Small Cell Lung Cancer

Posted by Merry, Volunteer Mentor @merpreb, Sat, Jan 12 8:06am

Most of the discussions about lung cancer has been about Non-small cell lung cancers. There are many sub-types of this that are included. But there is another type of lung cancer that needs to be discussed and that is Small Cell Lung Cancer. This aggressive form of lung cancer most commonly occurs in smokers. It usually starts in the breathing tubes (bronchi) and grows very quickly, creating large tumors and spreading (metastasizing) throughout the body.
Symptoms include bloody phlegm, cough, chest pain, and shortness of breath.
Treatment includes surgery (for small tumors) as well as chemotherapy, sometimes in combination with radiation therapy.
Lung cancers cells are sometimes classified by where they tend to grow.
There have been huge breakthroughs in lung cancer research of late.
Please join @margot69 and I in this new disussion.

@merpreb

@margot. Is there a Ronald McDonald near the hospital? They have guidelines but most cancer patients stay for free.
Do you have an oncologist at home that would work with another Dr to administer the chemicals or radiologist?

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Near Stanford? Not sure. Will have to wait and see what treatment plan they suggest.

It has been a real circus over hear and my doctor knows I am not happy! I was supposed to see an Oncologist here, after I had to ask for a referral, last Friday but I was stuck in the ER. I have one this Friday and will keep it.

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@shaila1902

@margot69 Glad you are going to see Dr Wakelee. She is very very good and also very caring. I have been under her treatment for my NSLC adenocarcinoma for the lung with brain mets since the past 2years . She and her team are very responsive to any queries/problems you may have.

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Shalia, glad someone is familiar with Stanford and this doctor. After deciding I would probably seek an opinion at Stanford, I started researching doctors and she has a very good education and reviews. A friend suggest Dr. Padda, who had an opening. I guess I got lucky because they called back to say they could get me in to see Wakelee this week. I am glad you have done so well under her care. I am hoping there is some ray of home for me with the small cell LC, stage IV now, but nothing showed in the brain.

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I am sure you will like her. Wish you all the best. There are so many new medicines in lung cancer and so there is a lot of hope for all of us !

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@shaila1902– Good morning and a warm welcome to Mayo Connect. Thank you for giving more information to Margot. Meeting a new doctor can be intimidating. Would you mind sharing a bit more about yourself? What type of lung cancer do you have?

Liked by margot69

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@margot69

The ride to Stanford? Depending on traffic, weather, accidents and road construction coukd be 1 hr 45 mins to 3-4 hours coming and going! My daughter is in San Diego, minimum, in good traffic, 7 1/2 hours from here, has taken us 10+. Oh, just feel comfortable at home. She life's in a ranchette with dogs, horses, braying Donkies, goats. Any other time, I enjoy it. SIL is a mechanic and always working on something and people always in and out. I love them and the animals but, if I am not well, I just want oeace and quiet. If they decide I qualify for some treatment, what if that makes me sick? I would hate to be so far away and being our home vacant fir that long, however long that might be. Have a son diwn there too that suggested we rent a place down there, in San Diego! He did not offer to pay for that. Ear Doc gave me a script for Percocit, I have never taken. My stomach and pain meds do not get along well together.

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@margot69– I understand about the ride and wanting to be in your own home. I did that too. I have a very hard time with pain pills. They make me nauseous as hell. I get sick every time. I have to take and anti-nausea med before I take any pain meds.

Liked by margot69

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@merpreb

@shaila1902– Good morning and a warm welcome to Mayo Connect. Thank you for giving more information to Margot. Meeting a new doctor can be intimidating. Would you mind sharing a bit more about yourself? What type of lung cancer do you have?

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I have adenocarcinoma of the lung with brain mets.I was on Gefitinib for 18 months but it progressed a bit more in the brain so Dr Wakelee switched me to Tagresso since the past 2 months. Have done Gamma Knife surgery twice for the brain. But side effects overall have been minimal-some nausea-feeling tired etc but not major. I continue to live a full busy day with my work, exercise, meditation and walks-and a focus on the important things in life. I live in Mumbai India. Glad to be on Mayo Connect

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@shaila1902

I have adenocarcinoma of the lung with brain mets.I was on Gefitinib for 18 months but it progressed a bit more in the brain so Dr Wakelee switched me to Tagresso since the past 2 months. Have done Gamma Knife surgery twice for the brain. But side effects overall have been minimal-some nausea-feeling tired etc but not major. I continue to live a full busy day with my work, exercise, meditation and walks-and a focus on the important things in life. I live in Mumbai India. Glad to be on Mayo Connect

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Shalia, thank you for sharing your information with us. It is heartening to read of your success withGamma Knife surgery. It:s wonderful to read of your full busy life.

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@shaila1902

I have adenocarcinoma of the lung with brain mets.I was on Gefitinib for 18 months but it progressed a bit more in the brain so Dr Wakelee switched me to Tagresso since the past 2 months. Have done Gamma Knife surgery twice for the brain. But side effects overall have been minimal-some nausea-feeling tired etc but not major. I continue to live a full busy day with my work, exercise, meditation and walks-and a focus on the important things in life. I live in Mumbai India. Glad to be on Mayo Connect

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@shaila1902– I just looked up the weather and time in Mumbai. It's 5:01 PM and 89 degrees. Very hot. I give you lots of credit to continue living a full life. How is your breathing? Can you tell me more about how the brain mets affect your life?

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@shaila1902

I have adenocarcinoma of the lung with brain mets.I was on Gefitinib for 18 months but it progressed a bit more in the brain so Dr Wakelee switched me to Tagresso since the past 2 months. Have done Gamma Knife surgery twice for the brain. But side effects overall have been minimal-some nausea-feeling tired etc but not major. I continue to live a full busy day with my work, exercise, meditation and walks-and a focus on the important things in life. I live in Mumbai India. Glad to be on Mayo Connect

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Thank you for sharing this and happy something is working for you! Some treatments seem to be working for the NSCLC but I have SCLC and hoping there is something for me. Very afraid of side effects. I have had GI issues for years and often have to use anti-nausea meds now! I have a very low tolerance for feeling ill like That. Oh my gosh! You are in India? Hiw did you see Dr. Wakelee?

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@merpreb

Margot- What tests did he do that saw the nodules near your shoulder blade?

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I believe they showed up on the CT but definitely on the PET

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My doctors seem to be scrambling now! All if a sudden my OCP puts in an urgent referral to Stanford. The worthless Pulmonologist will put in a referral to Stanford. I to,d my PCP my ENT Doctor out there put on one last week! I messaged my PCP yesterday about the shoulder blade pain. He messaged me back today that he would prescribe Tramadol, which I have never taken. Drugs may be an issue fir me in any treatment. I already have a list of about 14 I cannot take. I also messaged him, that should I need to see a Pulmonologist, I am not going back to the one I have been seeing. He tells me I probably won't be needing a Pulmonologist but there is another one there. Honestly, every time I hear from him there is an underlying sense of doom. He has also referred me to his church and priest. That's nice but I really don't want to hear that now! Actually, on a better note, no pain, other then a twinge in my back. Still supposed to be limited in lifting since the biopsy but I got some laundry done, bed linens changed, dusted the house and did a little dog training. Still coughing all the time but glad I had some energy and ambition! And I am trying to expand my reading to something other then the bad news about this cancer. 👍

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Was hoping that more people would post about their experiences with SCLC. I go to see Dr. Wakelee at Stanford tomorrow and am just about over one with nerves. I do have the first appt with an Oncologist here at Sutter Gould on Friday. I need to sit down and write out my questions and hope there is time allotted to address them. Someone, who friended me off the discussion boards and has been a great support, mentioned having a port for treatments. I hadn't thought about that. Does anyone have a port and, if so, where and is it painful? 😬😬

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@margot69

Was hoping that more people would post about their experiences with SCLC. I go to see Dr. Wakelee at Stanford tomorrow and am just about over one with nerves. I do have the first appt with an Oncologist here at Sutter Gould on Friday. I need to sit down and write out my questions and hope there is time allotted to address them. Someone, who friended me off the discussion boards and has been a great support, mentioned having a port for treatments. I hadn't thought about that. Does anyone have a port and, if so, where and is it painful? 😬😬

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It is a good idea to have a list of questions. Being nervous makes one forget to ask for needed info.
I have had 2 ports. One back in 2010 for breast cancer, which I beat. Then another one placed early last summer for SCLC. Both were placed in my chest in 2 different areas. I did not have any pain or problems. Am leaving the last one in for a while in case there is a need for more chemo later. Just have to have it flushed every 6-8 weeks. The oncology nurse also accesses the port for blood test. Makes things so much easier.

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@margot. Small cell lung cancer is considered a rare cancer because about only 20% of lung cancer patients have it. Maybe that's why there are so few people responding because there are very few people on here with it.
As far as ports go, if you have to have infusion therapy then that's the way to go. I had a port. You can read up on them. But I think that you are jumping the gun because you don't know what the doctor will decide is the best treatment for you.
Please make sure that your questions are addressed. They are very important. They concern your health.
Take some deep breaths. Once your list is finished I think that you will feel more settled. More in control. Try and take one thing at a time.
I'll be thinking of you. Travel safely. Let me know what you learn when you ,have a minute.
Does your new friend have lung cancer and like to join us?
You've got this! You know that she's great and caring! You'll be in great hands! Best of luck.

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That is a good point, Merry. Most information I have found isn't really showing treatment plans or a good prognosis.
I hadn't received info from Stanford so went on the site to check my appt info. It showed I had a 15 min appt! I almost lost my 💩 (Excuse me). I called and was assured my appt would be over an hour and they have all my records. I am going to get my folder and write down my questions now.
I sent that guy the link here so maybe he will check it out. He is in the UK. Kind of odd how he got diagnosed and the treatment plan. We have been discussing the health issues we have both had for some time before this diagnosis. M seems unrelated but a lot of parallels.
I will keep you updated assuming I don't have a damn heart attack. ❤️

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