Shingrix and peripheral neuropathy

I have been on Vit D3 and added B12 31/2 months ago. The numbness and sleep issues feel quite static now. The medications help with my sleep needs.

@iceblue I don't know of any successful cases of nerve damage being reverse from what I've read but there seems to be some promise in a new drug treatment with pirenzepine.

Study finds drugs that can reverse nerve damage (Jan 2017)
-- https://www.sbrc.ca/2017/01/study-finds-drugs-that-can-reverse-nerve-damage/

There is also a recent new discussion on the topic here on Connect that you may want to join.

> Groups > Neuropathy > Anyone Heard of Pirenzepine for Small Fiber Neuropathy?
-- https://connect.mayoclinic.org/discussion/anyone-heard-of-pirenzepine-for-small-fiber-neuropathy/

Aprox 2 weeks after receiving my first Shingrix shot (May 11, 2018) I started having burning & tingling in my legs ( mostly on the right side) over the next 1 1/2 years the burning and tingling has also spread to my feet and hands ( peripheral Neurapathy). Currently am taking Gabapentin for pain.
How are you currently doing?

Hello @jlab952, welcome to Connect. I wasn't sure who your question was for but I'm assuming it was for @512tr911 who had the first Shingrix shot. I typed the members @ username in the message to make sure they receive an email notification for your post and question. It sounds like you had the same side effect?

This was actually meant for Joannerhodes

@jlab952 -- to make sure the member receives an email notification for your post just include the @ sign along with the name - like @joannerhodes. Here is the link to your post addressed to her so that when she receives this email notification all she has to do is click the View & Reply button on the email and it will take her to this post and she can click on the link below to see your post.

Thank you

My husband has developed peripheral neuropathy affecting his feet in the last half year, and when I looked up possible causes outside of diabetes (since he is not diabetic and quite healthy with a very healthy lifestyle), I saw infectious causes including viruses like the one which causes shingles. That piece of information immediately made me line up my husband’s receiving the 2-vaccine Shingrix vaccine series with the onset of his peripheral neuropathy...tingling in his feet after the first one and now after the second one the symptoms of numbness and tingling have worsened. How is your neuropathy now? Has it lessened with the passage of time or are you having to manage it with prescriptions or therapies?

Jim- I just read your post to my 65 year old husband who also is not diabetic and has developed peripheral neuropathy in both of his feet. Just tonight, I was researching other causes and when I saw virus infections like that which causes shingles, I immediately lined up his Shingrix vaccines to his new onset peripheral neuropathy. We agree that the timing is indeed suspect...have you had any improvement since you posted your comments?

Never had the vaccine, but my PN came on sudden and was is very intense. This happened following extreme internal pain in my abdomen which ended up being herpetic neuralgia followed a few weeks later by a second shingles outbreak. My doctor says it’s diabetes related which seems reasonable based on my sugars and length of time being diabetic, however I personally suspect shingles as being the culprit. Why? Because this was so sudden and so intense where it involved my hands fingers legs feet all at once that this had to have been viral, in my opinion. Anyways the vaccine surely has a small amount of live shingle virus and I think it is possible to cause PN.