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Shrinking Lung Syndrome and Autoimmune Disease like Lupus
Lung Health | Last Active: Oct 29, 2022 | Replies (4)Comment receiving replies
Hello--I was Diagnosed with LUPUS AND Shrinking Lung Disorder AND probablse Rhabdomyltis last ,month-_ ive hsad the symptoms for years yet no on knew what I had-- so i SELF Diagnosed 2 of 3 of thes & iht was confirmed last month (2o of 3)(Rhabdo we are still checki MY question what medications cn be used for LUPUS-SHRINKING LUNG & then Rhabdo. I was prescribed PREDNISONE 10mg daily & "HYDROCHLOROQUINE" for LUPUSc
but HYDRO contains Sulfate & I am allergic to Sulfate=I am "ity already 'itching" using it. Can you reccomend an alternative non Sulfate drug for
LUPUS with Shrinking Lung ? & what meds IF ANY treat RHABDO ??? Im not finding any drugs for leaking muscle-is the
treatment CHELATION ?? My muscle enzymes are steady around 420. I got rhabdo from taking LIPITOR..I no longer take it-but itsdy
already done its damage.
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Wish I had some Ideas for you… I know how frustrating it is to have no answers or treatment plans. My docs have no clue for shrinking lung, aside from “getting the autoimmune process in check”. I had tried theophylline because some studies showed it strengthened the diaphragm, but I didn’t notice any real change, and then it has increased risk of toxicity with methotrexate so I had to drop it.., I have also been on 16mg medrol for a long time as well. Best wishes!