4 days after my 2nd Shingrix vaccination, I suddenly developed intense peripheral neuropathy in both feet…for the first time in my life…anyone else?
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I have been on Vit D3 and added B12 31/2 months ago. The numbness and sleep issues feel quite static now. The medications help with my sleep needs.
Just to ensure I understand what you are saying: Did you think that if the numbness was from a Vitamin B deficiency that the numbness could be reversed when the deficiency was addressed? If so – are your Vitamin B levels back to normal?
To the broader audience: Regardless of the cause, can nerve damage be reversed? My understanding is that it cannot but I may be wrong.
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@iceblue I don't know of any successful cases of nerve damage being reverse from what I've read but there seems to be some promise in a new drug treatment with pirenzepine.
Study finds drugs that can reverse nerve damage (Jan 2017)
There is also a recent new discussion on the topic here on Connect that you may want to join.
> Groups > Neuropathy > Anyone Heard of Pirenzepine for Small Fiber Neuropathy?
Aprox 2 weeks after receiving my first Shingrix shot (May 11, 2018) I started having burning & tingling in my legs ( mostly on the right side) over the next 1 1/2 years the burning and tingling has also spread to my feet and hands ( peripheral Neurapathy). Currently am taking Gabapentin for pain.
How are you currently doing?
Hello @jlab952, welcome to Connect. I wasn't sure who your question was for but I'm assuming it was for @512tr911 who had the first Shingrix shot. I typed the members @ username in the message to make sure they receive an email notification for your post and question. It sounds like you had the same side effect?
This was actually meant for Joannerhodes
@jlab952 — to make sure the member receives an email notification for your post just include the @ sign along with the name – like @joannerhodes. Here is the link to your post addressed to her so that when she receives this email notification all she has to do is click the View & Reply button on the email and it will take her to this post and she can click on the link below to see your post.
My husband has developed peripheral neuropathy affecting his feet in the last half year, and when I looked up possible causes outside of diabetes (since he is not diabetic and quite healthy with a very healthy lifestyle), I saw infectious causes including viruses like the one which causes shingles. That piece of information immediately made me line up my husband’s receiving the 2-vaccine Shingrix vaccine series with the onset of his peripheral neuropathy…tingling in his feet after the first one and now after the second one the symptoms of numbness and tingling have worsened. How is your neuropathy now? Has it lessened with the passage of time or are you having to manage it with prescriptions or therapies?
I received the 2nd Shingrex dose on February 12, 2019. I am a 62 year old male and do not have diabetes. Two nights later in bed, I experienced intense itching on my legs, feet, arms and hands. A few nights later, I experienced intense "electrical tingling" throughout my body along with nausea and lower abdominal pain. I don't know how else to describe this awful sensation. By morning, it was gone. This quickly evolved into regular daily sensations of burning feet, itching, tingling, or pin pricks of pain in these same locations. I became so alarmed that I made an appt. at the Neurological Dept at the University of Michigan. They listened to my story, did some blood tests, and gave me an MRI of my neck. Their vague diagnosis was either cervical arthritis or inflammation brought on by exercising. They offered no explanation for the leg and foot symptoms. Their recommendation is to start taking Gabapentin and get something called cervical traction from a physical therapist. I did mention to them that I had recently gotten the 2nd Shingrix dose but at that time I had not yet realized that the symptoms started only two days later and they had no reaction in any case. (We only realized this fact last night when we looked at the date of the vaccination). The only side-effect I had from the first dose was an extremely sore arm. It has been just over three months now and my feet are burning as I write this. There are symptoms every day with some days better than others but this has taken the joy out of my life.I will be seeing my PCP in two days. My greatest fear is that this may never go away and i am really just p****d off about this. I realize that it is probably impossible to prove that my symptoms are due to Shingrix but the timing is certainly suspect. I wish I had never heard of Shingrix. – Jim in Michigan
Jim- I just read your post to my 65 year old husband who also is not diabetic and has developed peripheral neuropathy in both of his feet. Just tonight, I was researching other causes and when I saw virus infections like that which causes shingles, I immediately lined up his Shingrix vaccines to his new onset peripheral neuropathy. We agree that the timing is indeed suspect…have you had any improvement since you posted your comments?
Never had the vaccine, but my PN came on sudden and was is very intense. This happened following extreme internal pain in my abdomen which ended up being herpetic neuralgia followed a few weeks later by a second shingles outbreak. My doctor says it’s diabetes related which seems reasonable based on my sugars and length of time being diabetic, however I personally suspect shingles as being the culprit. Why? Because this was so sudden and so intense where it involved my hands fingers legs feet all at once that this had to have been viral, in my opinion. Anyways the vaccine surely has a small amount of live shingle virus and I think it is possible to cause PN.
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