Small Intestine Bacteria Overgrowth (SIBO)

Posted by jacque6977 @jacque6977, Feb 22, 2017

My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?

@jamorris9

I thought I would share this link for all of the Sibo-C people…. has to do with depression and constipation….. https://www.medicalnewstoday.com/articles/325129.php

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Yes, I like this scientific approach. The broad spectrum, long term, gold standard testing is important in coming to any generalised conclusion.

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Hi, I was just diagnosed with this, there is a thread, but hasn't been active since 2017, was just wondering if anyone else out there has this problem. The doctor I just saw here at Mayo doesn't seem to think much of it, I was excited to be referred to a dietician, and couldn't believe she never heard of it, I thought she was going to help me the the diet that seems to be indicated for this problem. Has anyone had any luck with this at Mayo? Is there anyone here knowledgeable about this problem?

Liked by ajh1233

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Hi @elle1233,

You may notice that I moved your message and combined it with this existing discussion. Although it was started by @jacque6977 in 2017, many Connect members have joined the conversation since then, and are actively talking about SIBO – the last message was posted by @haighsue, in May.
Simply click VIEW & REPLY in your email notification to find your post.

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Oh, OK. Well, hopefully someone will see it then. This is my first day here, so I'm just getting the hang of it. May is quite a while ago, and it looked like there really wasn't much activity before that, so I thought maybe I'd start a new one, hoping maybe there'd be some current people with some info.

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@elle1233

Oh, OK. Well, hopefully someone will see it then. This is my first day here, so I'm just getting the hang of it. May is quite a while ago, and it looked like there really wasn't much activity before that, so I thought maybe I'd start a new one, hoping maybe there'd be some current people with some info.

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Where can u find that discussion?

Liked by elle1233

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I don't know how to find it, maybe search "SIBO".. but if you have any info or want to discuss it, I'm all ears 🙂

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My wife is a two time breast cancer survivor and while going through chemo, nothing was helping her nausea, not one of the medicines prescribed. Her brother suggested letting her try Pot. He sent it to the house and when she finally got up the nerve to try it, I took the rest of our family to run errands. When we came home she was up and about and wanting to try and eat something, this in moderation got her through both battles. I wish there was real medicines from this resource like what has been developed from other plants, but there not.

Liked by elle1233

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@mepj

My wife is a two time breast cancer survivor and while going through chemo, nothing was helping her nausea, not one of the medicines prescribed. Her brother suggested letting her try Pot. He sent it to the house and when she finally got up the nerve to try it, I took the rest of our family to run errands. When we came home she was up and about and wanting to try and eat something, this in moderation got her through both battles. I wish there was real medicines from this resource like what has been developed from other plants, but there not.

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THC releaves , I prefer to use the THC tablets, 2.5mg, from the Dispensary. i used street pot, when I had Breast Cancer & it saved my life 14 years ago🌹. I have Gastroparsis now & am Nauseas all the time, I use 1 THC tablet in the morning, & one before dinner. I have been taking them for 6 months now, & with correct diet I’m almost completely nausea Free.
Not sure what State you live in, but I would look into it . Good Luck & God Bless you all 🤗☘️

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Might be better placed in another group, but just read this article from Livestrong and thought it might prove helpful to some dealing with kidney and digestive issues:
https://www.wellandgood.com/good-advice/what-is-sibo/

Liked by elle1233

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@fiesty76

Might be better placed in another group, but just read this article from Livestrong and thought it might prove helpful to some dealing with kidney and digestive issues:
https://www.wellandgood.com/good-advice/what-is-sibo/

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Thanks @fiesty76, I moved your post with the article about irritable bowel syndrome (IBS) and small intestinal bacterial overgrowth (SIBO) to this existing discussion.

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@colleenyoung

Thanks @fiesty76, I moved your post with the article about irritable bowel syndrome (IBS) and small intestinal bacterial overgrowth (SIBO) to this existing discussion.

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Thank you, Colleen, for moving my post and article link to this discussion group. In reading above posts and noting that persistent nausea was a factor for some, prescriptions for my months of nausea did nothing to help. Using ginger in gingerbread, gingersnaps, ginger tea and tabs from a reliable health food store stopped the nausea.

A good friend greatly suffered with nausea while going through chemo. Her daughter brought her medical-grade marijuana tabs, legal in Colorado but not Texas. That stopped the nausea and she was able to resume eating more.

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I was diagnosed with SIBO yesterday. Now I get the pleasure of doing the test for BAM. Luckily I get to do this one at home. I feel vindicated and hopeful. I have suffered with SIBO for close to 10 years. When I went to Mayo it was for like a 7th opinion. I was told at home I have a NET and carcinoid syndrome and to think about palliative care. The doctors at Mayo,yea Dr. Qin, were phenomenal. I now have answers. Levaquin for a while and after the BAM test I'll start the SIBO diet. To find the diet ,Google Mayo SIBO diet. I wish you each the best quality of life. Something I thought was gone but now have hope for. Thank you Mayo Clinic Rochester!!!!!!!!!!!!

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There are many pages online that purport to describe the symptoms of SIBO. One of the potential symptoms (I can report from my own research) that is missing is the feeling of lightheadedness about 2 hours after eating a meal. This is almost certainly the food being fermented by the mass of bacteria in the small intestine and the resulting d-lactic acid, and other products of fermentation including alcohol, circulating in the bloodstream and affecting the brain. I’m wondering how many of us have experienced this.
Another issue I’ve been looking at is the difference between SIBO and LEAKY GUT, in terms of symptoms. It may be the case that the latter has a greater/unique tendency to produce muscle soreness. Can anyone support this theory through experience?

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@eden

There are many pages online that purport to describe the symptoms of SIBO. One of the potential symptoms (I can report from my own research) that is missing is the feeling of lightheadedness about 2 hours after eating a meal. This is almost certainly the food being fermented by the mass of bacteria in the small intestine and the resulting d-lactic acid, and other products of fermentation including alcohol, circulating in the bloodstream and affecting the brain. I’m wondering how many of us have experienced this.
Another issue I’ve been looking at is the difference between SIBO and LEAKY GUT, in terms of symptoms. It may be the case that the latter has a greater/unique tendency to produce muscle soreness. Can anyone support this theory through experience?

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Hi @eden, I moved your new message to this existing discussion about SIBO to better connect you with other members dealing with this condition, like @haighsue @elle1233 @gemmao @fiesty76 @mutter3 @jacque6977 @jamorris9 @astaingegerdm and others.

Eden, you report feeling lightheaded about 2 hours after eating a meal and wonder if others experienced this. You also ask about another issue – the difference between SIBO and LEAKY GUT, in terms of symptoms. "It may be the case that the latter has a greater/unique tendency to produce muscle soreness. Can anyone support this theory through experience?"

Can you elaborate a bit more?

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@colleenyoung

Hi @eden, I moved your new message to this existing discussion about SIBO to better connect you with other members dealing with this condition, like @haighsue @elle1233 @gemmao @fiesty76 @mutter3 @jacque6977 @jamorris9 @astaingegerdm and others.

Eden, you report feeling lightheaded about 2 hours after eating a meal and wonder if others experienced this. You also ask about another issue – the difference between SIBO and LEAKY GUT, in terms of symptoms. "It may be the case that the latter has a greater/unique tendency to produce muscle soreness. Can anyone support this theory through experience?"

Can you elaborate a bit more?

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Hi Colleen and @eden I have a diagnosis of SIBO and have done a lot of research (have a health care further nerdy science background 🙂 ) . I've never experienced light headedness after meals, nor have I heard others report that, or seen it listed as a symptom specific to SIBO. We do know of course that everyone is different, and if you experience light headedness 2 hours after meals, you obviously do, I think you might have to be cautious about immediately attributing that to the SIBO. Obviously, if your SIBO is treated and you have some kind of testing to document it is better, and the light headedness also goes away, then you could link the two.

"This is almost certainly the food being fermented by the mass of bacteria in the small intestine and the resulting d-lactic acid, and other products of fermentation including alcohol, circulating in the bloodstream and affecting the brain". There is absolutely no scientific evidence that any of this is happening, particularly any of these substances getting into your blood and your brain. Research into SIBO is still young, and I lot isn't known. While there is speculation that bloating and gassiness could be caused by action of the bacteria on food, this doesn't necessarily mean they are fermented, and nothing has ever shown this, nor that such substances are being produced. Even if they were, and diffusing into the bloodstream, all blood from the GI organs goes to the liver first, via the hepatic portal vein, and those things would detoxified. Our body also is very adept at keeping a tight pH in the blood, and excess lactic acid would be converted into a closely related substance to keep the pH constant. Anyway, none of these substances would get anywhere near your brain. Nor to your muscles to cause any soreness (and would not be present in any amount great enough to do so).

"There are many pages online that purport to describe the symptoms of SIBO."
Yes there are, and this is one syndrome that people really need to be careful with; because sadly there seems to be more BAD info compared to good info with this problem. I suspect b/c the medical community has been so slow to get on board with taking SIBO seriously, it's gotten 'hijacked' by naturopaths, chiropractors, self-appointed experts and all kinds of quacks. Promoting things like you described above. People really need to read carefully, and critically think. There are some patients who are good sources of information. When someone calls themselves "Dr." , check into what kind of Dr. they are. Chiropractors have absolutely no education and training in GI issues. Unfortunately, I think it becomes a vicious circle. In my experience, the medical community, even my Mayo Dr., do not take SIBO seriously, I think partially b/c they see it as something that is associated with quackery.

SIBO and "leaky gut" are two separate issues, and "leaky gut" is another highly controversial issue, and hasn't even been determined whether or not this is a 'real' thing – there is evidence that the permeability of the small intestine likely can be affected by various disease processes. However, many claims made by some sources are just not valid. I won't go into great detail now as this is already getting long. Both of these problems are not 'diseases' in themselves, but things that develop secondary to another problem (and then become a problem). Hence, SIBO will re-occur if the underlying cause cannot be remedied, which is why it is so hard to treat. Often that cause is not known, or can't be 'fixed'.

There is no evidence that SIBO or leaky-gut can cause muscle soreness. However, many people who have SIBO have other medical problems, sometimes many. I'd explore other causes of your muscle soreness and light headedness because it seems a possibility there could be some other cause.

Colleen, I'm not sure if this is where I should be writing this .. or in that other place, but maybe you can move it?

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