Small Fiber Neuropathy discouraged

...oh just noticed you were advised not to tell your story; well I see more and more people telling their stories I found a blog on a woman who still suffering years after C.Diff; a woman who believes her tinnitus etc. caused by no hearing protection during mri's ; how can anyone - anyone - not be allowed to tell their story. If someone. public, doctor, reading the story has issue with it... then speak up. I had an old medical book which showed my symptoms of cancer of cervix; gp said to me; it's hygiene, hygiene hygiene - 3 times as if I didnt comprehend; months went by new dr close to where i worked, older lady... checked the area and said 'I don't see anything'..... had been referred to gyno but had to wait - when i had bowel movement, bleeding from vagina... still at work, knew something wrong. Exam on gynos table he said need d and c as soon as possible but his receptionist made appointment for 2 months. i wrote a note which dr probably didnt see. Then so much pain put in hspital, he did dandc and i had tumour size of apple - whizzed off to hospital out of town and, guess what, that's another story! Did I do anyting about these mis diagnoses/nope but I wish I had. After that, numerous times given wrong pills; not taken serously; taken off meds been on 15 yrs after last 5 pills; put back on pills I had been advised not to take and it goes on and on. Why cant i write my story especially if I change all names, locations/ Why cant anyone write their story? Yes two sides to every story ... theirs and the truth.I have backup written test results etc but yes its my word again theirs and yes there have been some amazing drs. who helped me and I would mention that too ...if it were not for those helping drs. I don't think I would have made it.
Last year after attacks at home , ambulance, interview, given Tylenol, emerge dr said; Well it wasn't a stroke. 4 months later talking to neurologist about something else described the attacks and he ordered mri and I DID have small stroke. I did nothing about it except put a polite negative comment on RateMDS.... I got a copy of the incident from hospital - you just have to ask and they have to give copy under Freedom of Information Act and free. However as my old Nan used to say ... what's done cannot be undone...thing is it keeps happening to me; do I have 'BEWARe OVERLY SENSITIVE PATIENT...checks google, belongs to MAYO CONNCT' stamped on my forehead? ugh I have tried writing my stories the good and the bad but who, really wants to read ?? Thankfull we can not only vent here but hear others how they coped or are not coping, try and provide some support and great moderatos who give us advise.... j.

I was taking Pregabalin. I detoxed very slowly and still it was awful. I was on a low dose. It also did nothing for my SFN but caused other issues. I'm on nothing now but prefer that to the drug options.

@graysea can you expand on your comment about gabapentin? Thanks much

Thank you. Really really thank you. Im sorry you had to suffer. Im glad you can speak out. For me I just hear "moving forward " That means my story doesn't mean anything and I don't matter. I have had three professionals say they were sorry. That healed my heart.

Gabapentin is prescribed almost as a knee jerk. It is in the top 10 medication s prescribed. I am surprised at the fact it is given to cardiac patients without reviewing cardiac risks.. Gabapentin is prescribed to frail non diabetic elderly that are fall risks. It appears to be prescribed without thought or interview. One of the non diebetic elderly men that was given Gabapentin for charley horses is a fall risk. When it didn't work the doctor just wanted to give him more. He sought help elsewhere and got relief. The whole patient need to be considered and gabapentin isn't always the answer. When I was in pain gabapentin was taken off of my ALLERGY list and represcibed because the doctor had nothing else to offer. Really????? Im going though a gabapentin tapor. I cant eat without vomiting,.I have stopped sleep. I pace and have esculated pain. Gabapentin was not the answer. I wasnt woth more than 10 minutes and a knee jerk drug.

I am a walking medication error, not a person

I am continuing to suffer from the gabapentin tapor. My internist is an angel and is working closely with me. I was very lucky to find her. Before I found her I had some treatment that I will never forget, very cruel. I hope I was the only patient that saw that cruelty. But last night when the tapor symptoms got worse, I remembered that cruelty. I made myself focus on the care from health professionals that was God given. That was kind. That was from the heart. During these times, I will push the cruel acts away and embrass those acts that were pure kindness.

Turns out the hive like rash I get when taking gabapentin is bad. It was one of the reasons I was taken off of gabapentin the first time. The second time I was put on gabapentin and got a hive like rash I qas told yo use a otc cream and that the ongoing prednisone order I was on would help. As I decreased the prednisone the rash got worse. Last time I went off of gabapentin it went away. Im on 400 mg today and taporing down.

Happy Labor Day to all. I encouraged my family to enjoy themselves. It is important to care for the caregivers. Because of Gabapentin withdrawal, I am still in a bed or chair. Nausea, agitation, insomnia and increased pain. No vomiting today. Gabapentin did nothing for pain, it had very serious side effects for me. Withdrawal is eating away each day. I look forward to being with my family and away from this frightening medication.

@graysea I am so sorry you are going through this but thank you so much for sharing.