Severe Tortuous & Redundant Colon

mrd, when you have the time and energy would you please clarify the following from your post:
1. What is SOB
2.your hiatal hernia, is pushing on your lungs. What does it feel like? What imaging showed the hernia pressing on your lungs?
3. Too difficult procedure: what procedure? What procedure and if you ignored the dr. , would you have this procedure? Second surgeon, what was your first surgery ?
4. How did your pulmonologist save your life?
5. Where are the ulcers? What do they feel like? Should they be removed?
6. Years of constipation...what caused this? Is it ok now?
7. How was your GI bleed caused and diagnosed? How can it be ignored?
I have many of the same issues: iron deficiency anemia and must use infusions, due to celiac disease severe damage in small intestines so malabsorption will be a problem forever, 17 years of CIC💩‼️, all GI treatments useless. I use miralax at high doses for many years (okay w/GI), to keep 💩 quite un-thick, thin mush to diarrhea. I know I asked a ton of questions.... I am getting nowhere. 17+ years of fighting, I have literally almost zero energy to keep up fighting. Thanx ShelleyW

mrd, when you have the time and energy would you please clarify the following from your post:
1. What is SOB
2.your hiatal hernia, is pushing on your lungs. What does it feel like? What imaging showed the hernia pressing on your lungs?
3. Too difficult procedure: what procedure? What procedure and if you ignored the dr. , would you have this procedure? Second surgeon, what was your first surgery ?
4. How did your pulmonologist save your life?
5. Where are the ulcers? What do they feel like? Should they be removed?
6. Years of constipation...what caused this? Is it ok now?
7. How was your GI bleed caused and diagnosed? How can it be ignored?
I have many of the same issues: iron deficiency anemia and must use infusions, due to celiac disease severe damage in small intestines so malabsorption will be a problem forever, 17 years of CIC💩‼️, all GI treatments useless. I use miralax at high doses for many years (okay w/GI), to keep 💩 quite un-thick, thin mush to diarrhea. I know I asked a ton of questions.... I am getting nowhere. 17+ years of fighting, I have literally almost zero energy to keep up fighting. Thanx ShelleyW

I don't know. I do have a lot of stress in my life on a day to day basis. Maybe I can try that. Thank you.

Try relaxing imagery for seven weeks, daily. Get in a comfortable position. Look at a spot on the ceiling. Hold your breath for a count of six, let it out slowly. Close your eyes. Mentally go through your body, head to toe, relaxing each part. Then imagine sinking lower and lower, on a cloud (count from 1 to 20, letting go more each time). Then imagine entering a bare room, feel the floor with your bare feet. Imagine the walls, their color, imagine a door and what it looks like. Walk to the door. Stand in front of it. Then open it to a special place, beach, forest, boat, cabin, and make that scene come alive in your mind. Birds, water, sunshine, whatever. Then when you are ready, come out of it counting from 20 to 1, and then think "wide awake." Don't do it when you are sleepy (you may dose off and you will lose its value. This is an outline of what a psychologist did for me, and then I did it for myself. It should take 15-20 minutes, but less time is fine too. After seven weeks it will be habitualized and you can recall that relaxed state quite easily when you need it. If you are like me, you may need to do the whole routine too. And if you are lucky, there may be an app that does something similar.

SOB is the clinical term for shortness of breath. A swallow test revealed that I have limited gastroparesis…. The motility of my GI is affected and the X-ray showed how a small amount of liquid has a difficult time getting through the esophagus because my stomach is pushed up into my chest wall. I have asthma and the Giant size hiatal hernia is pressing on my lungs and I’m experiencing SOB. I was belching in my 20s and the mention of a hiatal hernia wasn’t addressed which I only recently learned from the one surgeon is a symptom of the hiatal hernia. So now I’m 70 and will be going for abdominal surgery next month to somehow alter the size of my hiatal hernia. I was symptomatic when I was awakened in the middle of the night with wretched vomiting. “Oh it’s something that you ate”…. An ordinary meal which wasn’t seasoned is something that I ate ??? Been ignored through the years and I’m not getting any younger now. Had a bout of elevated blood pressure over the weekend 187/115 and I’m already on 2 BP medications. Had to go to the ER by ambulance because I’m widowed (tragically) and spent 12 hours back and forth in the waiting room until a bed became available for me. The sign of the times is that the ER is used as a walk in clinic and it’s only going to get worse

The pulmonologist did a simple CBC on 2/28/24 and my hemoglobin was 9.7. It dropped to 8.9 on 3/20/24 which was my first of 3 iron infusions. I went undiagnosed with iron deficiency anemia because my PCP dismissed my question if I am anemic back in November. SOB worsened and I was freezing cold all winter long

mrd, your PCP is a jack a**. I am iron deficient also. How did the pulmonologist and hemoglobin affect your situation? Was it the iron deficiency?
With being so cold (my mom was always freezing, all year round) . I have episodes of cold. My hubby bought me some of those hand/feet packets... you open them and they air activates them to heat up, sometimes even too hot, but oh do they feel toasty.

Former PCP. I went in a new direction because I fell through the cracks of the Penn State Health System because of him. A symptom of iron deficiency anemia is being cold as well as SOB. I was treated with 2 courses of prednisone and my breathing difficulty didn’t respond to the prednisone. It wasn’t my asthma at all but I was too sick to ask for bloodwork but did pose the question might I be anemic. There’s been an actual death from his poor medical treatment for a friend of mine. Yes it’s sometimes hard to be proactive when you’re downright sick

mrd, I am sorry about your spouse, I am sure you miss he/she. thank you for your kind share. I am 100% with you on ER is used as a walk in clinic. I live near a small, poor rural town, I live out of town. In CA, we have a lower income medical insurance like system, medi-cal. The state finally built a clinic that focuses on this population. It has taken a lot of patients out of the ER system. You mentioned you went via ambulance, I was told and have had the experience, that if you go via ambulance, you basically move to the front of the line. Just a thought, if you were to wear a medic-alert bracelet or necklace stating your issue, would that move you at least way forward in the ER line? I understand the wrenching, my entire upper body feels like 🔥🔥🔥 literally. I sure hope your surgery is an amazing success for you. I hope you have a friend, friends, family member who will be there for you. I think it's important to have someone who knows you and will stick up for you when you're having surgery. Good vibes ShelleyW

I physically couldn’t drive and I wasn’t put ahead of the line arriving via ambulance. It was a long 12 hours from start to finish