Severe Bloating and Distention: How did you find relief?

Posted by htocco @htocco, Feb 18, 2019

Hello,
I have chronic bloating and distention of the abdomen and am very uncomfortable all of the time. I have had a colonoscopy and endoscopy (both negative), have tried a low FODMAP diet for several weeks, with no change. I do take probiotics as well a ginger root and peppermint. I rarely have cramping, except after a bowel movement. After a BM, the distention is more severe for the entire day. My GI doctor is at a lost as to what to do now. It seems much of the GI field is mysterious, and, unfortunately there are no answers for many conditions, including this. Is there anyone out there with similar symptoms? Does anyone have any suggestions for me?
Thank you!
Helen

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@htocco

I should have said from the beginning. I have a small blanket that heats up and I put it on my abdominal area. That really feels great! I work on a computer at home quite a bit, so I am able to somewhat recline, work and get
some relief at the same time!

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Thank you for saying that. I've had the same experience, that keeping my abdominal area warm is comforting!

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@lelia After reading your post I'm wondering how you got the information on what to eat and what not to eat. I am at the point where whatever I eat causes belching, bloating, distention and extreme flatulence I also have watery diarrhea and some constipation. My GI doctor has told me that there is nothing she can do for me. I saw a GI at the University of Michigan hospital but he doesn't seem to know what to do either.

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@beanglow

@lelia After reading your post I'm wondering how you got the information on what to eat and what not to eat. I am at the point where whatever I eat causes belching, bloating, distention and extreme flatulence I also have watery diarrhea and some constipation. My GI doctor has told me that there is nothing she can do for me. I saw a GI at the University of Michigan hospital but he doesn't seem to know what to do either.

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It took years of trial and error, appointments, and research. The first thing you need to do is get a _diagnosis_, and I would go up to Mayo Clinic in Rochester if I were you. They are #1 in gastroenterology, which is a very complex subject. That's what I finally did after waiting 8-10 years and getting nowhere locally. Mayo diagnosed me with fructose malabsorption, so I finally had a handle on it and could have a chance figuring out what to eat and not eat. I quit eating all sugars and fruit to begin with, but it was challenging determining what vegetables I could eat because most of them have sugar. I had a lot of help from the medical librarian at the local university med. center who did research for me on lots of things. I did not find dietitians that helpful because fm is a new area for them as well and they thought it would be ok to eat some sugars and for me it was not. I cannot do low FODMAP for example. I've been to Mayo maybe 3 times totally regarding G.I. symptoms and have finally reached a point where things are basically under control and I am trying some new foods occasionally. Still have bouts of indigestion and "pay for" trying something new. Only introduce one new thing at a time so you can determine if it is ok. Good luck with this. My heart goes out to you.

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@lelia Thank you for your reply. Everyone is urging me to go to Mayo. I have an appointment at U of M on the 28th. The doctor I will be seeing is an intern and he seems as baffled as the GI that I was seeing in Midland, MI. Could you give me the name of the doctor you saw at Mayo? Was testing done as an outpatient? If so where did you stay while you were there? At this point, I'm living on Boost and can't eat any regular food. I looked into the FODMAP but don't think I could tolerate any of it. I have been diagnosed with radiation enteritis but I think there is more than that going on. I truly appreciate all the information you have given me. I have been dealing with the damage to my small intestine since I had colon cancer surgery in 2001. It may be true that there is nothing that can be done for me but I'm not quite ready to give up yet. I'm glad that you are doing better. It gives me hope that something can be done for me. Bless you, Elaine

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@beanglow

@lelia Thank you for your reply. Everyone is urging me to go to Mayo. I have an appointment at U of M on the 28th. The doctor I will be seeing is an intern and he seems as baffled as the GI that I was seeing in Midland, MI. Could you give me the name of the doctor you saw at Mayo? Was testing done as an outpatient? If so where did you stay while you were there? At this point, I'm living on Boost and can't eat any regular food. I looked into the FODMAP but don't think I could tolerate any of it. I have been diagnosed with radiation enteritis but I think there is more than that going on. I truly appreciate all the information you have given me. I have been dealing with the damage to my small intestine since I had colon cancer surgery in 2001. It may be true that there is nothing that can be done for me but I'm not quite ready to give up yet. I'm glad that you are doing better. It gives me hope that something can be done for me. Bless you, Elaine

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Nice to hear from you. I've seen several g.i. doctors at Mayo. The most recent was Madhusudan Grover, who is very good. They are all very good. They probably will assign a doctor to you depending upon availability and your situation. The testing was done as an outpatient. We stayed at Springhill Suites in Rochester in case I'd be in the hospital at some point; St. Mary's Hospital is right across the street. Springhill Suites is not cheap but is so comfortable to the point of being luxurious. Tell them (or any lodging) you are in Rochester to go to the Mayo Clinic and they will give you a discount. Springhill Suites also isn't that far from the clinic buildings. The phone number for Gastroenterology is 507-284-2478 or 2875. Be sure to emphasize that you are coming for a diagnosis and/or second opinion. You are in my thoughts and prayers. Let me know how it goes.

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@lelia Thank you for the information. I will have to work around my daughter's work schedule. She will be driving me to Mayo. How long did it take to get an appointment? Thank you also for your thoughts and prayers. You have been a blessing to me. Elaine

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@beanglow

@lelia Thank you for the information. I will have to work around my daughter's work schedule. She will be driving me to Mayo. How long did it take to get an appointment? Thank you also for your thoughts and prayers. You have been a blessing to me. Elaine

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I can't remember how long it took to get an appointment. I think it depends on availability and your condition. Best of luck. BTW, Springhill Suites is a Marriott hotel.

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@ajstaley

I just wanted to check on you. How are you feeling? I’m still sick. Was in the hospital for a few days given fluids and something for my nerves it did helped a bit . But the GI issues never stopped. The nausea is unreal. Back to square one. God only knows what’s next.

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Try medical Cannabis

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Helen, one of the hallmark signs of Microscopic Colitis is diarrhea, constipation, brain fog, irritability, and abdominal pain. It's hard to diagnose. A biopsy of your colon has to be performed to diagnose MC. Many doctors – GI specialists don't know this. The only thing that helps is change your diet. It is doable. I have MC and I think Celiac. Keep me in touch, Dorothy

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I have distention/bloating only. I have had a colonoscopy which showed no problems. Thank you for your message!

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@beanglow

@lelia Thanks again. Elaine

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If for some reason your daughter can't drive you, you could always fly. Most of the motels offer free rides to and from the airport as well as to appointments. When you are there, don't be concerned if you are going around hooked up to some medical equipment – the locals have seen it all, believe me. The restaurants try to accommodate g.i. issues. Baker's Square is a good one for that. There is also one down the street from Springhill Suites called the Canadian Honker. Best of luck, and let me know how it goes!

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