How did you manage the pain side effects of Prolia?

Posted by pine4234 @pine4234, Oct 26, 2018

I had prolia injection a week ago. I've developed lower back pain and severe spasms. The spasms are so bad I can hardly get out of bed or even out of a chair. Is there anything I can do or take to alleviate this awful pain.

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@parrotqueen

I am so sorry you are going through this. There are other ways to deal with osteoporosis. I am using better nutrition, supplements, and I am also using a low-dose estrogen patch. My DEXA scan score was -5.7 and I was fracturing. That has stopped. I am taking boron (6 mg four times a day), Vitamins D3 and K2 (mk4, mk7), a little potassium, two kinds of magnesium (magnesium glycinate and magnesium L-threonate), and a little calcium (I try to get calcium from food - but I take one tablet a day to cover what I am not getting from food). I am no longer fracturing. I will be getting a DEXA scan as soon as the pandemic is over. There is a group on Facebook called Osteoporosis Natural Remedies where people post their before and after scores and what they did to improve. I wish you good luck.

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I am so sorry you are going through this. There are other ways to deal
> with osteoporosis. I am using better nutrition, supplements, and I am also
> using a low-dose estrogen patch. My DEXA scan score was -5.7 and I was
> fracturing. That has stopped. I am taking boron (6 mg four times a day),
> Vitamins D3 and K2 (mk4, mk7), a little potassium, two kinds of magnesium
> (magnesium glycinate and magnesium L-threonate), and a little calcium (I
> try to get calcium from food – but I take one tablet a day to cover what I
> am not getting from food). I am no longer fracturing. I will be getting a
> DEXA scan as soon as the pandemic is over. There is a group on Facebook
> called Osteoporosis Natural Remedies where people post their before and
> after scores and what they did to improve. I wish you good luck.

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@dublin18

My doctor put me on Prolia about five years ago and I was in agony almost from the moment I got the injection. I did not make the connection until three years later. I became an old woman overnight it seemed. Could not walk properly, had difficulty getting in and out of the car, holding on to railings. When I was renewing my prescription at the pharmacy the pharmacist asked how I was getting on and I told her about my pains and she told me it was a side effect. When I researched it I saw the difficulties others were having and I refused to take the injection. Again, overnight I was back to my nimble self. My sons could not believe the difference in me. However, six months ago my doctor suggested I try it again and I am back to being in pain - I have to lift my legs into the car and the skin on my face has become red, scratchy, itchy, sore and crusting. It is disgusting. I am definitely not going to take a second injection. I am miserable.

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Skin problems are listed as a common side effect of Prolia. Some women are reporting good results with a newer med called Evenity. Ask about all the other osteoporosis meds which might be better options for you (the bisphosphonates, Forteo).
I persist with Prolia (5 injections) eventhough it has made g.i. issues worse (the doctors say not the Prolia, but...) However, your experience has been terrible. Give yourself time to heal and hopefully you will once again be back to your "nimble self." BTW, is your doctor your family doc or is a specialist treating you? I see an endocrinologist.

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@dublin18

My doctor put me on Prolia about five years ago and I was in agony almost from the moment I got the injection. I did not make the connection until three years later. I became an old woman overnight it seemed. Could not walk properly, had difficulty getting in and out of the car, holding on to railings. When I was renewing my prescription at the pharmacy the pharmacist asked how I was getting on and I told her about my pains and she told me it was a side effect. When I researched it I saw the difficulties others were having and I refused to take the injection. Again, overnight I was back to my nimble self. My sons could not believe the difference in me. However, six months ago my doctor suggested I try it again and I am back to being in pain - I have to lift my legs into the car and the skin on my face has become red, scratchy, itchy, sore and crusting. It is disgusting. I am definitely not going to take a second injection. I am miserable.

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@dublin18 Welcome to Mayo Clinic Connect, a place to give and get support.

Members like @contentandwell @parrotqueen @lilypaws have discussed this topic in the past and may be able to offer support.

That sounds like terrible side effects. May I ask if there is an alternative treatment and/or if you have considered getting a second opinion at a specialty hospital?

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@JustinMcClanahan

Hello @pine4234, we have a lot of members discussing Prolia treatment in this discussion, https://connect.mayoclinic.org/discussion/prolix-treatment-for-osteoporosis/. This is a good discussion to accompany that discussion as this one could be focused on side-effects of Prolia. I would like to invite @ritafarmer, @mabel343, @kenzreggie, @bonnieh218, and @tessie to share any side-effects they, or a loved one, had or didn't have while taking Prolia.

@pine4234, have you spoke with your provider about this pain?

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@JustinMcClanahan, my doctor has started me on Prolia and I had my first injection last month. I didn’t have any side effects - not even soreness in my arm after the injection.

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@lioness

@sandnsun there are a lot of pros and cons on these meds one thing you can do to strengthen your bones is make sure you are getting enough Vit D3 ,strength exercise using body weight , magnesium and calcium all contribute to the bones but make sure you ask Dr first this will of course eliminate kidney stones You know your body better then Dr advocate for yourself ,ask questions .

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Prolia is advertised to death- the death of our bones or what's left of them. The outer bone structure is strengthened (as bone density tests will show), while inner bone structure is dying. I had terrible side effects on this "forever med". Got off of it; don't plan to "re-enlist".

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@billie3

Prolia is advertised to death- the death of our bones or what's left of them. The outer bone structure is strengthened (as bone density tests will show), while inner bone structure is dying. I had terrible side effects on this "forever med". Got off of it; don't plan to "re-enlist".

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@billie3 are you going on a "relay" drug now that you have stopped (to prevent spinal fractures)? What side effects did you experience? I have had five injections.

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@sue225

@billie3 are you going on a "relay" drug now that you have stopped (to prevent spinal fractures)? What side effects did you experience? I have had five injections.

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@migizii I understand a number of people I have read here relay their negative reactions to Prolia, but I would like to say that I have had a number of injections with no side effects. Each person needs to consider their specific journey in managing their osteoporosis in the best way they know. What works for one person may or may not work for another person. Let there be grace to all of you in your journeys.

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@migizii

@migizii I understand a number of people I have read here relay their negative reactions to Prolia, but I would like to say that I have had a number of injections with no side effects. Each person needs to consider their specific journey in managing their osteoporosis in the best way they know. What works for one person may or may not work for another person. Let there be grace to all of you in your journeys.

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I have also not had any side effects. I had a very large increase in bone density after 6 years that disappeared two years later. My doctor is still scratching her head over that one.

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@migizii

@migizii I understand a number of people I have read here relay their negative reactions to Prolia, but I would like to say that I have had a number of injections with no side effects. Each person needs to consider their specific journey in managing their osteoporosis in the best way they know. What works for one person may or may not work for another person. Let there be grace to all of you in your journeys.

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@migizii always good to hear from someone who has no side effects. Has your bone density improved? I have had improvement in both the hip and the spine. Next injection in July.

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@dublin18

I am so sorry you are going through this. There are other ways to deal
> with osteoporosis. I am using better nutrition, supplements, and I am also
> using a low-dose estrogen patch. My DEXA scan score was -5.7 and I was
> fracturing. That has stopped. I am taking boron (6 mg four times a day),
> Vitamins D3 and K2 (mk4, mk7), a little potassium, two kinds of magnesium
> (magnesium glycinate and magnesium L-threonate), and a little calcium (I
> try to get calcium from food – but I take one tablet a day to cover what I
> am not getting from food). I am no longer fracturing. I will be getting a
> DEXA scan as soon as the pandemic is over. There is a group on Facebook
> called Osteoporosis Natural Remedies where people post their before and
> after scores and what they did to improve. I wish you good luck.

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Hello dublin18 and @parrotqueen, I am Sunnyflower. I am also very sorry to hear about what you are going through dublin18. I too have taken the advice of parrotqueen but won't have another DEXA scan for about 1.5 years. I also have been taking Boron for quite some time now but only 3mg., twice daily w/ food. I've read you can safely have up to 20mg / day so I need to increase my dose. @parrotqueen, I would like to know why the two different types of magnesium? My Naturopathic doctor recommended I take Magnesium Glycinate which I have been forever. Could you please expound just a bit on why you also take the magnesium
L-threonate? Thanks so much! I've learned from you, others on the blog and my nutritionist, so much! One thing is that for vitamin D to do it's work helping us to absorb calcium, that it needs to have some fat w/ it. I didn't realize it but I wasn't eating any fat with that meal and very little in a day, not by intent, just didn't realize. So now I have 1/4 of an avacado w/ my yogurt, D and supplements. I've also added spinach to my diet as I wasn't eating any dark leafy greens. I have joined the Facebook group Osteoporosis Natural Remedies thanks to you parrotqueen. I am very grateful for all I've learned from you and others. Many blessings to both and all, Warmest wishes as well, Sunnyflower

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