Shingrix and peripheral neuropathy

Posted by joannerhodes @joannerhodes, Feb 1, 2019

4 days after my 2nd Shingrix vaccination, I suddenly developed intense peripheral neuropathy in both feet…for the first time in my life…anyone else?

Liked by sunnyflower

@colleenyoung

Hi all, this information from the CDC and Mayo Clinic might help answer some of your questions about the mRNA vaccine.

– Understanding mRNA COVID-19 Vaccines https://www.cdc.gov/coronavirus/2019-ncov/vaccines/different-vaccines/mrna.html
"mRNA vaccines do not use the live virus that causes COVID-19. They do not affect or interact with our DNA in any way. mRNA never enters the nucleus of the cell, which is where our DNA (genetic material) is kept. The cell breaks down and gets rid of the mRNA soon after it is finished using the instructions."

How messenger RNA vaccines work https://connect.mayoclinic.org/page/podcasts/newsfeed-post/how-messenger-rna-vaccines-work/
On the Mayo Clinic Q&A podcast, Dr. Gregory Poland, an infectious diseases expert and head of Mayo Clinic's Vaccine Research Group, explains how mRNA vaccines work, gives a status update on the pandemic and answers listener questions.

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Thank you for this video … it is helpful. I understand more about how the vaccines will work. Peggy

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@colleenyoung

Hi all, this information from the CDC and Mayo Clinic might help answer some of your questions about the mRNA vaccine.

– Understanding mRNA COVID-19 Vaccines https://www.cdc.gov/coronavirus/2019-ncov/vaccines/different-vaccines/mrna.html
"mRNA vaccines do not use the live virus that causes COVID-19. They do not affect or interact with our DNA in any way. mRNA never enters the nucleus of the cell, which is where our DNA (genetic material) is kept. The cell breaks down and gets rid of the mRNA soon after it is finished using the instructions."

How messenger RNA vaccines work https://connect.mayoclinic.org/page/podcasts/newsfeed-post/how-messenger-rna-vaccines-work/
On the Mayo Clinic Q&A podcast, Dr. Gregory Poland, an infectious diseases expert and head of Mayo Clinic's Vaccine Research Group, explains how mRNA vaccines work, gives a status update on the pandemic and answers listener questions.

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Does the shingles vaccination work the same way? Peggy

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Thx Colleen!

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@pfbacon

Does the shingles vaccination work the same way? Peggy

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@pfbacon There is a lot of good information online provided by Mayo Clinic. In order to direct you towards that in formation, would you elaborate on your question please?

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I had the first Shingrix shot three months ago. I felt intense pain in my arm at injection site during the injection that made me almost cry. Three months later I still feel residual pain in my arm near injection site. If I raise my arm above my head I get muscle pain and weakness in my upper arm. Walgreens wouldn't give me the second shot because they were concerned about the residual pain lasting even after two months. I found another website with patient after patient complaining of long-term arm pain and wondering if the pain would ever subside. Some had gotten their shots a year ago, so surely there must be documentation about this! None of us were ever warned about such long-term, possibly permanent, side effects. I believe there is permanent nerve damage in my upper arm as a result of the vaccination and will not risk getting the second shot and having even worse side effects. I think I am OK with the Zoster vaccine I got years ago plus the first Shingrix. It is not worth it to me to suffer any further permanent side effects, especially not a worsening of peripheral neuropathy, which I already have in both feet and which makes me feel suicidal at times. I recommend everyone avoid any medications that mention peripheral neuropathy as a possible side effect (Ciprix antibiotic). The constant discomfort, burning, tingling, numbing pain, and the frustration of knowing that NOTHING CAN BE DONE ABOUT IT will surely diminish the quality of your life. Since we were not told about this possible permanent side effect of Shingrix, it makes me wonder now that perhaps we aren't being told about any permanent side effects of the Covid19 vaccine either, lest no one be willing to get it. Unfortunately, we have to get it even if there are debilitating long-term or permanent effects.

Liked by lorirenee1, Hank

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@wintersville

I had the first Shingrix shot three months ago. I felt intense pain in my arm at injection site during the injection that made me almost cry. Three months later I still feel residual pain in my arm near injection site. If I raise my arm above my head I get muscle pain and weakness in my upper arm. Walgreens wouldn't give me the second shot because they were concerned about the residual pain lasting even after two months. I found another website with patient after patient complaining of long-term arm pain and wondering if the pain would ever subside. Some had gotten their shots a year ago, so surely there must be documentation about this! None of us were ever warned about such long-term, possibly permanent, side effects. I believe there is permanent nerve damage in my upper arm as a result of the vaccination and will not risk getting the second shot and having even worse side effects. I think I am OK with the Zoster vaccine I got years ago plus the first Shingrix. It is not worth it to me to suffer any further permanent side effects, especially not a worsening of peripheral neuropathy, which I already have in both feet and which makes me feel suicidal at times. I recommend everyone avoid any medications that mention peripheral neuropathy as a possible side effect (Ciprix antibiotic). The constant discomfort, burning, tingling, numbing pain, and the frustration of knowing that NOTHING CAN BE DONE ABOUT IT will surely diminish the quality of your life. Since we were not told about this possible permanent side effect of Shingrix, it makes me wonder now that perhaps we aren't being told about any permanent side effects of the Covid19 vaccine either, lest no one be willing to get it. Unfortunately, we have to get it even if there are debilitating long-term or permanent effects.

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@wintersville
You are singing my tune. My wife got chemo in 2014 and NOBODY told her that peripheral neuropathy was a possible side effect. When she developed symptoms of PN after the 2nd infusion her PCP said "Aww don't worry, it will go away as soon as you finish the chemo". Hah! My wife was smart enough to figure out she was being sold a bill of good and quit chemo right then. She now lives with permanent PN in her feet. They are red and swollen and hurt miserably almost all the time. The medical establishment does have some good people no doubt, like any profession, but overall it's really mostly about $$$. Very sad but very true. Thanks for the input about your shingrix experience. I will be avoiding it. Best, Hank

Liked by lorirenee1

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@jesfactsmon @wintersville Life is where we play the odds .. Education gives us options.. After seeing several friends get Shingles I opted to get the Shringrix shots.. No problems.. Links such as the following… https://www.healthline.com/health/shingles-vaccine-side-effects helped me decide.. as I remembered as a child how wild chicken pox was… when I was about 7 years old.. My formal education included a lot of Statistics.. the importance of which we live with everyday.. so we roll the dice… and hope for the best.. the 95% positivity rate and the wide usage of vaccines in our history since smallpox, polio, measles, and many others have contributed widely to our quality of life.. Doing your homework before getting any medical treatment is a problem.. we have developed trust and credibility tests… We must have the discipline to not let smooth talking overcome our best judgement.. but Believing a single person here another person there is not a reliable sample of results from any shot …vaccine… particularly the COVID shots out now.. they are unique in how they work.. I hope to be first in line when they are offered to us over 75 years old in my area of Iowa..

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Thank you, ken and jusfax for logic. Me too, I look at evidence, not 'feelings' for guidance. I did get the second shingles vaccination. My arm is sore, and I felt like I had a bad cold for a day but they are both getting better. I'm suffering much less than my mother did when she had shingles.

I didn't read the entire contract before I got the shot but I'm sure that it includes all the possible side affects and I'm sure I signed away my right to prosecute if the vaccination caused any of them, or any other side affects. That's standard procedure these days, isn't it? Peggy

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@ken82

@vustrbrwn22, If you know anyone who in their later years has had Shingles you would not wonder if you should get the Shingles Shots.. The Vaccines have gone through so much rigor to be tested and finally marketed …. the probability of good results is well established and documented .. go to your pharmacy, get the name of the company that developed the vaccine .. go online to communicate with that company to establish trust.. the anti-vaccine crowd are skeptics who want to blame government for most anything… but do not mess around … get the shots or you may spend weeks, even months with needless pain… Ken

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I strongly disagree; I never had shingles however my internist suggested I get the vaccine since I turned 65 and had chicken pox as a child. I received the first shot March 2020 ( will never get 2nd) and have suffered every day since. I went from a extremely healthy individual, problem free, to a chronic disease sufferer all as a result of the vaccine. GSK the mfg. has been insulting in their
response to my inquiries about contraindications. Knowing what I know now I would have preferred to take my chances with getting shingles then the daily misery I am enduring. Based upon my own extensive research I will never get any future vaccination(s) under any circumstances , including COVID.
“Extensive Government testing” is a term frequently used however has extremely limited scope.

Liked by Hank

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@ricke

I strongly disagree; I never had shingles however my internist suggested I get the vaccine since I turned 65 and had chicken pox as a child. I received the first shot March 2020 ( will never get 2nd) and have suffered every day since. I went from a extremely healthy individual, problem free, to a chronic disease sufferer all as a result of the vaccine. GSK the mfg. has been insulting in their
response to my inquiries about contraindications. Knowing what I know now I would have preferred to take my chances with getting shingles then the daily misery I am enduring. Based upon my own extensive research I will never get any future vaccination(s) under any circumstances , including COVID.
“Extensive Government testing” is a term frequently used however has extremely limited scope.

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@ricke
I understand how you feel. I have learned through the years that it is usually not a great idea to tell others what they should or shouldn't do as a definitive statement. Every one of us is different even though many may share similarities in their particular situations. What seems wonderful to one person may be a living hell for another. It's an odd phenomenon but true nonetheless. Two people may try the exact same thing and yet have two totally unique experiences which do not even resemble each other. Better to talk about how something helped you and leave others to decide what is their best course. Life throws too many curveballs for us to be able to make definitive predictions for others. My sympathy to you on what you have experienced with the shingrix shot. How awful! Best, Hank

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@ricke

I strongly disagree; I never had shingles however my internist suggested I get the vaccine since I turned 65 and had chicken pox as a child. I received the first shot March 2020 ( will never get 2nd) and have suffered every day since. I went from a extremely healthy individual, problem free, to a chronic disease sufferer all as a result of the vaccine. GSK the mfg. has been insulting in their
response to my inquiries about contraindications. Knowing what I know now I would have preferred to take my chances with getting shingles then the daily misery I am enduring. Based upon my own extensive research I will never get any future vaccination(s) under any circumstances , including COVID.
“Extensive Government testing” is a term frequently used however has extremely limited scope.

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@ricke @jesfactsmon When drug tests are done and as even political polls are done, whomever is doing the survey or test has to pick a random sample of the probable voters or probable users. The larger the number of people in the test the better is the test, that is, the more accurate is the Test… Most Statistical tests use 95% as the lowest confidence number.. So your reaction maybe was in that 5% of those where the treatment caused an abnormal reaction… You should not throw the baby out with the bathwater.. The Covid vaccines are a totally different kind of vaccine and of course there are limitations as those pregnant women or children under 16 were not included in the tests of 30,000 people.. therefore no generality can be stated about the vaccines effectiveness on children under 16 or those pregnant women.. There are always individuals who have different reactions to a treatment but you cannot draw definitive conclusions with a sample of One .. You are unique.. All medical tests worth anything are double blind large samples where usually 10% of those treated get a placebo… no treatment… that is were comparisons can be made.. Either you believe in Science or not… Smallpox, Polio, Measles.. etc vaccines .. have contributed immensely to our quality of life. Those Extensive Government Testing standards are established for those pharma companies to follow… Ken

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@wintersville

I had the first Shingrix shot three months ago. I felt intense pain in my arm at injection site during the injection that made me almost cry. Three months later I still feel residual pain in my arm near injection site. If I raise my arm above my head I get muscle pain and weakness in my upper arm. Walgreens wouldn't give me the second shot because they were concerned about the residual pain lasting even after two months. I found another website with patient after patient complaining of long-term arm pain and wondering if the pain would ever subside. Some had gotten their shots a year ago, so surely there must be documentation about this! None of us were ever warned about such long-term, possibly permanent, side effects. I believe there is permanent nerve damage in my upper arm as a result of the vaccination and will not risk getting the second shot and having even worse side effects. I think I am OK with the Zoster vaccine I got years ago plus the first Shingrix. It is not worth it to me to suffer any further permanent side effects, especially not a worsening of peripheral neuropathy, which I already have in both feet and which makes me feel suicidal at times. I recommend everyone avoid any medications that mention peripheral neuropathy as a possible side effect (Ciprix antibiotic). The constant discomfort, burning, tingling, numbing pain, and the frustration of knowing that NOTHING CAN BE DONE ABOUT IT will surely diminish the quality of your life. Since we were not told about this possible permanent side effect of Shingrix, it makes me wonder now that perhaps we aren't being told about any permanent side effects of the Covid19 vaccine either, lest no one be willing to get it. Unfortunately, we have to get it even if there are debilitating long-term or permanent effects.

Jump to this post

GSK is complicit in not disclosing possible contraindications with their vaccine. Since I received my initial dose in March 2020 , GSK has added a few additional
“potential reactions “. I have zero faith in anything GSK has shared to date. There seem to be a number of respondents participating in the “vaccine group” who are less than objective which presents questions about their
motivation(s).

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@ricke

GSK is complicit in not disclosing possible contraindications with their vaccine. Since I received my initial dose in March 2020 , GSK has added a few additional
“potential reactions “. I have zero faith in anything GSK has shared to date. There seem to be a number of respondents participating in the “vaccine group” who are less than objective which presents questions about their
motivation(s).

Jump to this post

This reply is to @ricke, and others in this thread.
I'd like to clear up some factual misstatements. I am not specifically referring to people's opinions, to which they are entitled. However, I hope that if the facts upon which those opinions are based are correct and science based, the opinions that flow from those facts will be more evidence based.
1) GSK does disclose possible contraindications, as does every other drug manufactured which is approved by the FDA.
2) There is no category in the reporting called "potential reactions", which, of course, could be anything. The categories are "Black Box Warnings" (there are none for Shingix), "Contraindications/Cautions", "Adverse Reaction". and "Drug Interactions". There are also "Pregnancy/Lactaton warnings.
3) One cannot "prosecute" a drug manufacturer because of suffering an adverse reaction. One can sue, and, if they have a good case, receive compensation. A government agency such as the state can prosecute, such as in the Purdue Pharma case.
4) I am not a lawyer (phew!) but I believe one cannot be deprived of their right to sue, no matter what they sign. Of course, that may not mean they will prevail.
5) One person's perceived negative reaction involving a drug, treatment, etc., while it may be true, is called anecdotal evidence, meaning it is essentially one person's experience. This is not accepted as factual, until proven in a controlled study. This is similar to what are called case reports in medical journals, which are presented not as evidence based facts, but simply a sort of "heads up" to the medical community.
6) Although livelihood is certainly involved, the vast numbers of health care providers that I have come into contact with are not simply in it for the money (a few are). Moreover, in the time of Covid, it is particularly unfair to hold that opinion, when so many healthcare workers are fighting such a heroic (and often deadly) battle to save others.
Over the years, vaccines have saved millions of lives, and eliminated untold suffering, while being very safe for the vast majority of people who have gotten them. I believe anyone who has witnessed the suffering of an unfortunate shingles patient who goes on to develop post herpetic neuralgia (a form of PN) wouldn't hesitate to get the Shingrix vaccine.

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@jeffrapp

This reply is to @ricke, and others in this thread.
I'd like to clear up some factual misstatements. I am not specifically referring to people's opinions, to which they are entitled. However, I hope that if the facts upon which those opinions are based are correct and science based, the opinions that flow from those facts will be more evidence based.
1) GSK does disclose possible contraindications, as does every other drug manufactured which is approved by the FDA.
2) There is no category in the reporting called "potential reactions", which, of course, could be anything. The categories are "Black Box Warnings" (there are none for Shingix), "Contraindications/Cautions", "Adverse Reaction". and "Drug Interactions". There are also "Pregnancy/Lactaton warnings.
3) One cannot "prosecute" a drug manufacturer because of suffering an adverse reaction. One can sue, and, if they have a good case, receive compensation. A government agency such as the state can prosecute, such as in the Purdue Pharma case.
4) I am not a lawyer (phew!) but I believe one cannot be deprived of their right to sue, no matter what they sign. Of course, that may not mean they will prevail.
5) One person's perceived negative reaction involving a drug, treatment, etc., while it may be true, is called anecdotal evidence, meaning it is essentially one person's experience. This is not accepted as factual, until proven in a controlled study. This is similar to what are called case reports in medical journals, which are presented not as evidence based facts, but simply a sort of "heads up" to the medical community.
6) Although livelihood is certainly involved, the vast numbers of health care providers that I have come into contact with are not simply in it for the money (a few are). Moreover, in the time of Covid, it is particularly unfair to hold that opinion, when so many healthcare workers are fighting such a heroic (and often deadly) battle to save others.
Over the years, vaccines have saved millions of lives, and eliminated untold suffering, while being very safe for the vast majority of people who have gotten them. I believe anyone who has witnessed the suffering of an unfortunate shingles patient who goes on to develop post herpetic neuralgia (a form of PN) wouldn't hesitate to get the Shingrix vaccine.

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You just confirmed all my concerns. “Me thinks thou doth protest too much”.

Liked by ricke

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Yes, after the first. Never getting the 2nd.
10 months and still no abatement.

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