Shingrix and peripheral neuropathy

Posted by joannerhodes @joannerhodes, Feb 1, 2019

4 days after my 2nd Shingrix vaccination, I suddenly developed intense peripheral neuropathy in both feet…for the first time in my life…anyone else?

@jesfactsmon

@lorirenee1 @bustrbrwn22
7-8 to Gone! Should be the title of a movie, starring the Curly Haired Cuties. Am going to the fridge to get a beer to celebrate the good news. 🍺 Cheers!

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@jesfactsmon Hi Hank, Was the beer good? I love a good glass of beer, but I am particular about what I choose. Much more of a wine drinker. Yes, Kratom takes my pain away for about 3 to 4 hours. So cheers! Lori

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@ken82

@lorirenee1 Did you have Chicken Pox as a child? If you did, do you know anyone who had shingles in later life? It is not good.
Remember that the Flu in 1918 killed 675,000 in the United States..About 12,000 – 56,000 people have died in the US each year since 2010.
Did your parents see to it that you had the polio vaccination? Not knowing your age but to have lived through the summers in the 1950s the threat of Polio was really lifestyle changing.
Have you ever reported your medication symptoms to your prescribing Doctor? Get credible information from reliable sources. Mayo Clinic Doctors and publications are credible. Facebook medical information is not reliable. Don't bet your life on it..
I am 83, and have seen too much needless sickness because of a hunch or what "someone said." Good Luck.

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@ken82 Yes, Ken, I had an outrageous case of chicken pox at 21 years old. I was student teaching and my 4th graders all went down with the pox. I was the last to go, with a raging fever, pox everywhere. Terrible time of it. I am 68 years old, have had all my vaccinations, but somehow, I just have had such weird experiences with meds that I tend to leave well enough alone. I might be nuts, but so be it. Just scared to death of most current vaccinations, and I have heard horror stories especially of the shingles vaccination causing neuropathy. So I will take a pass. I know this may be wrong, but I just don't want to have a vaccination. Covid vaccination I must take, if ever available. Thanks for writing, Lori Renee

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@jeffrapp

@lois6524, the bug that causes shingles is chickenpox, not smallpox (thank goodness).
@oannerhodes, I don't believe PN is a known adverse reaction to shingles vaccine, and if it is, it is extremely rare. I am aware of at least one lawsuit that claimed it was, there may be others.

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Hi Jeff, are you saying that you are aware of at least one lawsuit against Shingrix? or the previous Zostavax?? Don

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@dont

Thank you so much Sunnyflower.

Be advised that my burning sensation did not start until about a month after the 2nd injection. I am unaware of any class action lawsuits. I’m in the early stage of investing all of this. I want to wait until I speak to the neurologist about it first. Don

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Hi Don, understood. I hope and pray the two are not related b/c shingles is excruciating! Warm regards, Sunnyflower

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@lorirenee1

@ken82 Yes, Ken, I had an outrageous case of chicken pox at 21 years old. I was student teaching and my 4th graders all went down with the pox. I was the last to go, with a raging fever, pox everywhere. Terrible time of it. I am 68 years old, have had all my vaccinations, but somehow, I just have had such weird experiences with meds that I tend to leave well enough alone. I might be nuts, but so be it. Just scared to death of most current vaccinations, and I have heard horror stories especially of the shingles vaccination causing neuropathy. So I will take a pass. I know this may be wrong, but I just don't want to have a vaccination. Covid vaccination I must take, if ever available. Thanks for writing, Lori Renee

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Hi Lori Renee! It is my understanding that the influenza and Shingles Shingrix vaccines are both dead aka inactivated viruses, That is why I was able to get both on the same day. No consequences thankfully! Hope you are better than tolerable, Sunnyflower @ken82, @dont, @jeffrapp, @lois6524, @bustrbrwn22

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@jimhd

@dont @sunnyflower @ken82 @magnum52
I have had the first shingles vaccine with no sign of a problem. I need to get the 2nd one done. If it protects me from shingles, I'm all for it. But to have adverse reactions to the shot makes me want to give it more thought. I have had sfpn long before shingles shots. Are there studies that have looked at the risks and the possible connection to pn?

Jim

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Hi Jim, I don't know the answer to your question however I do know that both this year's influenza and the Shingles Shingrix vaccines are inactivate aka dead viruses which is why I was able to get both on the same day without any consequences. Shingles is an excruciating virus that one doesn't want to experience. I haven't ever heard of a relationship to neuropathy so I don't know. Hope all is well with you and warmest regards, Sunnyflower @magnum52, @ken82, @jesfactsmon

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@jonnyd

I also developed PN 4 days after receiving the second Shingrix shot, but I also got the flu shot at the same time.

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Hi jonnyd, I'm so sorry to hear this! PN is awful! I have it pretty bad myself. As said prior, both the Shingles Shingrix and Influenza vaccines are dead viruses. Who knows where the PN comes from, Ug. Warmest regards, Sunnyflower

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@memomsloan

Just to clarify some points. I am NOT an anti-vacser but rather an RN with 57 yrs in the profession. I did not make this decision capriciously. What I would like is information about how to find a site for Class Action Lawsuit or Tort for those who have experienced unusual and challenging outcomes from Shingrix. I know many who have had NO side effects from Shingrix. I also know I am putting myself at some risk of Shingles, which I had in 2011 following the first shingles shot in 2009. I had a mild case then. Shingrix can have a nerve root influence. Also, Chicken pox has a nerve root link. My doctors here in Albuquerque, NM have not been able to give me guidance about a Class Action Lawsuit of Tort.

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Helloo memomsloan, since both the Shingles Shingrix and influenza vaccines are inactivate aka dead viruses, do you supposed it's the medium they are in? I got both my 2nd Shingrix and influenza vaccines at the same time this year. Thankfully no unwanted side-effects. Warmest regards, Sunnyflower

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@lorirenee1

@bustrbrwn22 @jesfactsmon Hi, Hank and Jen, Just to let you guys know, I would never get a shingles vaccine, nor have I ever even had a flu shot. I get weird side effects from meds in general, and have always been leary of vaccinations. However, I will definitely do a Covid vaccine if ever a safe one is found. How could I not? Meanwhile, took my SE Asian leaf today, if you know what I mean, and pain went from a 7-8, to gone. So I will be happy for about 4 hours now. And, I just found out from Jen that my husband Stu and I are curly haired cuties!!! So all is good!!! Love to you guys, Lori

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Hi Guys, I was just thinking of something. Since the Shingles Shingrix and the influenza vaccines are both inactivated aka dead viruses, I wonder if the PN outcome for some of you is caused by the medium the dead viruses are in? Just a thought. Hope you all are more than tolerable today. Warm regards, Sunnyflower @bustrbrwn22, @jesfactsmon

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@ken82

@vustrbrwn22, If you know anyone who in their later years has had Shingles you would not wonder if you should get the Shingles Shots.. The Vaccines have gone through so much rigor to be tested and finally marketed …. the probability of good results is well established and documented .. go to your pharmacy, get the name of the company that developed the vaccine .. go online to communicate with that company to establish trust.. the anti-vaccine crowd are skeptics who want to blame government for most anything… but do not mess around … get the shots or you may spend weeks, even months with needless pain… Ken

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Hi Ken82, yes, if one were to get the awful shingles, it can hurt badly for up to a year, worst case scenario! Imentioned this earlier that both the Shingles Shingrix and the influenza vaccines are inactivated aka dead so I got mine both on the same day, different sides, with no unwanted side-effects. And, I'm taking two immunosuppressant drugs daily and have a zillion health probs/diseases. I wonder if people might be reacting to the medium these inactivated viruses are in? Mmmmm. Take care, Sunnyflower @bustrbrwn22

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@dont

Hi Jeff, are you saying that you are aware of at least one lawsuit against Shingrix? or the previous Zostavax?? Don

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I just googled lawsuits and shingles vaccination. I got many hits which were from law firms essentially advertising for their class action lawsuits against Merck for alleged adverse reactions to Zostavax, I didn't see any about Shingrix.
The lawsuits claim the vaccine caused anything from a mild rash, to actual shingles , to brain swelling to death, and many others. I didn't see anything about them causing PN.
Most of the postings about class action lawsuits I read were poorly written with many factual errors and to my mind baseless claims, but that's the way they work. There are often settlements made by the manufacturers because it is the smartest financial decision, not because the claims are correct.
I have not taken the time to research the results of these lawsuits, because I am convinced the the benefit of the vaccines outweigh any of the rare adverse reactions, real or imaginary. The results of lawsuits are a legal, not medical matter, and often have nothing to do with the accuracy of the claims.

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@bustrbrwn22

I thought my husband and I would get the shingles vaccine this year. I am so glad
I found all this information. I am really re-thinking this decision as I don’t think I could add the pain from the vaccine to the pain I already have. No one knows what causes definitively my lichen planus and interstitial cystitis but some things I’ve read point to stress and/or anxiety. I am extremely anxious by nature and this might cause a worse outcome. Can’t any decision be easy anymore? Any thoughts/recommendations from anyone?

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Hey Rachel! Lichen Planuc can be caused by auto-immune Dz and intersitial cystitis, who knows. I get it. None of us want more pain!!!!! Gross understatemtent!!!!!!!!!! I think you've read my today's posts by now but just in case, here is the way I look at it. The shingles are brutal. They can be the worst pain ever and can last many, many months. Both the Shingles Shingrix and the influenza vaccines are inactivated aka dead. I got mine both on the same day without incidence. I got to wondering after I made the posts w/ this info, if it might be the medium the dead viruses are in that are causing people problems. My hubby had a terrible reaction to a different medication due to the medium it was in. Just a thought. For me, no, almost every decision regarding medications are a no-win anymore. Lot's of pray for direction! Hope you are having a good day. Warmest hugs, sunnyflower

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