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How to manage SIBO symptoms?
My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?
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Thank you! I fear this antibiotic is not working well. Ill have to wait it out until the end and see my GI. I did plan to add in the lowfod map or carnivore diet with herbals and probiotic.
I'm waiting for that rifaximin to get approved. I was told to take antibiotics, then after those start probiotics for a month along with the low FODMAP diet. My neighbor had it and that was her recommendation. GI doctor only said antibiotics. Do you know what kind of SIBO you have? Mine is the hydrogen- not methane. Ive read they are treated differently.
My GI nurse didn't even check to see if xifaxan was covered so they put me on amoxcicilin- clav. This isn't the best for SIBO. I see him Thursday and if I'm not feeling better, demanding they figure it out. They left me hanging here with this ( I suspected it) since last May. In 2 months I lost 30lbs from pain and they just said I guess IBS after a good Endoscopy. I did read eat normal on antibiotics then introduce the diet etc.
I have hydrogen, but they didn't even test for methane so I don't know if I have both.
LYNX
I had a nutritionist recommend it to me. It did clean me out, think I saw things I digested in the 3rd grade!
I finally paid to see a a naturopathic MD. Regular doctors just know how to prescribe meds that just make things worse. They don't usually take insurance but they study nutrition and don't put you on the very meds that caused the problems in the first place! I've been dealing with stomach issues since the 90's. It's strictly foods that cause the issues.
From everything I've read it's antibiotics that caused this problem in the first place!! I've even read that people that went on antibiotics as children are way more susceptible to stomach issues. Antibiotics destroy good and bad bacteria so why a doctor would put you on the very thing that causes SIBO in the first place is beyond me!
Huh? I was just asking what kind of surgery because I've had 2 on my stomach. Just wondering if the SIBO was caused from that.
I had a LYNX devise on my esophagus. It's a titanium magnetic ring that stays closed and keeps acid from entering my esophagus. I had severe acid reflux and SIBO can cause that since it forces acid and gas up the esophagus and causes erosion. I had this done at Mayo in 2014. Also Hernia at the same time. I have to watch everything I eat! Right now I'm doing carnivore diet seemed to feel better after 3 weeks so tried a salad last night and still in pain!!
I strongly recommend joining this SIBO support group on facebook: "SIBO SOS community" (I'm not allowed to post URLS here, sorry). The group files have TONS of resources (testing, treatment, diet, lectures, etc.). Whenever you post a question, there'll be answers. There are also info on alternative herbal antimicrobials for treating SIBO for those who cannot afford Xifaxan.
In the group files there's a list of naturopathic doctors specialized in SIBO. Honestly they know more than the main stream MDs about SIBO. SIBO is a secondary condition, which has a underlying cause (like food poisoning, dysbiosis, low stomach acid...). You have to identify and treat the root cause to prevent SIBO from coming back.
Also this website, developed by SIBO expert Allison Siebecker, is super helpful as well:siboinfo.com
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