Small Fiber Neuropathy

Posted by kfrenc04 @kfrenc04, Feb 10, 2022

Are there any treatments available or trials for Small Fiber Neuropathy? My symptoms get worse every day. Thank you

Interested in more discussions like this? Go to the Neuropathy Support Group.

There isn't a cure for neuropathy but I'm just looking to manage or reduce the pain. Everybody is different and what works for one does not work for another. My neuropathy is from type 2 diabetes.

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@julkun

There isn't a cure for neuropathy but I'm just looking to manage or reduce the pain. Everybody is different and what works for one does not work for another. My neuropathy is from type 2 diabetes.

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I understand. Thank you!

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@dancing1

I understand. Thank you!

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And thank you for your reply. Wishing you well and a pain free life.

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My husband (we think) has SFN… waiting on results. Has anyone tried massage, PT or acupuncture? I have a friend who says acupuncture works if you give it 5 tries… any feedback? This would be through a Neuromuscular MD..
Thanks
Sheila 🙂

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@sma2day

My husband (we think) has SFN… waiting on results. Has anyone tried massage, PT or acupuncture? I have a friend who says acupuncture works if you give it 5 tries… any feedback? This would be through a Neuromuscular MD..
Thanks
Sheila 🙂

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I've never tried it. Waiting for information on my tests and waiting to see
what natural things can help

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@sma2day

My husband (we think) has SFN… waiting on results. Has anyone tried massage, PT or acupuncture? I have a friend who says acupuncture works if you give it 5 tries… any feedback? This would be through a Neuromuscular MD..
Thanks
Sheila 🙂

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Good morning @sma2day and @dancing1

Hi there to both of you, so glad to see you on Connect. It sounds like you may have a need for some massage attention. So let me introduce you to MFR, (myofascial release therapy). The massage has been a salvation for me since my SFN diagnosis 10 years ago. And one of our mentors has developed a discussion that you might find helpful. Here's the Connect link:

https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

If @jenniferhunter has a chance to read your posts today, maybe she can step in with an introduction,

What areas of your body are most impacted by SFN symptoms?

May you be safe, protected, and free of inner and outer harm.

Chris

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@artscaping

Good morning @sma2day and @dancing1

Hi there to both of you, so glad to see you on Connect. It sounds like you may have a need for some massage attention. So let me introduce you to MFR, (myofascial release therapy). The massage has been a salvation for me since my SFN diagnosis 10 years ago. And one of our mentors has developed a discussion that you might find helpful. Here's the Connect link:

https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

If @jenniferhunter has a chance to read your posts today, maybe she can step in with an introduction,

What areas of your body are most impacted by SFN symptoms?

May you be safe, protected, and free of inner and outer harm.

Chris

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Thank you so much. Several areas legs, feet, all lower body areas even
Rectom area (Rectom is gone) and so much more.

REPLY
@artscaping

Good morning @sma2day and @dancing1

Hi there to both of you, so glad to see you on Connect. It sounds like you may have a need for some massage attention. So let me introduce you to MFR, (myofascial release therapy). The massage has been a salvation for me since my SFN diagnosis 10 years ago. And one of our mentors has developed a discussion that you might find helpful. Here's the Connect link:

https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

If @jenniferhunter has a chance to read your posts today, maybe she can step in with an introduction,

What areas of your body are most impacted by SFN symptoms?

May you be safe, protected, and free of inner and outer harm.

Chris

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@sma2day and @dancing1 Chris and I have both benefited a lot from MFR. The therapist will press in with their hands and push any number of directions while maintaining the hold. This is to make a shearing motion on the layers under the skin, and they just hold it and wait for the tissue to loosen and release. This brings fluids and oxygen into stuck dehydrated tissues and gets it all moving again. Sometimes this can be a reason behind neuropathy if there is a physical aspect to it.

There is a provider search at https://www.mfrtherapists.com/.

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@jenniferhunter

@sma2day and @dancing1 Chris and I have both benefited a lot from MFR. The therapist will press in with their hands and push any number of directions while maintaining the hold. This is to make a shearing motion on the layers under the skin, and they just hold it and wait for the tissue to loosen and release. This brings fluids and oxygen into stuck dehydrated tissues and gets it all moving again. Sometimes this can be a reason behind neuropathy if there is a physical aspect to it.

There is a provider search at https://www.mfrtherapists.com/.

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Wow- thanks so much for the information! Do you know if this type of therapy is covered by insurance?
We live in the Triangle area of Raleigh/Durham in NC
Thx
Sheila 🙂

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@sma2day

Wow- thanks so much for the information! Do you know if this type of therapy is covered by insurance?
We live in the Triangle area of Raleigh/Durham in NC
Thx
Sheila 🙂

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@sma2day My therapist makes sure to put a code for neuromuscular re-education and also may do a bit of strengthening with it. I have had it covered by insurance that way, otherwise, insurance may not cover it. They have to code for units that might be 15 minutes of time and can mix codes to cover it. Discuss that with the therapists because they should understand the insurance part of this. It is worth trying, perhaps you can get a cash price in you can't get insurance coverage. It looks like there are 4 providers in the Raleigh Durham area on the map at https://directory.mfrtherapists.com/providers?state=NC&country=US

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