Shingrix and peripheral neuropathy

Posted by joannerhodes @joannerhodes, Feb 1, 2019

4 days after my 2nd Shingrix vaccination, I suddenly developed intense peripheral neuropathy in both feet…for the first time in my life…anyone else?

@contentandwell

@lioness I generally deal with the nurse and she has told me that are not sure yet if it’s ok for post-transplant patients but she will let me know when they do decide. I just thought maybe someone else may have more info.
JK

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@contentandwell Since its a non living vaccine what good will it Do you need the virus to fight virus in your system Shingles developed from the Heroes Simplex virus same one that causes chickenpox if you,he back chickenpox has a child the virus is there .I wonder if it's just a money maker for drug company Thoroughly investigate .

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@lioness

@contentandwell Since its a non living vaccine what good will it Do you need the virus to fight virus in your system Shingles developed from the Heroes Simplex virus same one that causes chickenpox if you,he back chickenpox has a child the virus is there .I wonder if it's just a money maker for drug company Thoroughly investigate .

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@lioness all of the reports say that the shringix vaccine is more effective than zostavax vaccine. Apparently a vaccine does not need to be living to be effective. Flu shots are always non living.

@rosemarya this is what I wondered about, how other transplant centers are handling this. I will need to contact MGH and see if they have updated their thoughts on this. Thanks.
JK

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@contentandwell

@lioness all of the reports say that the shringix vaccine is more effective than zostavax vaccine. Apparently a vaccine does not need to be living to be effective. Flu shots are always non living.

@rosemarya this is what I wondered about, how other transplant centers are handling this. I will need to contact MGH and see if they have updated their thoughts on this. Thanks.
JK

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@contentandwell Interesting I'm going to my Dr. this week I,ll check with her and see what she says also Thanks

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I started getting numbness in my toes shortly after my 2nd shingrex vaccine. Has not gone away so far after 4 months

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See your doctor and let him know. Also, inform the pharmacy if you had the injection there as well as Smith Kline Glaxco, the manufacturers of Shingrix. My finger numbness subsided in about a week, very gradually each day, but it was really alarming. Also, it was on the same side of the body as the injection was given. It is possible whomever gave you the injection nicked a nerve, but at this point in time it should have subsided.

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Would love more input about complications or elevation of neuropathic symptoms after getting the Shingrex shot. I'd like to get it, but have (so far, fingers crossed!) mild neuropathy. Being as both shingles amd neuropathy are nerve disorders, I'm more than a bit wary of doing anything that may target nerve issues.
Anyone have any real insight on this?

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@prijic

I started getting numbness in my toes shortly after my 2nd shingrex vaccine. Has not gone away so far after 4 months

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Ugh! Sorry! Hope it subsides for you!
Makes ne nervous about getting the shot.

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How are you doing ? This makes me so nervous, so have delayed getting the shot.

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@chicosalt

Ugh! Sorry! Hope it subsides for you!
Makes ne nervous about getting the shot.

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@chicosalt I've been reading all post on the new shingle shot If you,ve had chicken pox you have the herpes zoster in you this is the virus for shingles I'm concerned about getting the shot also I had the one that was gives 8 yrs ago but have to think about it Glad I read these post thanks Linda

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I received the 2nd Shingrex dose on February 12, 2019. I am a 62 year old male and do not have diabetes. Two nights later in bed, I experienced intense itching on my legs, feet, arms and hands. A few nights later, I experienced intense "electrical tingling" throughout my body along with nausea and lower abdominal pain. I don't know how else to describe this awful sensation. By morning, it was gone. This quickly evolved into regular daily sensations of burning feet, itching, tingling, or pin pricks of pain in these same locations. I became so alarmed that I made an appt. at the Neurological Dept at the University of Michigan. They listened to my story, did some blood tests, and gave me an MRI of my neck. Their vague diagnosis was either cervical arthritis or inflammation brought on by exercising. They offered no explanation for the leg and foot symptoms. Their recommendation is to start taking Gabapentin and get something called cervical traction from a physical therapist. I did mention to them that I had recently gotten the 2nd Shingrix dose but at that time I had not yet realized that the symptoms started only two days later and they had no reaction in any case. (We only realized this fact last night when we looked at the date of the vaccination). The only side-effect I had from the first dose was an extremely sore arm. It has been just over three months now and my feet are burning as I write this. There are symptoms every day with some days better than others but this has taken the joy out of my life.I will be seeing my PCP in two days. My greatest fear is that this may never go away and i am really just p****d off about this. I realize that it is probably impossible to prove that my symptoms are due to Shingrix but the timing is certainly suspect. I wish I had never heard of Shingrix. – Jim in Michigan

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Well, good luck getting the doctors who are the drug pushers for the pharmaceutical companies to admit that a vaccine may be the cause of your problems. Just google it and you'll quickly discover what a vast conspiracy this is. I had Levaquin, which JNJ is paying for but not for me, and the shingles vaccine. Doctors quickly disavow, at least my doctors quickly disavowed, there could be any connection between vaccines and a whole range of chronic issues.
https://www.lewrockwell.com/2019/05/no_author/new-study-finds-that-measles-outbreaks-are-occurring-in-many-vaccinated-individuals/
https://www.lewrockwell.com/2019/05/no_author/watchrobert-f-kennedy-shares-bombshell-information-about-the-gardasil-vaccine/

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@19jimmy57

I received the 2nd Shingrex dose on February 12, 2019. I am a 62 year old male and do not have diabetes. Two nights later in bed, I experienced intense itching on my legs, feet, arms and hands. A few nights later, I experienced intense "electrical tingling" throughout my body along with nausea and lower abdominal pain. I don't know how else to describe this awful sensation. By morning, it was gone. This quickly evolved into regular daily sensations of burning feet, itching, tingling, or pin pricks of pain in these same locations. I became so alarmed that I made an appt. at the Neurological Dept at the University of Michigan. They listened to my story, did some blood tests, and gave me an MRI of my neck. Their vague diagnosis was either cervical arthritis or inflammation brought on by exercising. They offered no explanation for the leg and foot symptoms. Their recommendation is to start taking Gabapentin and get something called cervical traction from a physical therapist. I did mention to them that I had recently gotten the 2nd Shingrix dose but at that time I had not yet realized that the symptoms started only two days later and they had no reaction in any case. (We only realized this fact last night when we looked at the date of the vaccination). The only side-effect I had from the first dose was an extremely sore arm. It has been just over three months now and my feet are burning as I write this. There are symptoms every day with some days better than others but this has taken the joy out of my life.I will be seeing my PCP in two days. My greatest fear is that this may never go away and i am really just p****d off about this. I realize that it is probably impossible to prove that my symptoms are due to Shingrix but the timing is certainly suspect. I wish I had never heard of Shingrix. – Jim in Michigan

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Sorry to hear this, Jim. I finally got to ask my neurologist about any potential connection between Shingrex and neuropathy; with a good explanation than I can't totally remember and/or provide. But basically he said that shingles is caused by a virus and neuropathy is a nerve disorder- totally different mechanisms at play- and that I should get the shots.
Still wary. Your story makes me even more nervous..
Thanks for sharing. Hope your burning settles!
Lori in CA

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