth to Duke daily which was a 40 minute drive from my daughters where I was staying since I was unable to even shower alone. I spent every minute I could by his side until he passed in hospice. It has now been 3 months the 12th of this month and I am still grieving terribly over the loss. There are so many questions unanswered since he was not able to speak until just days before the surgery then after the surgery he was not the same and just a few weeks later when he had a stroke, he never spoke again. I speak to him daily, apologize for not knowing what he was feeling since we couldn't communicate and wondering why this all happened to him. I am at home again now, all by myself and the emptiness is almost more than I can bare. I miss him terribly but realize I have to get used to this new life without him. Again, not a therapist but if this is the way she is choosing to grieve, I would have to wonder if her feelings for him were ever that strong. Also, if he is aware, which I assume he is, he must know this himself. I am confident he needs the support of his wife more than anyone else. While I know this likely is not the "right" thing to do, when the time comes that he is called to leave, I might have to let her be on her own rather than being there for her. I do believe there will be a time when she will regret this and realize the huge mistake she made.

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@kjsthljc1 Much sympathy and virtual hugs to you. Losing a spouse, a daily companion with whom we share out life, is devastating.

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So sorry that your daughter-in-law is behaving so bizarrely. Granted she has been through a lot, but her partner needs her NOW. It seems she wants to do everything to completely escape from her sad realities of life. There really isn't anything you can do. She could really benefit from grief therapy or just talking to someone about life and loss. She has to be the one to seek it out, but it almost seems in the interim, she is almost neglecting your son given his serious condition. I hope there is some resolve shortly.

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Profile picture for medtech4 @medtech4

So sorry that your daughter-in-law is behaving so bizarrely. Granted she has been through a lot, but her partner needs her NOW. It seems she wants to do everything to completely escape from her sad realities of life. There really isn't anything you can do. She could really benefit from grief therapy or just talking to someone about life and loss. She has to be the one to seek it out, but it almost seems in the interim, she is almost neglecting your son given his serious condition. I hope there is some resolve shortly.

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@medtech4 us too, thank you.

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Thanks so much for your kindness

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Profile picture for judyandchloe @judyandchloe

I have the opposite situation-but it’s thanks to God my sibling has no issues yet. I think he is concerned the rest of us will overdo the sympathy as he continues to live an independent life. I made sure in months leading up to his diagnosis that he knew I would do anything he wanted me to do to help whenever the time came. To live with me, to have me come to wherever he was feeling safe, do research, etc etc. I will do exactly that just like I did for our mom years before she passed. He was part of her care and he knows I move heaven and earth for my loved ones. I want the most time and quality of life for him-even if he just needs company and/or knows I love him from afar.
I cannot understand the wife excluding her husband from the vacation. A 20 hour day is hard-I did that for twenty plus years myself…but any missed opportunity to just be with him she will regret some day.

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@judyandchloe agree. You’re spot on.

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Profile picture for ruthannray @ruthannray

@brosen if their marriage is shaky it’s not going to improve with this terrible diagnosis. It’s fantastic that your son’s sisters and parents (you) are rallying around him during this terrible time. He needs you and it sounds like his wife is either unwilling or unable to care for him as we hope a wife would care for her husband. Don’t focus on what he does not have, but what he does have. Reach out to your grandson to offer love and support also. He’s caught in the middle and likely to experience the terrible loss of his father in the next year or two.

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@ruthannray Just when i thought it couldnt get worse. his birthday is on September 15. We're flying his older brother in from Fairbanks Alaska and our family will get together for a nice quiet dinner at a restaurant. This, of course, assuming our son with cancer is up to it. For some reason his wife has decided to keep the dog in the house despite our son being so irritated with it that he gets violent. Her solution: Keep the dog. Today my daughter drove him for his final radiation treatment. She asked him if the dog bothered him and he replied it does, but he doesn't want to say anything. Almost as if he's giving up hope. I offered to pay for a kennel or anything else that might provide a temporary remedy. She said the dog is not a problem and then when we come to visit next week she, the dog, and their son will go stay with her brother. She's installing Cameras in a home so that when he is by himself at night he can be monitored. We have rented a place with an extra bedroom so for at least the week that we are there he can stay with us. We may even try and convince him to come live with us, About eight hours away, At least he will have someone to care for him and care about him. In a previous post somewhat had mentioned that if their marriage was rocky this won't make it any better. They were correct. I told my wife tonight that we will do all weekend, we are not our son's savior. We can only trust God and Continuously and trust our son to to his care. My wife and I are actually beside ourselves. Thank you for allowing me to rant a little bit. Have any of you ever experienced anything like this?

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You have a good plan for the upcoming visit. The possibility of your son going to live with you, even though it’s 8 hours away, should be discussed with your son. I’m terribly uncomfortable with the possibility of your son being alone at night with only a camera monitor. Things happen in the night with someone who has Glioblastoma. It’s unpredictable.

Your daughter in law is unwilling or unable to step up. No matter the reason, your son’s care and safety is the issue. Use this visit to explore what options might suit your son. It sounds like he is still cognitively intact, which is wonderful. Chemo and brain radiation can induce brain fog, or worse. So glad that’s not an issue.

Do your best to be positive (or at least neutral) and offer options for your son’s continued care.

May there be a wonderful, lasting response to the treatments for him!

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Thanks. The brain fog Is a concern And that we're never sure how foggy he will be from day today. Some days he is lucid, alert, and conversational, while other times anything but that. Early On his wife had him sign power of attorney and we know that legally, we cannot take him out of the house unless he consents or she does. I've even checked to see if we could take the dog out of the house but in their state, It is against the law. We'll see how the week goes while we're there. His wife is A Jekyll and Hyde.

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I am sure all who read your texts are outraged at her cruelty and complete lack of empathy.

Him leaving that house may be the only chance he has to flourish and have a quality of life absent now. You are wonderful parents!

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