Seronegative Sojourns

Frustrated! So my labs show chronic inflammation. ESR, CRP, Sed Rate, Complement C3 elevated. Ultrasound shows RA nodules. I scored 13 but not 14 for positive and I get the Lupus face rash. You can’t be seronegative for RA and have the nodules. I had severe nodules in my hip and had the bursa removed. I now have two options genetic testing. Can anyone tell me how it affected your insurance? Option two after genetic testing depending what it shows if nothing go to Mayo Clinic in Rochester MN was told the campus larger and more doctors.
Anyone had genetic testing or been to Mayo Clinic in Rochester? If so did it affect your insurance plus I heard staying in MN is expensive anyone offer any advice?

Hello @artemis1886 - I moved your discussion and combined it with your previous discussion on "Seronegative Sojourns" - https://connect.mayoclinic.org/discussion/seronegative-sojourns/ so members who you met previously could see your update.

You may also find the Visting Mayo Clinic support group a useful resource for learning about lodging, transportation and all things visiting a Mayo Clinic site, https://connect.mayoclinic.org/group/traveling-to-mayo-clinic/.

They rheumatologist and research neurologist out of Boston. I could not get answers on my neuropathy. My neurologist died in 2022. I went from seeing him every two months and discussing treatment to just being told to come see them once a year. They refuse to dispense muscle relaxers or do Botox injections. I found out when I went to Boston about the type neurologist I need a neuromuscular neurologist treats neuropathy just and FYI not many in Dallas. I was disappointed in rheumatologist because I scored 13 and he said you had to score 14 to be treated for rheumatoid arthritis. I have discovered not every rheumatologist knows how to test for seronegative sojourns. Some have not heard of it. You have to take a biopsy from the glands. It then is sent off for testing. All they have done is ultrasound. So unless the rheumatologist knows how to test for it it’s a waste of my time to keep going to see them. I have a family history of rheumatoid arthritis my mother, grandmother and my nephew was born with juvenile rheumatoid arthritis. He is now 29. Pretty good indication I have it. For the first time ever the rheumatoid doctor did ultrasound on my wrist and hands and told me I have alit of inflammation duh tell me something I don’t know. He wants me basically on a vegetarian diet. No milk, flour, eggs, sugar, grain,corn and so much more nos. I was thinking what I could have for breakfast. No oatmeal (grain/white flour/no flour period) that removes pancakes, no eggs, I already don’t eat pork, and no cereal, no homemade cinnamon rolls.
I can have no hormone chicken, turkey and wild caught fish only no farm raised. 90%percent fish farm raised with hormones.