Shingrix and peripheral neuropathy

Posted by joannerhodes @joannerhodes, Feb 1, 2019

4 days after my 2nd Shingrix vaccination, I suddenly developed intense peripheral neuropathy in both feet...for the first time in my life...anyone else?

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@lioness

@charann2000 My Dr gave me the original vaccine Zostavax he new I had open heart surgery in 1996 and have fibromyalgia but still got it I had no side effects but I don't know about transplants Ask your Dr that did the transplant @contentandwell

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@lioness I generally deal with the nurse and she has told me that are not sure yet if it’s ok for post-transplant patients but she will let me know when they do decide. I just thought maybe someone else may have more info.
JK

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Shingles vaccine: Should I get it?

https://www.mayoclinic.org/diseases-conditions/shingles/expert-answers/shingles-vaccine/faq-20057859

I am a transplant recipient. I was given the Zostavax vacccination before my transplant in early 2009.
I had the 1st dose of the Shingrix vaccine in May 2018. So far I have not been able to get the 2nd dose because it has not been available. I, along with many others, are on a list and waiting to be called by my local pharmacy when it is available.

It was the Infectious Disease Dept thru Transplant Dept that recommended it for me. The nurse relayed the information to me.

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@contentandwell

@lioness I generally deal with the nurse and she has told me that are not sure yet if it’s ok for post-transplant patients but she will let me know when they do decide. I just thought maybe someone else may have more info.
JK

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@contentandwell Since its a non living vaccine what good will it Do you need the virus to fight virus in your system Shingles developed from the Heroes Simplex virus same one that causes chickenpox if you,he back chickenpox has a child the virus is there .I wonder if it's just a money maker for drug company Thoroughly investigate .

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@lioness

@contentandwell Since its a non living vaccine what good will it Do you need the virus to fight virus in your system Shingles developed from the Heroes Simplex virus same one that causes chickenpox if you,he back chickenpox has a child the virus is there .I wonder if it's just a money maker for drug company Thoroughly investigate .

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@lioness all of the reports say that the shringix vaccine is more effective than zostavax vaccine. Apparently a vaccine does not need to be living to be effective. Flu shots are always non living.

@rosemarya this is what I wondered about, how other transplant centers are handling this. I will need to contact MGH and see if they have updated their thoughts on this. Thanks.
JK

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@contentandwell

@lioness all of the reports say that the shringix vaccine is more effective than zostavax vaccine. Apparently a vaccine does not need to be living to be effective. Flu shots are always non living.

@rosemarya this is what I wondered about, how other transplant centers are handling this. I will need to contact MGH and see if they have updated their thoughts on this. Thanks.
JK

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@contentandwell Interesting I'm going to my Dr. this week I,ll check with her and see what she says also Thanks

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I started getting numbness in my toes shortly after my 2nd shingrex vaccine. Has not gone away so far after 4 months

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See your doctor and let him know. Also, inform the pharmacy if you had the injection there as well as Smith Kline Glaxco, the manufacturers of Shingrix. My finger numbness subsided in about a week, very gradually each day, but it was really alarming. Also, it was on the same side of the body as the injection was given. It is possible whomever gave you the injection nicked a nerve, but at this point in time it should have subsided.

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Would love more input about complications or elevation of neuropathic symptoms after getting the Shingrex shot. I'd like to get it, but have (so far, fingers crossed!) mild neuropathy. Being as both shingles amd neuropathy are nerve disorders, I'm more than a bit wary of doing anything that may target nerve issues.
Anyone have any real insight on this?

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@prijic

I started getting numbness in my toes shortly after my 2nd shingrex vaccine. Has not gone away so far after 4 months

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Ugh! Sorry! Hope it subsides for you!
Makes ne nervous about getting the shot.

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How are you doing ? This makes me so nervous, so have delayed getting the shot.

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