How did you manage the pain side effects of Prolia?

Posted by pine4234 @pine4234, Oct 26, 2018

I had prolia injection a week ago. I've developed lower back pain and severe spasms. The spasms are so bad I can hardly get out of bed or even out of a chair. Is there anything I can do or take to alleviate this awful pain.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@migizii

@parrotqueen. I never took the amount of supplements you do. However, I was very physically active at the time; eat gluten free; and supplemented with vitamins d, c, calcium, daily vit, omegas, magnesium, and biotin. The bottom dropped out on my dexa scores by the next year. I was 48.

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So you did not take Vitamin K2 (mk4, mk7) or boron? Both of those have been shown to improve bone density,..

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@parrotqueen

So you did not take Vitamin K2 (mk4, mk7) or boron? Both of those have been shown to improve bone density,..

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I didn’t take them at the beginning of my diagnosis, but have gradually added them.....

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@parrotqueen

I take magnesium L-threonate for better brain function. It's just 144 mg a day. Then I take 400 mg of magnesium glycinate. Yes vitamin D3 needs a bit of fat - I eat an entire avocado every night and take my vitamin D3, K2 (mk4, mk7), calcium, boron, magnesium, and just a small bit of potassium at that time. I take 6 mg of boron at every meal and before bed. I've been doing a ton of research and there are MANY people who take 120 mg of boron daily. I am not going to go that high, but I am not so concerned with going over 20 mg a day now. Anything over 20 mg has the side effect of maximizing the absorption of any estrogen. Isn't that Facebook group interesting, Sunnyflower? Sadly, I left the group because they tried to saddle me with the administrator role - they said there were several of us and there wouldn't be much to do. hahahaha, I was the only one and OMG the amount of work that was involved was mind blowing. I need to figure a way to get back into the group. I tried getting someone else to do the moderating, but nobody would respond to my pleas for help - so I just left the group. I could see no other way out.

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Hello dublin18 and @parrotqueen, yes, the osteoporosis Fb site is great. I haven't spent enough time there. I think I have over 500 emails from our Neuropathy group so I am so far behind that I can't possibly catch up. I fear someone will go unanswered 🥺. Wow, that's a lot more Boron than we thought we could take safely!! Was there a lot of people who are taking 120mg. daily? Have their scans improved? Have they stopped fracturing? There are some in this group that believe strontium is good. I've read your persuasion on it. I've added baby spinach to my diet almost daily and am eating more green leafys. So wish I had learned all the things I 've learned from Connect family before losing so much weight on such a low calorie diet! GGggrrr! 😠

Hello dublin18, are you from or in Dublin, Ireland? If I haven't already said it, WELCOME to the group!! Hope you find as much support, encouragement, information, and inspiration that I have found here.

Warmest wishes, Sunnyflower 🌸🌹😊

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@sunnyflower

Hello dublin18 and @parrotqueen, yes, the osteoporosis Fb site is great. I haven't spent enough time there. I think I have over 500 emails from our Neuropathy group so I am so far behind that I can't possibly catch up. I fear someone will go unanswered 🥺. Wow, that's a lot more Boron than we thought we could take safely!! Was there a lot of people who are taking 120mg. daily? Have their scans improved? Have they stopped fracturing? There are some in this group that believe strontium is good. I've read your persuasion on it. I've added baby spinach to my diet almost daily and am eating more green leafys. So wish I had learned all the things I 've learned from Connect family before losing so much weight on such a low calorie diet! GGggrrr! 😠

Hello dublin18, are you from or in Dublin, Ireland? If I haven't already said it, WELCOME to the group!! Hope you find as much support, encouragement, information, and inspiration that I have found here.

Warmest wishes, Sunnyflower 🌸🌹😊

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@sunnyflower Hi I've been taking Boron through what parrotqueen said but only take 12 mg it seems to be enough for me I've been on this and the other supplements and my hip doesn't hurt at all I haven't had a dexascan yet but feel better as well as it helping with O.A. I think just experiment to see what AMT works for you

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@lioness

@sunnyflower Hi I've been taking Boron through what parrotqueen said but only take 12 mg it seems to be enough for me I've been on this and the other supplements and my hip doesn't hurt at all I haven't had a dexascan yet but feel better as well as it helping with O.A. I think just experiment to see what AMT works for you

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Hello. Good to know! I just increased my dose to 6mg (3mg twice daily). I will increase now!! I 've heard people say it helps pain which I desperately need!! Thank you! Warmest wishes, Sunnyflower

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@lioness

@sunnyflower Hope it helps you as it did me

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Hello @lioness! Long time no talk! I am not nor do I intend to take any osteoporosis medications. I think you're mistaking me for someone else. Good to hear from you! Warmest wishes, Sunnyflower 😊

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@parrotqueen

Did you have bone cancer? I see that Prolia is sometimes prescribed for people with bone cancer. If you DO have bone cancer, please look into treatments that use turmeric. I used to get my IVIG treatments with a woman who had Stage 4 bone cancer - and she told me she owes her life to turmeric. I'm pretty sure MD Anderson uses turmeric as a treatment for bone cancer. I live in the Berkeley, CA area - and that's where she got her treatment. Maybe Mayo has a turmeric treatment for bone cancer. I wish I knew more about it so I could tell you. I have taken turmeric for an autoimmune skin disease that was killing me - turmeric stopped it cold. I get my turmeric from Starwest-Botanicals.com; I like their turmeric best because it is organic, fresh and potent. But I'm sure you will need an oncologist to tell you what to do. it's worth looking into. BTW, she got her cancer to stop - there is HOPE and you must never lose sight of it!

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@parrotqueen how much turmeric do you take per day? I live in Toronto and I don’t think we get the brand you take, here. I just started on Prolia in January (next dose in July). My doctor recommended it to prevent fractures because of my age (75 this year).

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@rashida

@parrotqueen how much turmeric do you take per day? I live in Toronto and I don’t think we get the brand you take, here. I just started on Prolia in January (next dose in July). My doctor recommended it to prevent fractures because of my age (75 this year).

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@rashida Just butting in to say I just started Curcumin Ultra by AOR, after researching extensively. I'm in Canada too. I bought the 60 tablet bottle at our local Healthyway Foods, for about $60.00. Pricey, but we get kinda' desperate.
My G.I. approves, because it's good for inflammation. Turmeric is a blood thinner, and I'm on medication for that, so have to be careful. I only take one capsule a day.

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@artist01

@rashida Just butting in to say I just started Curcumin Ultra by AOR, after researching extensively. I'm in Canada too. I bought the 60 tablet bottle at our local Healthyway Foods, for about $60.00. Pricey, but we get kinda' desperate.
My G.I. approves, because it's good for inflammation. Turmeric is a blood thinner, and I'm on medication for that, so have to be careful. I only take one capsule a day.

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@artist01 that price tag is a bit steep for me, even at one capsule a day ... but perhaps I can go to our Healthy Planet here in Toronto and ask for an affordable alternate brand ...? Is AOR the name of the company that makes it? Where in Canada are you, if you don’t mind my asking?

I do remember taking curcumin capsules a few years ago for my fibromyalgia pain but stopped when I found they had no effect after taking them for six months.

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