Mayo Clinic Connect
I am very bent over in posture bit like this chap am waiting for 2nd hip replacement but i am told my bent over posture is muscular but i am probably beyond exercise to lengthen the muscles . is there an operation that can help ???tenotomy
Liked by fiesty76, sunnyflower
Dearest sueblue, one of my best friends wears a "suit" for her scoliosis and it actually has helped a little bit. I will ask her more about it and get the info to you.
She uses some alternative medicine. I can't recall if the suit was covered by insurance at all.
Is there no brace you can wear to lift your body so your lungs can expand more? I will also ask her what if any other options she's found in her search.
This might be way off here but my friend who had muscular dystrophy had a rod inserted into her spine to prolong her life. Harrington rod?? It's been so many years since the Lord called her home that I can't remember the name.
I just went back and re-read several messages us in the group sent to you with our suggestions about physical therapy, etc.
I fear that I may have offended you because of course you are doing everything you possibly can and are fully aware of PT! I am so sorry if you felt badly about that.
Take good care dear friend. I will be praying for you for big time relief, comfort for your soul and options to present themselves to help your lungs expand.
Many blessings, Sunnyflower 🙏😊🌹
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Thank you and of course I am not offended. I have gone to PT to try to slow it down but then I fell last Feb and broke my hip (hip replacement) and my shoulder in 4 places so was in rehab until some time in March just when covid was ramping up so as a result I got no PT even for that and had to figure out my own PT beyond what i was taught in rehab. As far as a rod I also have severe osteoporosis and the ortho said screws would not hold because of that so I am at a loss. I also must have jarred my spine when I fell as I have noticed my breathing is worse now so it is probably moving a bit faster than I had hoped. I have a POC for oxygen but since it is a "chest wall" proalem and not a lung disease the pulmonary doc said it is only to make me feel better not to prolong my life. Also he said now with covid do not go anywhere with it like a store or doc office, etc as it filters out pollen and dust but not bacteria and viruses so I cant even use that to go anywhere and at this point so far not getting a tank as dont want to be near any stranger. Pulm said if I get covid I wont make it definitely so just call me a recluse. My daughter grocery shops, throws the bags in the door and runs away even tho she has a mask on. I am so sick and tired of covid. Thanks for hyour blessings. Much appreciat4ed. Hugs
Liked by wisco50, sunnyflower
I am glad that it is not her spine so maybe they can do something for the muscles with this second surgery. I only have 30% of my lung capacity from severe scoliosis but there is nothing they can do to stop the spine. I was told basically that I will at some point suffocate to death. My diaphragm is up in my lungs and my spine is also bending left towards my heart. Being deformed either way is bad for the lungs and I am hoping she has a better chance than me.
@sueblue You may be interested in looking at Myofascial release therapy. This is a hands on physical therapy to release tight muscular tissue, and it takes many sessions to release layers of tissue that have been stuck for years. It's not surgery, and it may be able to help. That's a guess on my part, but you could try it and see if you get any improvement. I have done a lot of this myself for thoracic outlet syndrome which makes my chest and neck muscles too tight and it can restrict my breathing too. You might be interested to know that my MRI reports and imaging used to show what the doctor called a slight functional scoliosis and he could see my spine bending on my back. The MFR therapy has helped a lot, and the reports no longer mention this at all and my bulging thoracic disc has realigned itself and stopped restricting my movement. This may give you some hope and some relief, not an overnight success, but possibly steady gains if you keep at it. I do a lot of stretches myself. It's not surgery. It's holding a shearing motion on the tissue and waiting for it to release. The bones go where the muscles tell them to go, and because of injuries, scar tissue, surgical scar tissue restrictions, and bad habits, our bodies can start to get stuck and they no longer move properly. MFR has helped me a lot and I've been at it for several years and it gets the body moving better. Here is some information. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
Liked by sunnyflower
The initial recovery period was hard the eventual outcome was excellent
@lotsofpain it must be extremely difficult to go through multiple major surgeries. I hope the next hip surgery is as successful as the first.
Regarding your posture, it sounds like you have been through PT before.
May I ask if your posture deteriorated after hip surgery or was it an issue before?
No it was an issue before but certainly got worse after my spinal injection some months previous
Hello @lotsofpain. I wanted to share this link with you on Kyphosis that I thought you might find helpful in your search for the next right step to figuring out your back concern.
How long since the on-set of your condition?
Thank you its been developing over a couple of years in a vicioys circle of pain and immobility excasserbating each other. As my back got stiffer i did less and gradually my hips gave up and my muscles tightened and shortened reducing my ability to stand up straight . I had a steroid injection in my back which i think made things worse and eventually had one right hip replaced . They were looking to do the other one when the virus struck so i have not had it. So the left side of my body barely moves excasserbated by and excasserbating my colon pain.
Strangely i can drive without too much difficulty
Hi Sueblue, I hope you got some sleep ladt night and will have a much better than tolerable day today.
My friend has worn the "Scoliosis Activity Suit" 4-6 hours a day, and had a 2 degree change at the end of 6 months. She is due for her next set of X-rays to see if there is more improvement.
Her doctor's name is Mark Morningstar. He is a chiropractor and has a PHD. He is located in Grand Blanc, Michigan.
Check out the following links:
Her particular insurance didn't pay for any of it so her cost was $1,500.
Warmest hugs, Sunnyflower 🤗🙏🌹
@sueblue I am so sorry to hear that. My prayers go out for you
Thank you for the info. I will check it out but I am in Massachusetts and perhaps if I call they may know of someone in the area they could reco0mmend. However, I dont dare go anywhere til this covid thing is contained at least..The ortho said I was too far gone for a brace but maybe this is different. Thanks again.Hugs
Thanks bustrbrwn22 but we all have problems or we would not be on this site. I never had scoliosis before 8 years ago when I fell bringing hubby home from a procedure for a precancerous huge180 degree polyp in his duodenum to try to avoid a Whipple surgery. It was done in 2 parts and this was the 2nd one but since it was snowing and icy out they wanted to leave and let him go while he was still kind of loopy. So I was not paying attention to where I was going and tripped in the parking lot of the hospital and went down pushing my bag into my diaphragm which was in front of me. After that I started to get short of breath and it kept getting worse over time. They finally realized it was not asthma but my spine but by then it was too late to do anything with my brittle bones. I went from 5'6" to 4'9"., ugly as heck. I do appreciate your prayers and back attcha. Thanks again Hugs
Sueblue, GASP!! I can't imagine going through what you have! And your husband too! It's unbelievable! I didn't know one could get scoliosis the way you did! My heart REALLY goes out to you and my prayers will continue to go up for you.
We all walk through many fires/afflictions in our temporary lives here on earth. By the grace of God go I, for real.
Knowing Him well enough to know that I can trust His purposes in my suffering and the blessgs that are promised for me in heaven via Christ, is what gets me through and for that I am deeply grateful.
Do you ever have tolerable days or times in a day or is your pain unrelenting?
Funny how I can identify so many different types of pain I'm in. You too?
I hope you experience some blessings tonight.
Warmest hugs, Sunnyflower. 🤗🙏
@lotsofpain You made an important step towards feeling better by starting this discussion. @amandajro has made an excellent suggestion. Good luck with your surgery and your road to recovery.
Liked by Amanda, Connect Moderator
Thanks for your prayers and kind thoughts. I am grateful truly. I hope you will be ok. I am not exactly sure what the problem is but you are in this group for a reason. My prayers are with you. If you want, send me a PM. Thanks. Hugs
Hi sueblue, almost 100% of the many, many providers whose care I've been under for many years have told me that I either have these longest list or one of the longest list of health problems / diseases / conditions that they've seen. I even had one asked me if they could do a case study on me LOL! When they tell me that I tell them that they are interfering with my denial. They don't know I am serious.
I have autoimmune disease, rare lung tumors, mild emphysema, controlled asthma, chronic diastolic congestive heart failure, a problem with the electricity in my heart, kidney disease, autoimmune thyroid disease AKA Hashimoto's thyroiditis and thyroid tumors, adrenal insufficiency, hyperparathyroidism, neuropathy head to toe, severe osteoporosis, osteoarthritis, and more. Many of my conditions are painful but I feel that others hurt more than myself.
I am on Morphine and Gabapentin for my pain. And sometimes Valium helps the neuropathy and my other pain. But I do not take it every day and try to stay away from it because the combination with opiates can be so dangerous as you know.
I feel blessed because I have such an intimate relationship with God and I experience his peace through Christ that surpasses human understanding, Philippians 4:7) . I also experience His sacrificial, unmerited, vast, deep, boundless and free unfathomable love and know Him well enough by reading the Bible, to trust Him in my circumstances.
I also have the hope and Assurance of what is to come in my eternal life with him through Christ and the promises that await me. (Hebrews 11:1)
I so wish this for everyone because even when my pain is intolerable, and I am fighting for my sanity and begging Him to take me home now, I say to Him that I really prefer His will and that here I am to be used of Him. No matter how bad it gets I am still acutely aware of my innumerable blessings for which I am deeply humbled and grateful.
I so wish this for everyone. We all walk through many fires here on this Earth and I feel blessed to experience the comfort that I do. Pain hurts and it hurts a lot and it's quite unrelenting I find. But I trust my God in his purposes and they are always for good for those who love him.
Many blessings and prayers to you, Sunny flower
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