Severe Neuropathy

Still suffering from neuropathy in hands and feet, sixteen months after completion of twelve cycles of Folfox. Have been on a minimum dosage of Pregabalin, 75 mg, which doesn’t seem to be having an effect. Oncologist said it will likely be permanent.

I have heard it can take months to years to never to get beyond it. I still suffer thru my whole body and only have two rounds of the oxaliplatin in treatment that caused it. I had an allergic reaction that practically paralyzed me after it. Couldn’t breath. Had to give me some shot to open up my airwaves. Then it took hours for me to walk without collapsing. They decided it was best to quit that. I do take gabapentin to sleep at times with advil. But I hate taking anything in the day.

I hate to add another negative data point but I've had neuropathy for 4 years now in hands, feet, and legs after 8 treatments of oxaliplatin. Fortunately, I have no pain - just the feeling of stuffed sausages in legs and other "weird" sensations. I assume at this point it's permanent unless some brilliant scientist figures out how to heal nerves. I use ice wraps on my legs in hot weather to "calm" them down. Good luck!