Severe Bloating and Distention: How did you find relief?

Posted by htocco @htocco, Feb 18, 2019

Hello,
I have chronic bloating and distention of the abdomen and am very uncomfortable all of the time. I have had a colonoscopy and endoscopy (both negative), have tried a low FODMAP diet for several weeks, with no change. I do take probiotics as well a ginger root and peppermint. I rarely have cramping, except after a bowel movement. After a BM, the distention is more severe for the entire day. My GI doctor is at a lost as to what to do now. It seems much of the GI field is mysterious, and, unfortunately there are no answers for many conditions, including this. Is there anyone out there with similar symptoms? Does anyone have any suggestions for me?
Thank you!
Helen

Interested in more discussions like this? Go to the Digestive Health group.

@lelia I would fly but with spontaneous diarrhea, I'm afraid I might have to monopolize the bathroom for the whole time of the flight. I don't think the airline would allow me to do it. I know that driving could also present problems because if I don't have diarrhea I have bloating, distention, flatulence, and abdominal pain. In a vehicle, I could lay down in the back seat. I do have an appointment for April 29th. My daughter will be getting home from a trip to Missouri on the 27th. I might have to ask my son or another daughter. How long were you there for testing? Someone said to plan on at least 3 days. Thanks again for the valuable information. You have been an inspiration to me. I'll let you know how it goes. Bless you.

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@beanglow

@lelia I would fly but with spontaneous diarrhea, I'm afraid I might have to monopolize the bathroom for the whole time of the flight. I don't think the airline would allow me to do it. I know that driving could also present problems because if I don't have diarrhea I have bloating, distention, flatulence, and abdominal pain. In a vehicle, I could lay down in the back seat. I do have an appointment for April 29th. My daughter will be getting home from a trip to Missouri on the 27th. I might have to ask my son or another daughter. How long were you there for testing? Someone said to plan on at least 3 days. Thanks again for the valuable information. You have been an inspiration to me. I'll let you know how it goes. Bless you.

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You can't predict how long, but I would say at the very minimum 3 days. Once I was up there for 2 weeks but that wasn't for g.i. issues. They were checking me out prior to surgery. I went up last fall and was only there a day for only one appointment, as it turned out, but that wasn't for g.i. issues either. From the sound of your difficulties, you might want to book the hotel for at least 5 days (maybe there is a weekly rate). You can always leave early and cancel the reservation for the rest of the week. Best of luck! I'll be looking forward to your report. CL

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Booking for 5 days or a week sounds like a good idea. Thanks for the good wishes and information. I appreciate it.

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@gab002

I have been suffering for almost 6 months with upper abdominal pain (right under xyphoid process) and also chest, with terrible bloating with occasional queasiness. I’ve had a complete Abdominal Ultrasound, Upper Endoscopy with Biopsies for H Pylori, did the Breath tests for Lactose, Fructose and Bacteria, all of which were negative. I’ve been on PPI’S, Zantac, Bentyl Gas-X, etc… I’m exhausted with this and don’t know what else to do. My GI Dr. is now wanting me to do a FODMOP dietary program. Others think I should take Probiotics. Any suggestions?
I just want to feel better.
Thank you

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Hello @gab002 and welcome to Mayo Connect.

I am sorry to hear of all of your discomfort and inability to find an answer or a cure for it. Many of us on Connect have had hard to diagnose problems and we understand the frustration. While you wait for others to respond to your post: If you are comfortable sharing more, before the problems that you said started six months ago, had you previously had other digestive tract problems or surgeries, such as gallbladder removal, etc.? Do certain foods and/or activities make your symptoms worse? Have you lost much weight due to these problems? Does exercise make these symptoms worse or better?

Have you tried the FODMAP dietary program yet? Since it was suggested by your doctor, it might be worth a try.

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@hopeful33250

Hello @gab002 and welcome to Mayo Connect.

I am sorry to hear of all of your discomfort and inability to find an answer or a cure for it. Many of us on Connect have had hard to diagnose problems and we understand the frustration. While you wait for others to respond to your post: If you are comfortable sharing more, before the problems that you said started six months ago, had you previously had other digestive tract problems or surgeries, such as gallbladder removal, etc.? Do certain foods and/or activities make your symptoms worse? Have you lost much weight due to these problems? Does exercise make these symptoms worse or better?

Have you tried the FODMAP dietary program yet? Since it was suggested by your doctor, it might be worth a try.

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Hello!
I've had some gastritis/esophagitis periodically in the past. Some of the pain I have now is also in my chest through to my back which was there before I had my gallbladder out. Cardiac was ruled out at that time. I was told I have a small sliding hiatal hernia seen on Endoscopy but can't seem to correlate anything with my symptoms. Nothing seems to make it worse or better. I just started IBGuard today and a Probiotic to see if these might help. I wish I could say I've lost weight but haven't…. just maintained! It's hard to know what to try first.
Thank you!

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@gab002

I have been suffering for almost 6 months with upper abdominal pain (right under xyphoid process) and also chest, with terrible bloating with occasional queasiness. I’ve had a complete Abdominal Ultrasound, Upper Endoscopy with Biopsies for H Pylori, did the Breath tests for Lactose, Fructose and Bacteria, all of which were negative. I’ve been on PPI’S, Zantac, Bentyl Gas-X, etc… I’m exhausted with this and don’t know what else to do. My GI Dr. is now wanting me to do a FODMOP dietary program. Others think I should take Probiotics. Any suggestions?
I just want to feel better.
Thank you

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Did they check you for Celiac disease/ Gluten sensitivity?

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@gab002

Hello!
I've had some gastritis/esophagitis periodically in the past. Some of the pain I have now is also in my chest through to my back which was there before I had my gallbladder out. Cardiac was ruled out at that time. I was told I have a small sliding hiatal hernia seen on Endoscopy but can't seem to correlate anything with my symptoms. Nothing seems to make it worse or better. I just started IBGuard today and a Probiotic to see if these might help. I wish I could say I've lost weight but haven't…. just maintained! It's hard to know what to try first.
Thank you!

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@gab002
I have had severe and less severe versions of your pain – esophagitis and another problem- pancreatitis.

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@gab002

I have been suffering for almost 6 months with upper abdominal pain (right under xyphoid process) and also chest, with terrible bloating with occasional queasiness. I’ve had a complete Abdominal Ultrasound, Upper Endoscopy with Biopsies for H Pylori, did the Breath tests for Lactose, Fructose and Bacteria, all of which were negative. I’ve been on PPI’S, Zantac, Bentyl Gas-X, etc… I’m exhausted with this and don’t know what else to do. My GI Dr. is now wanting me to do a FODMOP dietary program. Others think I should take Probiotics. Any suggestions?
I just want to feel better.
Thank you

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You know how miserable it can be. I'm sorry you've experienced it also. So your diagnosis was/is Pancreatitis? What is your treatment?

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@astaingegerdm

Did they check you for Celiac disease/ Gluten sensitivity?

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No

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I have been suffering for almost 6 months with upper abdominal pain (right under xyphoid process) and also chest, with terrible bloating with occasional queasiness. I’ve had a complete Abdominal Ultrasound, Upper Endoscopy with Biopsies for H Pylori, did the Breath tests for Lactose, Fructose and Bacteria, all of which were negative. I’ve been on PPI’S, Zantac, Bentyl Gas-X, etc… I’m exhausted with this and don’t know what else to do. My GI Dr. is now wanting me to do a FODMOP dietary program. Others think I should take Probiotics. Any suggestions?
I just want to feel better.
Thank you

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Hello @gab002,

You may notice that I moved your message and combined it with this existing discussion. I did this as I thought it would be beneficial for you to be introduced to other members who are discussing much of what you are experiencing.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

I’d encourage you to view these discussions on Connect, where @losthope @sue6408 @pines @annapocono @ngorman25 @musicflowers4u @jcarndt @jackiem95 @maryjax and others have shared some valuable insights about bloating, FODMAP and probiotics:

– GERD and IBS: Meds causing constipation, laxatives & FODMAP? https://connect.mayoclinic.org/discussion/gerd-and-ibs/
– C. difficile -are your guts ever normal again ? https://connect.mayoclinic.org/discussion/c-difficile-are-your-guts-ever-normal-again/

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@gab002

Hello!
I've had some gastritis/esophagitis periodically in the past. Some of the pain I have now is also in my chest through to my back which was there before I had my gallbladder out. Cardiac was ruled out at that time. I was told I have a small sliding hiatal hernia seen on Endoscopy but can't seem to correlate anything with my symptoms. Nothing seems to make it worse or better. I just started IBGuard today and a Probiotic to see if these might help. I wish I could say I've lost weight but haven't…. just maintained! It's hard to know what to try first.
Thank you!

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Hello @gab002

Thanks for the added information. I'm glad that you mentioned the gall bladder surgery. As you know, Mayo Connect cannot diagnose health problems, but your symptoms did sound familiar to others that I've read who have had gall bladders removed.

Did you know that often after having a gall bladder removed some people have a problem with Sphincter of Oddi Dysfunction (SOD)? Here is the link to those discussions, https://connect.mayoclinic.org/discussion/i-have-sphincter-of-oddi-dysfuncfion-it-causes-severe-upper-abdominal-pain/?orderby=DESC#chv4-comment-stream-header.

I encourage you to read them and talk to your doctor about the possibility. As you read these discussions on Connect, you will find that many doctors are unaware of this diagnosis so it might require a second opinion from a specialist who deals with it. Here is info on a Mayo doctor who has SOD as one of his specialties, https://www.mayoclinic.org/ar/biographies/topazian-mark-d-m-d/bio-20054524

Here is another website that may help you understand SOD, Cost-Effective Therapy for Sphincter of Oddi Dysfunction https://www.cghjournal.org/article/S1542-3565(17)30822-4/fulltext

Will you provide an update as you continue to search for answers to this problem?

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