Soft tissue rheumatism syndrome?

Posted by momof2gems @momof2gems, Dec 21, 2018

First of all I wasn’t sure where to put this story, since I am not sure in which group it belongs.
Since the early nineties I have had trouble with what I thought were my joints but now I think it have been the tissues around it. My wrist started to get pain full first. Physiotherapy and injections didn’t help. I was diagnosed with DeQuervain tendinitis. Since I worked in healthcare at the time my wrist kept bothering me and after many times complaining to my doctor, I finally had surgery. About two years later my shoulder started hurting and it felt like it was on fire. I had several visits to an orthopedic specialist and he told me it was a rotator cuff tendinitis. I had surgery and they removed a little piece from my clavicle. Over the years I had carpal tunnel, tennis elbow, ischial bursitis, a cyst at the back of my knee and bursitis on the inside of my other knee. Many of these painful episodes come and go. But I suspect that in the beginning it was caused by repetitive movements. Now I don’t have to do much repetitive movements to get the tissues irritated. I go to the gym but have to be careful what I do, because I don’t want to irritate anything. I know many people get the same complaints like tennis elbows etc. I just seem to get it a lot faster then the regular person. But I wonder what I could do to avoid these pains? There is a huge shortage of doctors where I live, and for orthopedic appointments you have to wait almost two years. The doctors for rheumatism don’t accept any new patients at this moment. I don’t have much help from that side. So I hope there might be people here with the same challenges and we can give each other advice?

Your experience rings a bell for me. While I won't belabor everyone with my story here, I have come up with a conclusion. In my case, all my problems began with medically documented septic poisoning which the doctors were unable to fully quash. The infection continued in my bones for some time, which caused muscular changes, neurological changes as well. Doctors would tell me that there was nothing they could do. Consider your own personal history, and whether you could have acquired an infection, either through a mishap or surgery. Based on what you described here, it sounds possible. The long and short of it is that without any real options, I took up the herbal world, to see what help it could offer me. While I have gone through a laundry list of unsuccessful tries over the last decade, I have been more than moderately successful with oregano oil which I continue to take (sometimes stopping for periods of time). In the process of all this, I have tried to keep up my physical activity. This hasn't been easy. Working out at the gym created more problems (it isn't the weight, but the movement). I find that working to keep as active as possible is essential to keep your muscles from breaking down from lack of use, never mind that each of us must fight against this as we age naturally.

Liked by lioness

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I have had similar problems since I was 40 and they are still ongoing and worsening as I age. I was diagnosed with fibromyalgia years ago and also sjogren's syndrome. I'm not sure if the fibromyalgia syndrome is correct as I can stand deep massage fairly well. The massage is very painful but I find it helps, also ART therapy is a huge help. They have a web page if you want to find one in your area but look for the amount of courses and training the therapist has taken. You want one that is up to date with all the latest techniques and one who has covered the whole body and not just areas.
I also feel that my pain started when I was a fitness instructor and over used my body with repetative movements. I still like to go to the gym but right now I am in too much pain. I do walk a lot. I also have had a course of prednisone this week to take down the inflammation and I had one half hour visit with the Active Release Technique therapist. He tried a latest piece of training that he learned recently and he helped tremendously with the pain going into my groin and down my leg from my back. My hip x-ray shows only mild degeneration in my hip but I have various degeneration in my back. I am now 78 but not at all overweight.. I have also been told that I have tendonitis in my shoulder and groin etc etc.
I will give the oregano oil a try. Do you drink it or rub it on the skin?

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@pollyanne

I have had similar problems since I was 40 and they are still ongoing and worsening as I age. I was diagnosed with fibromyalgia years ago and also sjogren's syndrome. I'm not sure if the fibromyalgia syndrome is correct as I can stand deep massage fairly well. The massage is very painful but I find it helps, also ART therapy is a huge help. They have a web page if you want to find one in your area but look for the amount of courses and training the therapist has taken. You want one that is up to date with all the latest techniques and one who has covered the whole body and not just areas.
I also feel that my pain started when I was a fitness instructor and over used my body with repetative movements. I still like to go to the gym but right now I am in too much pain. I do walk a lot. I also have had a course of prednisone this week to take down the inflammation and I had one half hour visit with the Active Release Technique therapist. He tried a latest piece of training that he learned recently and he helped tremendously with the pain going into my groin and down my leg from my back. My hip x-ray shows only mild degeneration in my hip but I have various degeneration in my back. I am now 78 but not at all overweight.. I have also been told that I have tendonitis in my shoulder and groin etc etc.
I will give the oregano oil a try. Do you drink it or rub it on the skin?

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@pollyann Hi Another thing that I have in my toolbox for help is Ginger-Tumeric tea this is anti inflammatory as ice is At times I use heat after the ice heat bri gs the blood to the surface and helps in healing

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@lioness

@pollyann Hi Another thing that I have in my toolbox for help is Ginger-Tumeric tea this is anti inflammatory as ice is At times I use heat after the ice heat bri gs the blood to the surface and helps in healing

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Thanks lioness. I have been trying Tumeric and I love ginger as I have some digestive problems. I will try the tea you recommend. Happy Holidays.

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@pollyanne

Thanks lioness. I have been trying Tumeric and I love ginger as I have some digestive problems. I will try the tea you recommend. Happy Holidays.

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@polyanna I but it at Amazon or Trader Joe's thats the only place I can find it or make yojr own Happy Holidays to you may 2019 be pain fred

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We don't have a Trader Joe's in Maui but we visit Tucson sometimes or maybe Amazon would have it. Thank you.

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@pollyanne

We don't have a Trader Joe's in Maui but we visit Tucson sometimes or maybe Amazon would have it. Thank you.

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@pollyanne yes I got last time from Amazon Im in So .Cal isnt weather great u like the ❄ areas

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My husband is going to make me the tea. He likes doing that sort of thing. Yes the weather is lovely here right now. the visitors have all arrived so it is busy with lots of excited children around. Oh to be young again.
I hope your pain isn't too bad for the holidays. Thanks for the tips.

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@pollyanne

My husband is going to make me the tea. He likes doing that sort of thing. Yes the weather is lovely here right now. the visitors have all arrived so it is busy with lots of excited children around. Oh to be young again.
I hope your pain isn't too bad for the holidays. Thanks for the tips.

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@pollyanne your welcome Going to sons later don't have the energy to be young that's for sure

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@momof2gems have you considered your spine may be off balance? If one side is off everything from your head to toes can be painful and throw off your entire body mechanically. I also feel like surgeons only see things how they can fix "surgically," they aren't thinking integrated medicine to help their patients. Fortunately that tide is slowly shifting.

My sister has suffered with fibromyalgia and I've wondered if I had it also, because I've had the carpal tunnel, tendonitis, golf and tennis elbows from overusing my hands/arms, car accident messed up my neck/upper back, beach accident started R hip bursitis, pain all over my body and now lower back herniation because my core was weak. I've had to take 6 Aleve a day but you can't do that long-term for anti-inflammation! 2 is Rx strength @ one time, but they last longer than Advil/Motrin. However though I've had these incidents, I do not want to assume I also have fibromyalgia, and honestly feel there's something else mechanically that throws things off. I believe having my spine aligned has helped me, along with massage to get the muscles back and balanced. I do NOT go routinely to a chiropractor like some (I've read stories), but I DO go when I feel out of whack, and will say that I've felt instant relief.

I will add that I waited too long to try a chiropractor after a neck injury, and wish I'd gone in earlier. Also, later because I type for a living I became desperate when I could hardly move/sleep due to hand pain and later elbow/forearm pain. Nothing but massage helped my arm/elbow so I tried acupuncture the 1st time after seeing a TV show. My husband laughed at me, but I couldn't grip/move the steering wheel driving into the Dr's parking lot my 3rd treatment, and I literally walked out of the office PAIN FREE that day. I honestly could hardly believe it myself! I decided that the Chinese have been using some techniques for thousands of years, I'd give it a shot. It basically resets the nerve impulses.

Nothing is fixed in a couple minutes when you've been suffering long-term, it's worth trying chiro, acupuncture, massage and things like natural anti-inflammatory herbs like turmeric, ginger, etc and additional water to flush out impurities.

Relaxing the muscles with Epson salts (the magnesium relaxes the muscles), a short-term hot tub visit or warm baths help relax the muscles, but short-term ice calms inflammation, followed by short term heat to get blood flow to an area can help specific areas of inflammation and tenderness also.

Liked by lioness

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@stowe

@momof2gems have you considered your spine may be off balance? If one side is off everything from your head to toes can be painful and throw off your entire body mechanically. I also feel like surgeons only see things how they can fix "surgically," they aren't thinking integrated medicine to help their patients. Fortunately that tide is slowly shifting.

My sister has suffered with fibromyalgia and I've wondered if I had it also, because I've had the carpal tunnel, tendonitis, golf and tennis elbows from overusing my hands/arms, car accident messed up my neck/upper back, beach accident started R hip bursitis, pain all over my body and now lower back herniation because my core was weak. I've had to take 6 Aleve a day but you can't do that long-term for anti-inflammation! 2 is Rx strength @ one time, but they last longer than Advil/Motrin. However though I've had these incidents, I do not want to assume I also have fibromyalgia, and honestly feel there's something else mechanically that throws things off. I believe having my spine aligned has helped me, along with massage to get the muscles back and balanced. I do NOT go routinely to a chiropractor like some (I've read stories), but I DO go when I feel out of whack, and will say that I've felt instant relief.

I will add that I waited too long to try a chiropractor after a neck injury, and wish I'd gone in earlier. Also, later because I type for a living I became desperate when I could hardly move/sleep due to hand pain and later elbow/forearm pain. Nothing but massage helped my arm/elbow so I tried acupuncture the 1st time after seeing a TV show. My husband laughed at me, but I couldn't grip/move the steering wheel driving into the Dr's parking lot my 3rd treatment, and I literally walked out of the office PAIN FREE that day. I honestly could hardly believe it myself! I decided that the Chinese have been using some techniques for thousands of years, I'd give it a shot. It basically resets the nerve impulses.

Nothing is fixed in a couple minutes when you've been suffering long-term, it's worth trying chiro, acupuncture, massage and things like natural anti-inflammatory herbs like turmeric, ginger, etc and additional water to flush out impurities.

Relaxing the muscles with Epson salts (the magnesium relaxes the muscles), a short-term hot tub visit or warm baths help relax the muscles, but short-term ice calms inflammation, followed by short term heat to get blood flow to an area can help specific areas of inflammation and tenderness also.

Jump to this post

I visited a chiropractor last month who told me that I could use a few treatments. Unfortunately it is too expensive for me. He had Xray's done from my spine and it showed that I have a slight curve (scoliosis) but it never bothered me before. It was the first time I heard that. In 2012 I broke my ankle ripped all my tendons and ligaments and ever since I have wondered if one leg is shorter than the other. It really is all a mystery to me. Without support from my family physician I try to read research articles on the internet and learn from that.

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Gosh, barring something else medically going on, it really does seem that if your spine is all off, it's causing other problems mechanically and muscularly.

I'd think a broken ankle might cause some long-term muscle/ligament healing, so stretching and then exercises to strengthen again would help from getting re-injured. I doubt that could cause one leg to be shorter. However that could be an issue from scoliosis, if your back is misaligned.
My daughter was in college and complaining of low back pain but hadn't done anything. Sitting too much doesn't help matters, but we took her to a chiropractor for an adjustment and he pointed out how much shorter one leg was. We ended up getting her custom orthotics for her shoes (she has 1 pair and just moves them). She's never had to go back to him, the orthotics worked like a gem, balancing her leg length solved the back/leg pain. They're sturdy also so she didn't need to get the orthotics adjusted (they'll do it free early on), and she's had them for several years.

If you can try go to the chiro a few times. It might make a world of difference to all of the pains you are having. I'd also suggest gentle yoga, which has been recommended to me. Just this weekend someone told me they met a man in their class who had almost been crippled for years, barely moving from different pains and after doing 24 months of yoga is like a younger person, agile and back to sports and enjoying life more. That you could do at home free.

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@momof2gems

I visited a chiropractor last month who told me that I could use a few treatments. Unfortunately it is too expensive for me. He had Xray's done from my spine and it showed that I have a slight curve (scoliosis) but it never bothered me before. It was the first time I heard that. In 2012 I broke my ankle ripped all my tendons and ligaments and ever since I have wondered if one leg is shorter than the other. It really is all a mystery to me. Without support from my family physician I try to read research articles on the internet and learn from that.

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@momof2gems I love that name. Do you have an insurance that will cover chiropractor ? I,m on an HMO insurance and they cover so many ,maybe the chiropractor will give you a discount? @stowe

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No, unfortunately, but the place I am now going to for my back gives a huge discount if you pay cash and they don't have to deal with insurance.

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@stowe

No, unfortunately, but the place I am now going to for my back gives a huge discount if you pay cash and they don't have to deal with insurance.

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@stowe is that your 🐕 so cute ,yellow,lab? Good glad to hear hope this helps Merry Christmas Happy New Year in 2019

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