Severe Tortuous & Redundant Colon

Posted by julsnealey @julsnealey, Apr 10, 2024

I had a colonoscopy for symptoms of unexpected weight loss, severe pain, bloating, early satiety and chronic vomiting with bowel movements. I have had these symptoms for years (15), but they have increased in frequency and severity. The doctor discovered severe tortuosity and redundant colon. He said he had to get help in moving the scope through manually the very tight turns and twists. My question is: What medications have proven successful to management? Best diet? Doctor said it was so bad that surgery may be the best course of action, but they try and avoid that for obvious reasons. Anyone have a success story?

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I am still the same. I suffer from this daily and do not foresee that changing any time soon. I believe if you don't fit into a nice little package of symptoms for the more commonly known digestive issues you are simply lumped into an IBS/IBD category and sent on your way. Quality of life is an issue, but I don't see any change with this. I have given myself a mental break from trying to figure out an answer, as it was making me depressed. Its sad, frustrating and painful on all fronts. I would love to find an answer, I hope we can find one soon.

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@julsnealey

I am still the same. I suffer from this daily and do not foresee that changing any time soon. I believe if you don't fit into a nice little package of symptoms for the more commonly known digestive issues you are simply lumped into an IBS/IBD category and sent on your way. Quality of life is an issue, but I don't see any change with this. I have given myself a mental break from trying to figure out an answer, as it was making me depressed. Its sad, frustrating and painful on all fronts. I would love to find an answer, I hope we can find one soon.

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Hi, @julsnealey - I am sorry to hear you are still the same and suffer daily from this. I commend you for giving yourself a mental break from trying to figure out an answer.

I found out I have a tortuous colon in my first colonoscopy about a year and a half ago. I was not familiar with this condition, so wondered how my colon could have caused anyone a lot of trouble or torture. 🙂 That, or I thought that the post-colonoscopy report might have a misplaced or misspelled word.

I also learned after the colonoscopy that the GI fellow (trainee) doing my procedure struggled performing it due to the tortuosity, and the staff GI doctor had to take over. I did not receive any information about this being a potential problem in the future with gastrointestinal symptoms.

In your situation, julsnealey, what did you and your doctor think would be the pros and cons for you of having a colectomy at some point?

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Right on, thanks for abbreviating my regularity journey into my 2nd year. My ND bet me, I could tailor my own program with research - Thank you Dr. Matt Angove, ND

Wanna add: Glad for better stress control - so important. At 73 yrs old with a redundant colon, I need to manage my regularity. It would be nice if there was a one time fix but it's physical. I appreciate NOT BEING ON MEDS, they may work KIND OF but are FOREIGN TO OUR BODIES often with SIDE EFFECTS.

Thanks, @bethyh79, Good luck, @farmersmith

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