Small Fiber Neuropathy discouraged
I had minimal health issues until the fall of 2019. My general practioner dc'd a medication cold turkey. This caused small fiber neuropathy. It took two years to diagnose and treat. I spent two years in my husbands arms screaming and crying. In February of 2021 my neurologist placed me on 40 mg of prednisone. I reacted poorly, without pain relief. He was ruling out poly rheumatatica. In June the dictor removed Gabapentin from my allergy list . The nurse stated I would not have the same response. I did. It was hell. By this time the neurologist was uncomfortable taporing me off of prednisone. I have been taporing for slmost a year. The tapor is hell. Im currently on 6 mg. I am currently being treated for pain. The prednisone tapor is suppose to last until Dec. I lost almost everything in the last 3 years. I keep on trying. I wont stop trying to feel better.
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@graysea can you expand on your comment about gabapentin? Thanks much
Thank you. Really really thank you. Im sorry you had to suffer. Im glad you can speak out. For me I just hear "moving forward " That means my story doesn't mean anything and I don't matter. I have had three professionals say they were sorry. That healed my heart.
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2 ReactionsGabapentin is prescribed almost as a knee jerk. It is in the top 10 medication s prescribed. I am surprised at the fact it is given to cardiac patients without reviewing cardiac risks.. Gabapentin is prescribed to frail non diabetic elderly that are fall risks. It appears to be prescribed without thought or interview. One of the non diebetic elderly men that was given Gabapentin for charley horses is a fall risk. When it didn't work the doctor just wanted to give him more. He sought help elsewhere and got relief. The whole patient need to be considered and gabapentin isn't always the answer. When I was in pain gabapentin was taken off of my ALLERGY list and represcibed because the doctor had nothing else to offer. Really????? Im going though a gabapentin tapor. I cant eat without vomiting,.I have stopped sleep. I pace and have esculated pain. Gabapentin was not the answer. I wasnt woth more than 10 minutes and a knee jerk drug.
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3 ReactionsI am a walking medication error, not a person
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2 ReactionsI am continuing to suffer from the gabapentin tapor. My internist is an angel and is working closely with me. I was very lucky to find her. Before I found her I had some treatment that I will never forget, very cruel. I hope I was the only patient that saw that cruelty. But last night when the tapor symptoms got worse, I remembered that cruelty. I made myself focus on the care from health professionals that was God given. That was kind. That was from the heart. During these times, I will push the cruel acts away and embrass those acts that were pure kindness.
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1 ReactionTurns out the hive like rash I get when taking gabapentin is bad. It was one of the reasons I was taken off of gabapentin the first time. The second time I was put on gabapentin and got a hive like rash I qas told yo use a otc cream and that the ongoing prednisone order I was on would help. As I decreased the prednisone the rash got worse. Last time I went off of gabapentin it went away. Im on 400 mg today and taporing down.
Happy Labor Day to all. I encouraged my family to enjoy themselves. It is important to care for the caregivers. Because of Gabapentin withdrawal, I am still in a bed or chair. Nausea, agitation, insomnia and increased pain. No vomiting today. Gabapentin did nothing for pain, it had very serious side effects for me. Withdrawal is eating away each day. I look forward to being with my family and away from this frightening medication.
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4 Reactions@graysea I am so sorry you are going through this but thank you so much for sharing.
@graysea When I was taking a ridiculous amount of gabapentin pills each night I asked my doctor what the limit on dosage was for gabapentin as I felt taking over 15 pills at one time was a high amount. It also was not resolving my medical issue. He told me there is no limit on gabapentin, they can just keep prescribing until it works. I am so glad I didn't listen to him or I would be suffering the withdrawals you are. I am so sorry you are in this position.
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3 ReactionsIm glad you listened carefully to your body and logic. I was on 1200 mg for one year and a month. I don't understand the "more is better" philosophy with gabapentin. I do not see this cavalier attitude with other medications. Can anyone help me with this concept? I do know in my heart of hearts that this medication works for others. It is just a tough journey for me when Im in a the shadow of a medication that is
doled out to many.
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