Severe Insomnia: How do people make it with so little sleep?

Posted by cmd @cmd, May 11, 2022

What do people do who don’t sleep or sleep maybe an hour?
How do people make it with so little sleep?
Any discussion would be helpful.

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My wife's psychiatrist diagnosed her over 40 years ago, with schizoaffective disease, takes an anti-psychotic med daily, that totally controls episodes... however, it seems to have given her insomnia and sever depression. Over the years she has tried numerous meds, some that worked, and then some that didn't. As she went without quality sleep, her depression worsened. About 20 years ago, she would take Deseryl/Trasodone with a Dalmane... worked well for about 10 years, and she was happy. Then either both meds stopped working for her, and or the generics weren't as good as the brand, she was then switched to just Temazapam/Restoril for sleep and depression... with Xanax .25mg, on an as needed, no more than 3/day, basis. Again, worked in the beginning, 10 years ago... but kept needing more and now, she understands that the side effects, for her it's nausea with dry heaves, come from taking to much Temazapam, 60mg, or from having too little in her system. I am trying, with her dr,, to gradually get her back to only taking 30mg. She wants to try TMS for the depression, hoping that a major mood change, may give her life meaning and purpose, along with restorative sleep, but will not start the TMS until the nausea and dry heaves are gone. This has been her experiences, just wanted to share her path.

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Profile picture for Paulalina @paulalina

Making meditation and Yoga a part of my daily practice is the thing that has really helped me with a lifetime of severe insomnia. It rook me awhile to get the hang of it but now, three years in I cannot imagine having this whole hour just for my good health. Eases my mind, my asthma has improved, my arthritis has learned that I can bend, and I feel so great when I am done. It is so much easier for me to be mindful in my daily life and being retired has become a time of joy for us despite our unanticipated health problems. We had plans for retirement, they changed, now we live happily within our limits and always encourage each other. It is wonderful having a supportive husband. Our three standard poodles help, too! Our oldest is my Service Dog, Beau. Learning to work with our disabilities has helped us realize how much we are still able to discover and enjoy.

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@paulalina

I am inspired by your comments about meditation & yoga. My wife and I have talked about it but haven't pulled the trigger yet. I think it is time. Can you recommend what type of yoga/meditation works for you ? We are both arthritic, 73 & 71 yrs old. I'm very inflexible and want to improve in this area.

Thanks in advance,
Gary

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Profile picture for cmd @cmd

When you mean severe insomnia, are there times you do sleep. I don’t sleep at all!!! Unless I take a powerful drug to knock me out. Prior to Covid I slept like a baby.

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@cmd

Curious, our 35 yr old son has severe insomnia and does not sleep. He maybe gets 1 hr, some nights 0, and on a good night 3-4. No pattern to what nights he gets some sleep or none at all. Tried all kinds of meds and talked to many professionals. Nothing works. About ready to start Dr Steve Orma's CBT-I program. Feedback we have read is that it is hard to follow and stay disciplined. Anyone have any personal feedback ? Other proven solutions that help when really not sleeping at all ?

Thx,
GRL

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Profile picture for lamberg1 @lamberg1

@cmd

Curious, our 35 yr old son has severe insomnia and does not sleep. He maybe gets 1 hr, some nights 0, and on a good night 3-4. No pattern to what nights he gets some sleep or none at all. Tried all kinds of meds and talked to many professionals. Nothing works. About ready to start Dr Steve Orma's CBT-I program. Feedback we have read is that it is hard to follow and stay disciplined. Anyone have any personal feedback ? Other proven solutions that help when really not sleeping at all ?

Thx,
GRL

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@lamberg1
I have suffered from severe insomnia for over 25 years. What has not worked for me: 2 evaluations by “sleep specialist” physicians, instructional sessions with a “sleep expert”, a variety of medications. What has helped but not solved my insomnia: increased exercise per week (3 Pickleball, hour Pilates, hour yoga), sleep mask, walking around, a small bowl of cereal (1-2 PM), some nights valium 5mg or trazodone 25mg one hour before bedtime, listening to a mildly interesting audiobooks.

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I can tell you first hand, it can be difficult. I would encourage a sleep study, as I was mis diagnosed for years. My MCV and MCH labs were off for 10 years prior to my OSA diagnosis. Those labs are directly related to blood oxygen levels and no other MD seemed to know that! No MD ever suggested a se sleep study because I’m otherwise healthy. However, I was born with a narrow airway and it doesn’t take much for the tongue to block it. I’ve also adopted practices of meditation, mindfulness, grounding, etc. , which I desperately needed. I hope this helps!

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Just a couple lines about the lack of sleep. I know the reason why my lack of sleep happened, but what good does that do me? It has been 25 years of this problem, but I have accepted taking some kind of pill to get the maximum sleep. Will someone tell me if the problem is still there if you are taking a pill? Is it possible to take a drug without it working? I know these things are NOT good for anyone, but neither is a lack of sleep. Which is the worst? Does a person's age enter in to the good or bad factor? Are pills worse than the lack of sleep? The most I can sleep WITH a pill is 4 7 1/2 hours. Without a pill I am up absolutely for 2 and 1/2 nights... 'cause I fold after that. We do not talk about how long it takes to go to sleep. I guess if we sleep at all (we problem sleepers) we feel lucky! Well, like in other situations, misery likes company! This is a helpful site!!

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Profile picture for lamberg1 @lamberg1

@paulalina

I am inspired by your comments about meditation & yoga. My wife and I have talked about it but haven't pulled the trigger yet. I think it is time. Can you recommend what type of yoga/meditation works for you ? We are both arthritic, 73 & 71 yrs old. I'm very inflexible and want to improve in this area.

Thanks in advance,
Gary

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@lamberg1
Try Somatic Yoga. There are several kinds, but any one of them should do. A qualified yoga instructor is a must.

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