Sjogren's, Hashimoto's and Thyroid Dysfunction: Got questions

Posted by judithmhol @judithmhol, Jun 3, 2020

I was diagnosed with both of these autoimmune diseases last year. Due to thyroid dysfunction. Or the thyroid dysfunction was due to the auto immune diseases. No one’s been able to tell me which comes first? But I’ve had everything from hives all over my back, to scalp irritations and horrible itching, the skin on my face has aged five years in the last year it seems as though. At any rate I also have been on a PPI acid inhibitor, which depleted any Vitamin/enzyme Resources I might’ve had due to the lack of stomach acid. I have had to take a crash course in thyroid medicine and I’ll kinds of things. I wonder if anyone out there has gone through anything like this I’m sure I’m not the only one.

Interested in more discussions like this? Go to the Autoimmune Diseases group.

@mfratt

Thank you Colleen. Any input is welcome. What I have a difficult time with is when doctor wants me to sit during the apt. I have sciatic problems on and off so it’s difficult to sit. I think he just wants to tower over me. I believe he thinks it’s a sign of respect to sit. It bothers him when I stand.

Jump to this post

@mfratt Have you explained, to the doctor, that it’s very painful to sit and that you prefer to stand? I’m sure she would be understanding!

REPLY
@becsbuddy

@mfratt Have you explained, to the doctor, that it’s very painful to sit and that you prefer to stand? I’m sure she would be understanding!

Jump to this post

Yes. The physician assistant even said to sit. Like I was a dog. It’s a he. He doesn’t help me but he sure likes the referrals. I do all the finding for other doctors. I tell them where I’m going and then they send the referral form. I asked for help getting a wheelchair but he said I didn’t need one. I asked him for a test to check abdominal adhesions and he said, they won’t do that unless you throw up green. Insurance company is going to help me find a new doctor. I’m very frustrated. The other doc is fine but this doc is the one that controls everything.

I recently went through a thyroid storm. My endocrinologist is no help. The ER checked my thyroid levels twice. First time tsh was way off and that Er doc said don’t take your Synthroid till you talk to your endocrinologist. I finally read her reviews and they were in line with how I felt.

Right now I fill lost and going to have a nervous breakdown. I wish I had my old endo back. He was my pcp also. I’ve always got along with all my docs in the past.

I go in with a list of concerns. That fifteen min is crucial. My old doc would have 6 people waiting but it was worth it cause he took every concern carefully. I should never have moved out of that area.

That’s it….

REPLY

By the way he seemed not to care.

REPLY

I have done all of that in the past but I cannot walk anymore because of my back. I cannot do yoga anymore. Tried tai chi with a oriental neighbor for a little while . I did a lot of crafts with embroidery and pistachio shells made into Xmas trees this past Xmas. Cannot sit or stand long anymore? I liked your suggestion though. Thank you.

REPLY

I posted my comment to you somewhere else accidentally. I have done all of that in the past like yoga, tai chi, crafts like embroidery, Xmas trees out of pistachio shells. I like to create things. Trying to read a book at the moment. Or just lying trying to meditate through the pain. Thank you for your suggestions.

REPLY

I still posted in the wrong place. Lol!

REPLY
@mfratt

I still posted in the wrong place. Lol!

Jump to this post

@mfratt you have been posting all your comments in this discussion. There are a couple of ways to see where you are posting if interested.

The first way is to go to your profile>Profile & Settings>Comments to see the history of your comments and what group/discussion they are in.

The second way is to scroll back through the previous comments in this discussion to see yours in chronological order.

Does that help?

REPLY

Yes. Thank you I'm a little beside my self at the moment.

REPLY

At the ER again over rib a spasms and thyroid. Had a good medical student give me a thorough exam. They referred me to a neurologist since my guy won’t take me till October. They also did a thyroid test and it’s almost where it’s supposed to be. Thank you Jesus finally. I also went to physic ward for a evaluation. I’m not crazy just a lot of anxiety over not getting help. Just keep on trucking I guess.

REPLY
@mfratt

At the ER again over rib a spasms and thyroid. Had a good medical student give me a thorough exam. They referred me to a neurologist since my guy won’t take me till October. They also did a thyroid test and it’s almost where it’s supposed to be. Thank you Jesus finally. I also went to physic ward for a evaluation. I’m not crazy just a lot of anxiety over not getting help. Just keep on trucking I guess.

Jump to this post

I’m glad you’re getting a thorough examination and care, mfratt. Keep us posted.

REPLY

Happy tonight. They didn’t keep me cause I wast crazy enough. Lol.

REPLY
Please sign in or register to post a reply.
  Request Appointment