Severe upper abdominal pain in 12 year old

Posted by emsher @emsher, Fri, Oct 11 9:46pm

My son has had severe pain, very localized on his upper right abdomen up under his rib cage for the past 6 months. It came on very suddenly and has been constant and severe (8-9/10). He had many tests done with no answers before being referred to a pain clinic where he has been a patient the past 3 months. He has been given a vague diagnosis of a nerve injury or myofascial pain. He had a nerve block injection in July which was not successful, however the lidocaine injection that preceded it did relieve his pain for about 30 minutes. He has a rigorous physio therapy and psychology regime, and though his coping and function have improved he has had no relief of pain. He is vomiting daily from pain and only managing 1-2 hours of school daily (with a huge effort). He has been able to be very active, but needs to regulate the intensity of activity as deep breathing increases his pain. There seems to be some connection with the diaphragm/psoas. Just looking for others who have perhaps dealt with similar issues and ideas of what has helped. So far nothing provides even the slightest relief.

Hi @emsher that sounds so difficult to watch your son deal with so much pain.

I'd like to introduce you to @mamacita and @sandytoes14 as they have experience with chronic pain and may be able to share their experience with you and offer you support.

Back to you @emsher, does your son's pain clinic program have an end date?

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@ethanmcconkey

Hi @emsher that sounds so difficult to watch your son deal with so much pain.

I'd like to introduce you to @mamacita and @sandytoes14 as they have experience with chronic pain and may be able to share their experience with you and offer you support.

Back to you @emsher, does your son's pain clinic program have an end date?

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No end date. I believe he will remain an active case until he has some resolution or at least improvement, but at the moment he will have monthly check-ins as they “wait and see” if there is improvement.

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@emsher – I am so sorry to hear what your son is going through- especially since there is no definitive diagnosis. Would you mind sharing what tests he has had as well as any specialists he has seen? Also- Pediatrics or Internal Medicine?

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@astaingegerdm

@emsher – I am so sorry to hear what your son is going through- especially since there is no definitive diagnosis. Would you mind sharing what tests he has had as well as any specialists he has seen? Also- Pediatrics or Internal Medicine?

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Early on he had a number of ultrasounds, xrays and an MRI to rule out digestive and organ related issues. All those tests looked normal. The paediatric pain clinic has a team of doctors with various specialities in clinical investigation, pain, and anaesthesia. At this point they don’t feel that any further diagnostic testing is necessary, and are recommending a ‘3P’ approach (Physiotherapy, Psychology, pharmacology). He has regularly been seeing physiotherapists, massage therapists, and a psychologist who specializes in pain management. We have also tried acupuncture, but it seemed to aggravate the pain. We have just started seeing an therapeutic osteopath who we feel may be on to something, but he’s only had one treatment so far. He is currently taking gabapentin for pain, though it does not appear to be overly effective. And he was prescribed Fluoxetine early in the process, which has not helped with pain but has helped with coping, so we are continuing with it for now.

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@emsher – Thank you for all the information! It sounds like he is in good hands for now. Since your son doesn’t manage more than a couple of hours a day of school, does he get extra tutoring at home?
My son was home a lot in 6th grade and 8th grade- we still don’t know exactly what was wrong with him- and got home tutoring. He is 32 now.
I hope you will have an answer soon.

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@emsher I'm so sorry to hear of your son,s pain for a 12 yr old cant understand what it could be you said you had test done to rule out things. Just want to ask have the Dr.s looked at the gallbladder duct or hepatic duct in the liver ,has he seen a chiropractor about the pain could be nerve from the back ,my son hurt his chest and the chiropractor helped him . Just a thought .

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