Adults On The Autism Spectrum

Posted by Mamacita, Alumna Mentor @mamacita, Apr 29, 2018

Maybe you were really shy as a child. Perhaps you took home a huge stack of books from the school library, read them, and returned them the next day. Or did your best friend find you crying in your closet, unable to answer the question “Why?” At any rate, your life could be traced to the Self-Help section of the local bookstore. Unfortunately, most of the books were not much help. ADHD seemed to fit, at times. Your shrink said you might be Bi-Polar, although she wasn’t really certain. All you knew was that you rarely fit in, anywhere. One day at work, it hit you square in the face: I don’t speak these people’s language! Really, it was like you were all playing this game, and everyone knew the rules but you. You couldn’t tell a joke, and you never “got” any joke your co-worker tried to tell you. People started getting annoyed with you, because you had a memory like a steel trap. They didn’t appreciate it when you called them on the carpet. Who knew? This was my life, and worse. I finally aced several tests that pointed me to the answer to my questions. The Autism Spectrum. Guess what? Little kids with Autism grow up to be Adults with Autism. Diagnosed late in life? This is the place for you!

Interested in more discussions like this? Go to the Autism (ASD) group.

@hopeful33250

@mamasitalucita

Yes, your statement is not political – just human and caring. I'm sure many of us have heavy hearts as you do. People with Autism do care and do feel for others.

Are there any other groups where you could invite adults on the Spectrum to join this discussion on Connect? I too, would love to have more Members and sharing.

Teresa

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thank you John the Mentor , i wasn't sure being Mayo clinic how to add as i live in Australia

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In reply to @sirgalahad "hi mamasitalucita" + (show)
@sirgalahad

hi mamasitalucita

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thanks Mamasitalucita

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In reply to @sirgalahad "hi mamasitalucita" + (show)
@sirgalahad

hi mamasitalucita

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We are, indeed, better together.  We all have come through many storms, and many, many deserts, to get where we are.  If we reach out to each other in compassion and friendship, we can do anything.  There is still suffering, there's still a part of life that is more difficult for many of us to travel through.  But together we can see life for what it is.  A journey that can be joyful, when we share it.

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Once again I don't fit in. I was diagnosed as a child, but am now old. Why limit it to those diagnosed late in life?

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@miilanna

Once again I don't fit in. I was diagnosed as a child, but am now old. Why limit it to those diagnosed late in life?

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Oh, my dear, sweet miilanna, this site is not limited to those diagnosed later in life. Not by a long shot. I am so, so very sorry if you were given that impression. Not for one second do I want you to feel like you are on the outside looking in, here. This site is open to anyone who is on the Spectrum. And as long as they stay focused on the actual Autist, family members are welcome as well. This site is to be a place where we can all gather together and breathe a sigh of relief, because we are finally …home. Home is where you should be loved and accepted. Home is where you feel safe, and free to express how you feel about everything. Home is where you can ask questions, and be heard. Welcome home, miilanna.

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In reply to @sirgalahad "hi mamasitalucita" + (show)
@sirgalahad

hi mamasitalucita

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@rosemarya, I have a lovely, kind, neurotypical friend who uses the phrase 'We are better together" referring to her parrish. I cannot take credit for the phrase, but I love to use it myself when referring to our community. Those of us who are on the Spectrum are a pretty tight knit bunch, once we find each other. We amazingly have so much in common. We are all different, with our likes and dislikes, our job experiences, and so much else. And yet, at the same time, little quirks pop up here and there that seem to be unique to our group. So there are lots of great "Aha!" moments. I agree with you. Those are indeed beautiful words, " We are better together." Until next time, @mamacitalucita

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Whether you were diagnosed late in life or as a toddler, or anywhere in between, have we got a site for you! Please forgive me for the way this was worded. When I was first asked about this discussion group, all I could think about was the huge number of people who were never diagnosed because the mental picture of someone with Autism was a frail, thin girl, rocking back and forth in an institution. I remember being drawn to pictures like that in books that I read. At the time, it didn't occur to me that I was very much like her, except I had many more advantages and opportunities than she did. My focus was on adults on the Spectrum, and I tried to give a background so that people who were looking for a confidential site would relate. As is so common for me, I neglected to emphasize that this site is for anyone eighteen and older. If anyone ever has a question about anything at all, please do not hesitate to ask. I will definitely not know all the answers, all the time, that is for certain. But we can work together to find out. Until next time, Mamacitalucita

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@hopeful33250

@mamasitalucita

Yes, your statement is not political – just human and caring. I'm sure many of us have heavy hearts as you do. People with Autism do care and do feel for others.

Are there any other groups where you could invite adults on the Spectrum to join this discussion on Connect? I too, would love to have more Members and sharing.

Teresa

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@hopeful33250, Thursday, June 28 10:55pm I have contacted a few friends about Mayo Clinic Connect, and have gotten some great responses. I did reach out to a support group to ask about this information being given to the group. The Administration will make a decision soon. Every day I will try to connect with those I have met and offer them the opportunity to join our discussion. I want people to feel comfortable being here and that they are welcome with open arms. Love and light, Mamacitalucita

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@hopeful33250

@mamasitalucita

I appreciate your starting this discussion of the Spectrum. This could be very enlightening for many of our adults who have problems that seem to be beyond treatment.

Could you share a bit more about how the Spectrum diagnosis came about? Was it a professional who diagnosed you? If so, what in particular led to this diagnosis?

Once again, when sharing personal experiences on this online community, please feel free to share only as you are comfortable doing so.

Teresa

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Sir Galahad, if cloning is ever ethical or possible, they need to consider you as one of the first. Your comments are thought provoking and insightful. So glad you popped in. Love and peace, Mamacitalucita

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@hopeful33250

@mamasitalucita

Yes, your statement is not political – just human and caring. I'm sure many of us have heavy hearts as you do. People with Autism do care and do feel for others.

Are there any other groups where you could invite adults on the Spectrum to join this discussion on Connect? I too, would love to have more Members and sharing.

Teresa

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Who says Auties don't have a sense of humor?!! You make me smile!

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In reply to @sirgalahad "hi mamasitalucita" + (show)
@sirgalahad

hi mamasitalucita

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It takes time to build trust. I suppose that is why it has always been so hard for me to make real, long lasting friends. I tend to keep my guard up a bit, waiting for the other shoe to fall. But not nearly so much, the more transparent I have become. Time and circumstances have taught me that there are many levels of friendships. These days it is much more comforting to simply be grateful for the ones who have come into my life. Each one fills up a part of me that needed healing, wholeness, community. And the ones who didn't stay? Well, they taught me a lesson, as well. Don't take tomorrow for granted. We might not have it. But don't be afraid. Breathe. Drink that first cup of tea or coffee, or whatever beverage you consume first thing in the morning. Look up at the sky, and please, gentle soul…tell yourself this one thing: you are worthy. You will find your place, and you will find members of your tribe. Here, there, not all at one time, necessarily. But you will find them. And they will find you, too. Peace, until next time, @mamacitalucita

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Hello @miilanna and welcome to Mayo Connect!

My name is Teresa and I am a Volunteer Mentor on Connect. I am so happy that you have joined our discussion, we are glad to have you! You definitely "fit-in" here.

Yes, as @mamasitalucita said this discussion group is for anyone on the Spectrum and I would love to have you share your experiences with this group. Please share with us some of the challenges you have faced and some of the contributions you have made as you have lived your life on the Spectrum.

At Mayo Connect we all learn from each other and I look forward to learning more from you!

Teresa

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