Severe pain 1 yr after colon resection

Posted by kets @kets, Dec 12, 2021

My husband has Severe pain 1 year after 4 inches of colon removed because of diverticulitis. He Feels fine sleeping but when upright and going throughout the day, pain returns. When he eats, pain. When he goes to the restroom, pain. Nothing helps. He has had multiple CT scans with and without contrast. Nothing reported. Blood work shows elevation in neutrophils but everything else is normal. What could this be? He is becoming more and more discouraged.

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@x638405

I am 14 months out from my bowel resection surgery & just started having pain this past week. 🙁
This makes me very nervous & concerned… it doesn’t feel like my previous diverticulitis flares, but it’s still extremely uncomfortable and noticeably different.

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Hi, I am 11 months after sigmoid Colectomy 9 inches plus removed after 3 bouts of uncomplicated diverticulitis. ALL they said was go out enjoy your kids and eat what you want. WRONG Should explain the6-10 bms per day, avoid constipation or explain could be a problem, and what stool will look like.
Have burning, sometimes diffuse pain almost constant pain from under left rib to LLQ. Have to get up from sitting, stretch leg out, change positions constantly. Utilizing most suggestions here for constipation which I don’t realize and may b this was reason for diverticulitis. Met with new GI who diagnosed as ACNES- Abdominal Cutaneous Nerve Entrapment Syndrome as a result of multiple and surgeries and scar tissue. Referral to pain magement. Recent CT of pelvis and and w/w/o contrast negative except for stool in colon, and I had used a laxative and went 2 times before test. Any feedback is welcomed

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@x638405

I am 14 months out from my bowel resection surgery & just started having pain this past week. 🙁
This makes me very nervous & concerned… it doesn’t feel like my previous diverticulitis flares, but it’s still extremely uncomfortable and noticeably different.

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March will 1 year that they removed 12 inches.
I would be nervous and concerned too!
Have you notified your Dr?

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@mins4462

Hi, I am 11 months after sigmoid Colectomy 9 inches plus removed after 3 bouts of uncomplicated diverticulitis. ALL they said was go out enjoy your kids and eat what you want. WRONG Should explain the6-10 bms per day, avoid constipation or explain could be a problem, and what stool will look like.
Have burning, sometimes diffuse pain almost constant pain from under left rib to LLQ. Have to get up from sitting, stretch leg out, change positions constantly. Utilizing most suggestions here for constipation which I don’t realize and may b this was reason for diverticulitis. Met with new GI who diagnosed as ACNES- Abdominal Cutaneous Nerve Entrapment Syndrome as a result of multiple and surgeries and scar tissue. Referral to pain magement. Recent CT of pelvis and and w/w/o contrast negative except for stool in colon, and I had used a laxative and went 2 times before test. Any feedback is welcomed

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I am at 11 months too. I did go through the Mutiple BM's a day for 5 mths. Then went to just the mornings unless I had too much to eat.
That is still the main side effect of my surgery (12 inches removed) I get full fast and still eat in small amounts.

I hear so much about scar tissue /adhesion after surgery and that it scares me!
Mine was supposed to be robotic and ended up being cut belly button down because of the scar tissue from diverticulitis

How long have you had this pain? I am reading about it now.

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Hello I just joined the group. I am considering elective surgery for diverticulitis after 2 hospitalizations in 18 months. But also trying to make diet changes. Wondering other’s journey experiences on surgery decision. I am terrified

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@linda82

I am at 11 months too. I did go through the Mutiple BM's a day for 5 mths. Then went to just the mornings unless I had too much to eat.
That is still the main side effect of my surgery (12 inches removed) I get full fast and still eat in small amounts.

I hear so much about scar tissue /adhesion after surgery and that it scares me!
Mine was supposed to be robotic and ended up being cut belly button down because of the scar tissue from diverticulitis

How long have you had this pain? I am reading about it now.

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I felt better around month 4 however pain never really left. Had aCT at 10 weeks post op due to the pain not improving, nothing showed---give your self more time. Here I am with the continued burning, sometimes sharp or gripping pain. Mine was robotic/laprascopic. I too can only eat small portions, fill up fast, another vicious cycle. It makes sense that it's a nerve, however continued inconsistent bowel habits are exhausting.

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@mins4462

I felt better around month 4 however pain never really left. Had aCT at 10 weeks post op due to the pain not improving, nothing showed---give your self more time. Here I am with the continued burning, sometimes sharp or gripping pain. Mine was robotic/laprascopic. I too can only eat small portions, fill up fast, another vicious cycle. It makes sense that it's a nerve, however continued inconsistent bowel habits are exhausting.

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I have been fortunate o not having pain or inconsistent bowl habits.
It is crazy how we get so full so fast.
The only way to describe is more discomfort sometimes. With eating the "small meals" sometimes you just want to have chips instead of dinner. LOL But, what I have learned is choosing "right" foods for "normal BM's and steal cheating.
I have been able to add so much back in my diet now that I really have to think about nutrition.
All the years of eliminating foods that you know or think will cause an episode is gone. But, mentally still struggle with anxiety. (my Dr. said that was normal)
Dailey routines are great to follow. I do have normal BM's now. I took MiraLAX a couple of times early on.
But, I have controlled that now and adjust diet if needed.
Normal day for me is
Get Protein, fruit, vegetables, vitamins and yogurt every day.
I work out or do some kind of exercise daily.
The sauna has helped me too especially for energy and mental.
I make sure and drink a lot! Water, no sugar juices, mineral water, coconut water and chamomile/ peppermint tea if I get too full after I eat.
It is weird that I feel the hardness on my belly and know that it is a BM and once I go to the bathroom it goes away.
The other issue I thought was strange is my nails were chipping and breaking nonstop, and I have always had fast growing hard nails. My Dr. said to take Biotin 6 mths ago and it has helped and said it was normal after being "opened up"
How is your weight? Mine has not changed from what I lost before surgery.

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@dormor321

Hello I just joined the group. I am considering elective surgery for diverticulitis after 2 hospitalizations in 18 months. But also trying to make diet changes. Wondering other’s journey experiences on surgery decision. I am terrified

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This may help.
I was terrified too!
It is great not to worry about ER visits, being on meds, having pain, and living again.
My Dr. told me that mine was so bad diet will not help, and you can change all you want, and it would not matter.
https://connect.mayoclinic.org/discussion/diverticulitis-and-now-going-to-have-a-sigmoid-colon-resection/

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@mins4462

I felt better around month 4 however pain never really left. Had aCT at 10 weeks post op due to the pain not improving, nothing showed---give your self more time. Here I am with the continued burning, sometimes sharp or gripping pain. Mine was robotic/laprascopic. I too can only eat small portions, fill up fast, another vicious cycle. It makes sense that it's a nerve, however continued inconsistent bowel habits are exhausting.

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Can’t you use hyoscyamine or something like that to see if it helps. It can be dissolved under the tongue. Baclofen 5mg is also an idea. Both are prescriptions.

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@diannesmcneill

Can’t you use hyoscyamine or something like that to see if it helps. It can be dissolved under the tongue. Baclofen 5mg is also an idea. Both are prescriptions.

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Great suggestions, I do use cyclobenzoprine rarely for neck arthritis. I will have to research the hyoscymine. Trying different things to get normal again.

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@linda82

This may help.
I was terrified too!
It is great not to worry about ER visits, being on meds, having pain, and living again.
My Dr. told me that mine was so bad diet will not help, and you can change all you want, and it would not matter.
https://connect.mayoclinic.org/discussion/diverticulitis-and-now-going-to-have-a-sigmoid-colon-resection/

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Same had 3 episodes. However, I have a family member who 20 years ago had 2 episodes made dietary and some added fiber everyday and no problems--so far. The other issues I had and I have heard from others are the bowel adhesions to the pelvic wall, bladder,, etc

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