Sharing a study I'm participating in for fatigue

Posted by inmetta @inmetta, Sep 9, 2023

Sharing- I'm participating in a study led by Mt Sanai NYC Post Covid Dept looking at fatigue and endocrine dysfunction. It involves a blood draw at LabCorp to check the endocrine function and a functional survey. Im told if the Drs find an issue with your labs, you continue with draw every 3 months and the labs are explained to you and the Drs will discuss with your providers. The post Covid website is also a great source for information as they seem more independent imho

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Colleen Young, Connect Director | @colleenyoung | Sep 28, 2023

For anyone wanting to understand more about Central Sensitization Syndrome, you may appreciate Mayo Clinic Dr. Sletten’s explanation in this video

ellen27 | @ellen27 | Sep 28, 2023

In reply to @ripley "Do you have to live in NY to participate in the study?" + (show)

The University of Minnesota is involved in this study as well.

inmetta | @inmetta | Sep 28, 2023

In reply to @colleenyoung "For anyone wanting to understand more about Central Sensitization Syndrome, you may appreciate Mayo Clinic Dr...." + (show)

Love this. Focused on this now for TX at Mayo and very happy so far

inmetta | @inmetta | Sep 28, 2023

Sorry no idea on this

gbw | @gbw | Sep 28, 2023

I have opposite GI problem loose and a LOT of it. Also have high cortisol which can exhaust you too as your body is working overtime in fight or flight all the time, then you crash. For the gas and bloating I take Gas Ex at times, its pretty benign and does help a bit, it doesn't have a lot of side effects like other myriad things I've taken for GI stuff. Acupuncture has helped a bit too but it hasn't seemed to stick past the 2nd day after it, but I just started trying it again as its one of the only things that's made me feel better even if its just for a day. Unfortunately I have just about every long covid symptom for close to 2 years, GI, cardiac, thyroid, chronic fatigue, food is not appealing, horrible sleep, exercise intolerance...been to so many specialists but they mainly focus on their thing, not overall what's driving the symptoms. I've been to naturopath too, but it didn't help much and I spent a lot of money on supplements. Have huge box of supplements and meds that didn't work! Sure hope for all of us a solution comes. Also I find DR Boon Lin cardiologist in London, a good source of help that is not invasive or drug oriented, he's treated a lot of long covid people. Watching his videos and interviews helps me take a break from my endless search for relief, doing the recommended things he says that are very easy. I have just started it, but some people on this site have said it helped them, so worth a try.

inmetta | @inmetta | Oct 3, 2023

Hi everyone
This is my last post. I received my results. I'll continue with the study to support research. It was worth it. Highly recommend looking into the Mayo PRC program.